Aa
do I have thyroid cancer- My life may be ruined
1) I am 58 years old and I with a fne I was diagnosed with one single 15mm hurthle cell neoplasm with differental diagonis of hurthel cell adema or carcoma or hurthel cell hyperplaia and surgery is sugessed to remove ismus and right loeb. and if cancer get 2nd surgery to remove 2nd loeb. smears are cellular exculusively of hurthle cells with promrnt nuclui and colloid is extremely in a bloody background. I have no symptoms and blood work is good so wht is this disease. Will this turn to cancer if now benigh, how fast does it grow, can you live with it for a while. I will be seeing a surgeon, a second endo and take a 2nd fine needle boispy in 6 weeks before I have any surgery. I wont do surgery if i need it until my cruise end of october whicjH I planed for 8 months..
2 I fell my life is a mess now. If I go through with surgery I will have to be on med rest of my life even I f have a partial thyroid removal. I hear that there is excessive weight gain when have a partial or total thyroid removal. I also hear that you will have excessive weitht gain with synchonoid and you have to fight with the doctors to get the the t3 hormones but they only give you t4 hormones. I was a little overweight and went on a diet as I was becomming pre diatebic so I lost weight and my blood sugar was now good.
3) I also have disk problems with spine and my protstate leves have nbeen elevated lately (enlarged prostate) have reflux and take nexium so i dont need this. How can I live normanally without my thyroid and wont the hormone balance crerate additional diseases.
..
2 I fell my life is a mess now. If I go through with surgery I will have to be on med rest of my life even I f have a partial thyroid removal. I hear that there is excessive weight gain when have a partial or total thyroid removal. I also hear that you will have excessive weitht gain with synchonoid and you have to fight with the doctors to get the the t3 hormones but they only give you t4 hormones. I was a little overweight and went on a diet as I was becomming pre diatebic so I lost weight and my blood sugar was now good.
3) I also have disk problems with spine and my protstate leves have nbeen elevated lately (enlarged prostate) have reflux and take nexium so i dont need this. How can I live normanally without my thyroid and wont the hormone balance crerate additional diseases.
..
Oh I meant to add; they won't know if it is 100% cancer untill they do a full pathology on the whole thyroid after surgery. You won't drop dead between now and your cruise if you don't have it out before then! IF it is cancer it won't take over your body in that short space of time, but I would recommend that when you get back you do have it out. We can never be 100% certain with HUrthle cells what they will do. Which is why the doctor's recomnmend taking the thyroid out. You could live to be 99 and have no trouble...or you could be unlucky and drop dead in a year....hence the concern of erring on the side of good sense and having it out.
Hope that didn't rattle you too much! Just trying to be honest!
Hope that didn't rattle you too much! Just trying to be honest!
I have had personal experience with Hurthle cells and can tell you right now, I know how you feel!
The main issue here is the statistics. Throw them out the window! They will only cause your head to get messed up! There are more cases of NON cancerous Hurthle cells than the cancerous ones. Secondly, Hurthle cells, if you look on the net generally, will always pop up that insidious word, 'Cancer' The facts of the matter are this; MANY types of adenomas are actually Hurthle cells. The Hurthle cells for some strange reason seem to like popping in and out of thyroids in strange ways. This does not mean they are cancer!!!The label Hurthle's cells has been used too often in pathology and needs to be a conglomeration of over 75% of them to be truly labeled Hurthle cells.
I know it may sound weird but the word Hurthle seems to be stuck to many irregularities of cells in the thyroid. I have been researching this for 2 years now.
You will NOT automatically gain weight on synthroid. This is an old wive's tale. You WILL gain weight however if you fail to keep to a good diet and excersise! If your dose is too low then perhaps you may find yourself slowing down and this can cause weight gain.
