Thyroid coming out June 27

[danie17075rm]

I met with the surgeon.  I went over every symptom I have had.  He said I can very well have a pituitary problem, but my endo needs to deal with that, as it is not what he specializes in.  The doctor was nice.  It's a teaching hospital so I also had to deal with students.  He said that even though I might have a pituitary problem, most of my tests and symptoms are completely consistent with hashimoto's.  I am positive for 2 types of antibodies (that was new information).  He said that the thyroid has to come out, even if I have other problems.  My thyroid is causing too many issues and he said it felt all rubbery.  He actually made all the med students come in and feel my thyroid as it is apparently the "perfect" text book hashimoto's thyroid.  You can even feel the edges of mine. YAY, at least my thyroid is good for something lol.  I said I'm glad it can be of use to someone and they said, "hey we will get to see it when it comes out too" lol.  He said that radiation would not have been a good choice for me.  My hashimotos is so bad that different parts of the thyroid uptake the iodine at different rates.  He said this would have been really bad for me, and surgery is definitely the best option.  He can just remove it, and I will finally have a steady dose of thyroid hormones.  He also said that I should not be too expectant that this will cure everything.  He said it plays havoc on the nervous system, and sometimes it doesn't get entirely better.  He is going to examine the parathyroids while he is in there, but he really wants me to try and raise the vitamin D before surgery.  They had an opening June 1 for surgery, but I really wanted some time to take this in.  My surgery is schedule for June 27.  A few weeks before that I have a pre-op appointment and a few weeks after surgery my post-op appointment.  He said since I have an autoimmune disease, getting rid of the thyroid doesn't always help the autoimmune problem.  UGH.  I'm kind of scared that it won't make me feel better after what he said, but I do know it will give me a constant flow of hormone rather than too much or too little.  SO, that is the news.  The thyroid is going bye bye.  I don't know how to feel about it yet. At least I have some time to think. I hope this is the right decision!

[Brucergoldberg]

I read that after thyroid removal you need rai.   Then after the rai you will start thyroid.   I'm not sure why this happens.  Sounds like people need thyroid at at least a smaller level right when the thyroid is out.  

[kl42]

it can go the way it did with me and alot of people posting on here (that's why there are still here) but i remember a few , that were sick the same time i was  had the operation and recovered quickly  and are well a few months down the line , that's why you never see them on here any more.  so it's hard to say,  just like everything with the thyroid it will take a few months to rebuild your levels and start to heal yourself,   but I'm sure your aware of it,  but alot of people heal up, get the right dose  fairly quickly maybe one,  2 adjustments and there not sensitive to the med feel good and are fine, and they go on with their lives ,  so hang in there. Kevin

[danie17075rm]

Kevin-  I guess that is all I can expect.  I'm sure I have a long, long journey to go, but at least you do feel better.  I guess any improvement is good lol.  If I can look at the mountain and know there is an end, it will be easier than looking at the mountain that just goes on forever!  I will be picking your brain =).

Barb-  I would get natural sunlight, but I live in MI and we don't have that here lol.  If it were just the sickness I would take the D, but the heart racing I can't handle.  I feel like I'm going to have a heart attack after I take it.  
I was only thinking of a way to raise D short term before surgery.  A little bit anyway.  I know there are many risks though.  Sigh, why can't anything be easy?

[Barb135]

Some people simply do not seem to produce vitamin D...... I spend the majority of work day in the sun, yet, I have to supplement vitamin D. Apparently, my body doesn't produce it.  It that's the case with you, a tanning bed will not help.

Also be careful, because there are other problems with using tanning beds. Research carefully.

[kl42]

yes i feel better, but it's also taken a year and a half of med adjustments changes ups and downs to get it close to right and im still working on it,   but not everyone goes through this . some adjust well and 3 months later are good , but not everyone, Kevin

[achilles2]

I do not tan, it is just what I have heard. When you look it up it seems everyone is split. Here is an article from a study that the National Insititue of Health did with another organization:
http://foodconsumer.org/7777/8888/G_eneral_H_ealth_34/022202272008_Tanning_beds_help_vitamin_D_deficiency.shtml

Good luck,

achilles2

By the way was the Vit D supplement you took D2 or D3, because D3 is the one the body needs. Also be sure to check the inert ingredients it could be that if there are fillers you could be reacting to the brand's fillers.