Why am I being ignored?

[lisadee48]

I love this site...but in the past when I have posted a question I dont get an answer...Am I doing this wrong?  I am not mad just confused.  here is my question.....Help!  Two years ago I was diagnosed with a multinodual thyroid.  I had an FNA and they were benign.  I had a followup ultrasound and they measured right... 1.5 x 0.9 and left 1.9 and 1.2.  That was in March 2008.  Today I had a followup ultrasound and they measured right... 1.8x1.2 and left 2.7 x 1.8.  Is this significant growth in a year in a half?  Also, my TSH is normal but the T4 or T3 is slightly off.  My doc thinks I am heading towards hyper and has ordered an uptake scan for next week.  My question:  Is this a huge growth in the size of my nodules?  Thanks really worried here

[blsdnsvd]

I would suggest that you have another fna done because of the growth. I also have a multinodular goiter with normal thyroid levels, however i have been recommended to have a tt due to the cancer risk. I was first diagnosed in 2007, however, God knows how long the goiter was present.

[Smilerdeb]

bumping this up.......

I was hyper but no nodules.
Just full thyroid cancerous.
Hence RAI and TT and doing great.

[katebrunk]

I forgot to mention that typically clinically significant growth is typically where growth occurs in 2 or more dimensions.  The left nodule certainly meets the criteria a clinically significant growth under these conditions.
Kate

[katebrunk]

I posted a similar question to Dr. Lupo; I experienced growth over a 7 month period that was 66% (went from 2cm to 3cm) in one nodule and 100% in another (went from 8mm to 1.6cm).  He said that he considered that clinically significant.  Reading many online sites and actually "googling" the question; I found that anything over 20% growth warrants further investigation regardless of the timeline.    

[lisadee48]

Already did...further down and did not get a response...thus this post.  Thanks

[goolarra]

My endo once made the comment that he wanted to make me normal...I told him "not a snowball's chance in he//"!  Post your question directly about nodules,and I'm sure someone will comment.

[lisadee48]

Thanks Goolarra---I will do that.  I am concerned about those numbers BUT i am more concerned about the nodule growth.  I know they sometimes grow but I just don't understand what is concerning growth.  I have learned on this site today that 'normal' is up for review.  LOL

[goolarra]

You should get in the habit of getting a printed copy of all your lab results.  It's imperative for your records, and we cannot comment intelligently without seeing them.  "TSH was normal (by what reference range?) and either T3 or T4 was .4 (and what was its reference range?)?  I think." is not much for us to go on.  Call your doctor and get actual numbers and ranges...he has to give them to you upon request.

[Totie]

I had lymph nodes that grew in size in 3 months, but I was also having salivary problems with my submandibular gland. The ENT & Endo told me it would be better have the lymph nodes and gland out since the lymph nodes had grown in size. They did not even do a FNA, they just sent me straight to surgery, but I was having other health issues. Night sweats, weight loss, they were afraid it was cancer so that is why they just took them out, including gland.

To me that is significant in growth according to my ENT & Endo. But it had nothing to do with the thyroid since I had a TT done 15 yrs ago.

So to answer your question yes. There is something going on. It turned out my lymph nodes grew due to the infection in gland that antibiotics did not kill in over a 3 month course.

[lisadee48]

THanks for your responses.  I did not realize that if you comment it bumps it up.  I did not want to harass you guys.....LOL....I do not know my numbers unfortunately.  I can tell you that Dr. said TSH was normal and either the T3 or T4 was .4?  I think.  The Dr. said indicative of moving toward hyper.  She had already wanted me to do the US for nodule size and then decided to also do uptake scan to see if nodules were doing whatever they do to cause hyper.

[gimel]

Please post the actual results and reference ranges for your TSH, T4 and T3 tests.

[goolarra]

Probably because most people who are hyper end up hypo eventually as a result of either RAI or TT, we have many more people on this forum who feel knowledgable in hypo than hyper (myself included).  I suggest you try to make your headline really relevant, e.g. "My nodules are growing, should I be worried?" or "Is this a huge growth in my nodules?".  People will respond if the headline attracts their attention.  We try not to ignore anybody, but we are not doctors, and some questions are a bit beyond our expertise.

[underinformed35]

I don't have an answer to your thyroid question but sometimes you just have to bump it back up if there are a lot of questions. So if you have trouble getting an answer just write a comment and bump it to the top! Good luck. I'm sure someone knows the answer to this for you!