Yes it is true that many doctors can't or won't give T3 medication. BUT as Stella says above, you are jumping the gun on this one. For some people being on T4 only is fine, for others (like myself) this is not optimal. You can not know this till it happens! Pre-empting it is only going to cause you more worry. Best is to talk to the doctor about this concern and see what they say. Then you are forearmed as to what to do IF your T4 meds only don't work for you. Having said that. You won't know any of the symptoms of not having T3 for many months after surgery!
Personally I would opt to have the one surgery. IN my case they waited for 5 months and I had a second surgery to remove the true Hurthle cells in my right side. I believe it would have been much less traumatic on my body to have had it out earlier when the left side was done.
I went through the whole,what if it is cancer thing too. I went through all you are going through as well. BUT I didn't have the support of this group at that time. I also was not aware of many things which I now am educated. Learn about your disease. Ask the doctors a million questions. It is only with that knowledge before you go through surgery will you be able to cope with this whole issue.
Many patients with thyroid disorders do have other health issues, but the point is not to dwell on them as being negative, but rather accept the fact you will be able to deal with them as they arise, which hopefully won't be often!
Good luck!
The main issue here is the statistics. Throw them out the window! They will only cause your head to get messed up! There are more cases of NON cancerous Hurthle cells than the cancerous ones. Secondly, Hurthle cells, if you look on the net generally, will always pop up that insidious word, 'Cancer' The facts of the matter are this; MANY types of adenomas are actually Hurthle cells. The Hurthle cells for some strange reason seem to like popping in and out of thyroids in strange ways. This does not mean they are cancer!!!The label Hurthle's cells has been used too often in pathology and needs to be a conglomeration of over 75% of them to be truly labeled Hurthle cells.
I know it may sound weird but the word Hurthle seems to be stuck to many irregularities of cells in the thyroid. I have been researching this for 2 years now.
You will NOT automatically gain weight on synthroid. This is an old wive's tale. You WILL gain weight however if you fail to keep to a good diet and excersise! If your dose is too low then perhaps you may find yourself slowing down and this can cause weight gain.
Yes it is true that many doctors can't or won't give T3 medication. BUT as Stella says above, you are jumping the gun on this one. For some people being on T4 only is fine, for others (like myself) this is not optimal. You can not know this till it happens! Pre-empting it is only going to cause you more worry. Best is to talk to the doctor about this concern and see what they say. Then you are forearmed as to what to do IF your T4 meds only don't work for you. Having said that. You won't know any of the symptoms of not having T3 for many months after surgery!
Personally I would opt to have the one surgery. IN my case they waited for 5 months and I had a second surgery to remove the true Hurthle cells in my right side. I believe it would have been much less traumatic on my body to have had it out earlier when the left side was done.
I went through the whole,what if it is cancer thing too. I went through all you are going through as well. BUT I didn't have the support of this group at that time. I also was not aware of many things which I now am educated. Learn about your disease. Ask the doctors a million questions. It is only with that knowledge before you go through surgery will you be able to cope with this whole issue.
Many patients with thyroid disorders do have other health issues, but the point is not to dwell on them as being negative, but rather accept the fact you will be able to deal with them as they arise, which hopefully won't be often!
Good luck!
Here is what i could find for you that i hope will make you at ease and a bit less stressed.
From hppt://emedicine.medscape.com/article/851968
"Hurthle cells can be found in a variety of benign tyroid conditions, such as Hashimoto thyroiditis, Graves disease and multinodular goiter. Benign neoplasms, called Hurthle cell adenomas that contain more than 75% Hurthle cells can also occur.
Hurthle cell carcinomas account for 2-3% of all thyroid malignancies. They occur more commonly in women than in men and typically manifest in the fifth decade of life. The clinical presentation is similar to that of other tyroid malignancies"
Thyroid cancer is rare and treatable - treatment normally inlude thyroidectomy - thyroid replacement T4 or T3 depending on what you need. Radioactive iodine treatment, ect.
