Hi everyone
I am ususally on the heart rhythm boards as I have been suffering with crazy PVC's and palps...but I wanted to come over and share my story in hopes of giving you all some hope!
I was diagnosed in 1997 with Hyperthyroid and Graves Disease. I didnt take meds at that time since mine tended to fluctuate between normal and hyper. In 2004 after the borth of my 2nd child, it went haywire. After trying to figure out why I felt crazy all the time - my levels finally showed back at 0.01. I had every symptom imaginable. I even had all the mental ones - panic attacks, anxiety, became a littel OCD. I remember I was even paranoid of the clouds! I asked to be commited to a mental hospital. I thought I was going to die!
I had an uptake scan and it was the 2nd highest the tech had seen at 90%. So I went on Tapazol - only to be allergic to it. Hives for 10 days. So I then went on PTU and after adjusting it a couple times I got into normal range and stayed there. For four years I was on PTU. While I developed a healthy anxiety due to all our bodies go through while dealing with thyroid issues - a lot of the panic attacks and anxiety went away. I still have some but for the most part feel fairly normal.
My Endo notified me that there was a warning issued on PTU and I should try to come off and see how I would do. At this time I was only taking one 50mg tablet a day and staying steady in normal range. He tested my antibodies again and they were down from 4500 to normal at 24!!! So I came off meds in Oct 2010 and I am still off today. I know some Dr's say it will most likely come back - but I am staying optimistic in my faith and believe I have beat this. It was a long hard struggle that affected every area of my life - my marriage, my kids, my health etc. It made me a different person. But I am ok today and while I am facing a new hurdle with heart issues, my thyroid is a thing of the past.
So I know right now it seems as if you will never feel better, or beat it - but stay positive - live minute by minute if thats all you can do - but you will win. Good luck and hang in there!