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798555 tn?1292787551

treatment not working

New here.

I have been taking levothyroxn (spelling) for 11 years but am still tired all the time, brain fog (a bad thing in company meetings) with worsening muscle soreness, cold hands / feet, carpel tunnel, thinning hair, vitaligo had re-flux too. The docs jack up the prescription every year (was at 175) but my symptoms don't go away. For two weeks I just tried a combo of 112 levothyroxin (t4) with cytomel 5 (t3) in two haves (morning with levothyroxin) and afternoon cytomel only. My muscle pain seemed to lessen and  my brain fog went away, I no longer got sleep attacks while driving. The bad part - a weird lingering headache that would not stop and sleep problems - like a wiered meth addict!  I quit the cytomel two days ago and the headache is mostly gone but still have a very slight 'ringing' in my ears, strange feeling. And now I am already tired agian just on the levothyroxin. The docs tell me Armour will give me headaches if Cytomel did. Is there nothing else I can try? I eat good, take vitamins (selenium included) I cannot sleep through my life. I could get in an car accident or get fired for appearing to be totally out of it at work. Life is too short, I am only 40.
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Avatar universal
I went and had all my levels checked today... I also found out that I have gained almost 10 pounds in a month. I really hope that my new doctor will take everything more seriously than my last!
Helpful - 0
780253 tn?1237555919
Has your DR tried to put you on Synthroid (Brand name) instead of the generic brand Levothyroxine. My Endo just changed my medicine from the generic to the brand name because he stated that the FDA allows the generic brand to be from 1%-9% off in the amount you take. So basically each time you go to the pharmacy you will always get a different amount of Levothyroxine (even though it says 100 mg, etc). I don't know if this will help. I just started to taking the brand name medication last week, so I will see. Good Luck and may God Bless you with better health.
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798555 tn?1292787551
There does not seem to be a whole lot of treatments out there. That was the purpose of my posting. If you have not tried cytomel (t3), find a doc who will try it out. Some people do not convert t4 to t3 at the cell level even though the lab test looks like they do in their blood. I think I am one of those people, but I am also one that gets the killer headaches from cytomel, could not tolerate it anymore. Well I used to live on redbull, everyday (safer driving)! I really dont want to do that again. T4 and redbull, now there's a combo!
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Avatar universal
I have been having these same issues. I am 29 and was diagnosed at 21 (my dr's said that it is very likely that I had this issue all through my teen yrs...). I am on .150mcg of levo a day, but I still have a host of other symptoms. I am in the process of finding a new doc because all my old one would test was my TSH levels, nothing more. I have three children and being sluggish all the time makes being a mom very hard. Thanks to reading your post I know that I must push for more test and better meds!!!
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798555 tn?1292787551
My correction, myTSH is (point) .67  not (67)!!
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798555 tn?1292787551
From LazyMoose
Selenium is in a multi vitamin 200mcg (286% of rec. daily). Free T4 1.4, free T3 3.49, tsh 67.

I take 500mg Magnessium day, eat bannanas for potassium and get protien - this helps a little with muscle pain. Typing still hurts, but my back is better.  B vitamins also included in the multi vitamin. Naps are the best.
Helpful - 0
Avatar universal
Be careful of too much Selenium.
I thought I needed it (as everyone recommends it) but found my level was high at one stage and can be toxic like any other supplement taken over long periods of time.
Have you had a vitamin deficiency test done yet?
Also what were your levels? FT3, FT4. TSH?
Helpful - 0
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