Please be aware im not a Dr and what i know is from my own research - i've had Hashimoto's disease for the last 3 years - been on thyroid meds and would not say i gained weight on it rather lost a little being on the right dosage and right treatment - i am about 5kg overweight but had a baby 8 months ago so it does not bother me right now. I was 29 when i started using long life medication and i don't see it as it ruiend my life rather that at least know i don't know im mad or post natal depressed ect all the other things i was thinking but there is a reason. Yes having a thyroid disease has it's up and down days - currently ive been diagnosed with a semi solid cyst - had radioactive iodine scan, ultrasound, biopsy - and probably due for another one as they don't have clear answers.
It is stressful not knowing the future and what will happen next - and at this stage i will be very happy if they just remove everything. Im already on life long meds its not going to change much for me except dosage.
I wish you all the best and hope that all your results turn out positive. Try and post your question to one of the Dr's - i don't know how fast the tumors will grow or if anyone really knows - i presume it will be different with each person.
Goodluck
From hppt://emedicine.medscape.com/article/851968
"Hurthle cells can be found in a variety of benign tyroid conditions, such as Hashimoto thyroiditis, Graves disease and multinodular goiter. Benign neoplasms, called Hurthle cell adenomas that contain more than 75% Hurthle cells can also occur.
Hurthle cell carcinomas account for 2-3% of all thyroid malignancies. They occur more commonly in women than in men and typically manifest in the fifth decade of life. The clinical presentation is similar to that of other tyroid malignancies"
Thyroid cancer is rare and treatable - treatment normally inlude thyroidectomy - thyroid replacement T4 or T3 depending on what you need. Radioactive iodine treatment, ect.
Please be aware im not a Dr and what i know is from my own research - i've had Hashimoto's disease for the last 3 years - been on thyroid meds and would not say i gained weight on it rather lost a little being on the right dosage and right treatment - i am about 5kg overweight but had a baby 8 months ago so it does not bother me right now. I was 29 when i started using long life medication and i don't see it as it ruiend my life rather that at least know i don't know im mad or post natal depressed ect all the other things i was thinking but there is a reason. Yes having a thyroid disease has it's up and down days - currently ive been diagnosed with a semi solid cyst - had radioactive iodine scan, ultrasound, biopsy - and probably due for another one as they don't have clear answers.
It is stressful not knowing the future and what will happen next - and at this stage i will be very happy if they just remove everything. Im already on life long meds its not going to change much for me except dosage.
I wish you all the best and hope that all your results turn out positive. Try and post your question to one of the Dr's - i don't know how fast the tumors will grow or if anyone really knows - i presume it will be different with each person.
Goodluck
How I lost my thyroid is not the same way as what's going on with you, but I have no thyroid either and for the most part I am doing OK.
I think with the situation as you are facing your thinking way too far ahead. Your worried about balancing out on meds and your thinking your life is already doomed.
Thyroid disease can be hard to balance out after surgery or RAI - no one will lie to you on that. But there is hope - you can overcome living without the thyroid and you will be OK.
Not everyone gains weight either. It is a common issues - but it isn't 100% that you will.
Your situation with the recommended surgery is what you really should be thinking about. My opinion is instead of going for 2 surgeries - you might as well push to take the whole gland out right now. You've got alot of things going on from what you are saying and I think taking it all out would be better than removing one side and then going back in and removing the other.
Many of your things - like pre - diabetes and acid reflux could get better once the illness is under control. It did for me.
I think with the situation as you are facing your thinking way too far ahead. Your worried about balancing out on meds and your thinking your life is already doomed.
Thyroid disease can be hard to balance out after surgery or RAI - no one will lie to you on that. But there is hope - you can overcome living without the thyroid and you will be OK.
Not everyone gains weight either. It is a common issues - but it isn't 100% that you will.
Your situation with the recommended surgery is what you really should be thinking about. My opinion is instead of going for 2 surgeries - you might as well push to take the whole gland out right now. You've got alot of things going on from what you are saying and I think taking it all out would be better than removing one side and then going back in and removing the other.
Many of your things - like pre - diabetes and acid reflux could get better once the illness is under control. It did for me.
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