A YR AFTER TT & STILL FEELIN SH*TTY

[reneebear]

Well, i used to be hyper 6 years ago, but had thyroid out last march; was already on beta blockers too and they stoppesd me cold turkey the day of surgery. So, started Synthroid 100, them 2 wks later, to 50 then 3 wks later, 75, then to 100 for 4 wks.  Felt so " hyper" so quick had to start betas again(top xl).  went to er thinking i had a stroke, and had halter moniter for palps and pvc's and arrithmias (from stopping betas so suddenly and th damn meds).  so started levoxyl brand at at alow dose of 50 and did it the right way...slowley uping meds to currently 88 for 2 wks today.  My tsh is 15( down from 49 in summer), so its finally working at alower dose than when I was on synthroid 100. Currently gaining weight and feeling dizzy some days and a constantly nervous feeling and constantly sweating again. Hopefully after 4 more weeks I will drop my tsh even more, I just want to be in normal range and get my life back,, it seems the cure may be worse than the disease!!?? Will I ever feel better?? And am I doing it the right way now,slowley? And could the sweating and dizziness be me becoming diabetic, I feel like I have those symptoms too! My dad was insuline diabetic and its almost like I nedd to eat all the time ...maybe reactive hypoglycemic, since my a1c was 5 last yr?  HELP!!!!

[stella5349]

educating and learning about the hormones and how to replacement them properly with meds is so valuable.

Both Deb and Red gave you great thoughts. The labs are "very" improtant and making sure you get the right ones can make a huge difference.

[Smilerdeb]

If they did TT. there is no guarantee that there isnt some thyroid tissue still there as they cannot get every last bit of it so this may be making you feel crappy.
Also dose changing makes you not feel well either and you end up on a hyper/hypo see-saw.
Slow and easy is the way to go and if you think that all will be well overnight, then you will soon find out that thyroid issues require patience....something a lot of us dont have.
I am 21 months post RAI and 18 months post TT and I too went up in dose , only to find myself hyper and having to start from the 'beginning' once again.

I sometimes think its the Graves antibodies that 'fire up' the levels every now and then.
And then usually the levels seem to stabilise.
Give yourself a bit more time....thyroid issues are trial and error.
But have your labs done every 4 weeks.....everyone says 6 weeks but as with most 'hyper Graves' patients, we find ourselves very sensitive to thyroid meds.
All the best :)

Dx Hyper with Graves/ RAI June 2008/TT Sept 2008/Pit. tumour removed Mar 2010.

[redheadaussie]

G'day! I am sorry you are feeling so cruddy. I am surprised they took you thyroid out. If you are hyper they normally do radioactive ablation. Sounds like you had Grave's Disease.
Those doses being changed so often are really not helping you. It takes at least 4-6 weeks for any change to happen.
  It could be quite coincidental that you are feeling so hypoglycaemic at this time. Diabetes often goes hand in hand with Thyroid disease.
  Don't rely on the TSH....this is just your pituitary gland kicking out the hormone for the thyroid(or what would have been the thyroid!) to produce hormone to keep you going.
You really need to have Free T4...which will show how much replacement hormone you are having, and a Free T3 test, which will show that the T4 medication is actually working.
  Are you making sure you aren't taking it with food? It is very important you wait at least an hour before eating after you take the tablet. Also do not take any other medication for a minimum of 2 to 4 hours after your thyroid tablet. Often if you eat food immediately after having the thyroid medication, it will absorb and you will not get the benefit of the tablet.
It could be that the dose it too low....Keep me posted!
Cheers!