help

[thyroidiniowa]

is there anyone here who just cannot take the synthroid, and crashed on even a small amount of it, Im at such a loss as to what to .  I dont feel good, i have a pretty large goiter, and feel much worse when i take the thyroid hormone, would i be able to take the hormone if i had the thyroid out or anything like that

[thyroidiniowa]

well they sent some synthroid, now the question is, should i take it and feel like **** again, or feel lousy but not have the crazy side effects, what do i do

[hope4thegoodstuff]

I take protonix.  It's a stomach med....I take it an hour after my synthroid.  I haven't noticed that it causes me a problem.  
Goolarra is right.  Sometimes we have to remember that we are paying the dr's.  They are working for us.  We have a right to demand that they help us or we can basically fire them from being our dr.  We have to be our own advocates.  

Me and my first doc were starting to get nose to nose, but he changed groups and was no longer covered by my insurance.  The next dr I went to didn't inform me that she also was moving on to a new place, so I went to her three times and she was gone.  It was one of her co-workers that offered to take me on.  By that time I was fed up and I actually told that dr..."thyroid?  I didn't come here to talk about that...I have a UTI.  I won't ever talk to a dr about my thyroid ever again."  Then I basically told him where all dr's could put synthroid.  I'm sure I made a very good impression.  NOT.  Then he told me that he thought I had been somewhat misdiagnosed.  He thought I had hashi's instead of pure hypo.  As it turned out, I'm lucky to get the dr I got when I got him.  He made me understand the importance of keeping on top of my thyroid issues.  

[goolarra]

I don't know anything about acacia...try googling "acacia + side effects".

There aren't too many alternatives when it comes to thyroid meds...T4 only drugs (levo), T4 and T3 combinations, T3 only (rare) and Armour thyroid.  Aside from brand names, that's about the upshot of it.  But, you WILL find a way to do it.

I haven't heard of levo having interaction with xanax, but you can google either "levothyroxine + drug interactions" or "xanax + drug interactions" to find out.

I think I've given you all the suggestions I can think of to get your doctor to listen...sometimes you just have to look at her and say, "NO, you're not listening to me." or "NO, I've already tried that and it doesn't work for me".  Be forceful.

[hope4thegoodstuff]

One more thing.  If you can't get your dr to listen...check out this site.
http://www.thyroid-info.com/topdrs/iowa.htm
people write in to this place and talk about dr's that have helped them the most with their thyroid problem.  I don't know where you're at, but maybe there will be someone close by.

[hope4thegoodstuff]

I didn't mean to leave you hanging there.  I don't like to talk about the C word.  I had a nodule on my thyroid that became cancerous.  That is why I had to have my thyroid taken out.  I didn't want to worry you, because not everyone has nodules like mine.  I'm told that it doesn't really happen all that often with nodules and sometimes the folks you read about out here are worse case scenarios.  So don't borrow any trouble and worry about things like that unless the dr's say otherwise.  So I have Hashi's and my thyroid was actually creating some hormone, then the nodule itself may have created some hormone, then I was taking synthroid and that was like a triple play going on in there.  I was also having difficulty getting my dr to understand that I was having trouble with the synthroid, but as dr's sometimes do...he only saw that my tsh was high and he kept telling me that I had to take the meds.  He would only look at TSH...didn't even want to try to check the free t3 and 4.  It took me three dr's to find one that would listen to me and about 6 months.  Third dr immediately offered to try a different med.  Yippee.  But then of course he wanted some other tests and that's when we found out that I had to deal with a bit more.  He contacted the endo doc for me in Des Moines.  

I'd have to agree that if you can keep your thyroid...I'd keep it.  It may take some time to get to the right med and the right dosage....Make sure they check your free t3 and free t4 when you get your checks as my endocrinologist advised she would not have put me on meds at all with just my tsh to go by.  It was mildly high, but not overwhelmingly.  If I would have felt better off the meds then on, then she would have left me off and just kept monitoring me as it was obvious that I was heading for hypothyroidism.  

[thyroidiniowa]

what does acacia do, does it cause severe side effects, is there anything else i can use for leverage to get this endo to listen to me, its like ok, this is what you take, and you can vary the dose, but there is nothing but levo,
also haev you heard of anyone having side effects because they take xanax, and synthroid