Aa
total thyroidectomy
I am just curious why some folks suffer daily even with perfect labs, while others have totals and never felt better in their lives? My friend who i have coffee with at the local starbucks every morning tells me today he had a TT 3 months ago because they found out his calcium level was messed up, dug further and found out he had thyca. Then he has his TT and hes back to work 3 days later. Feel fabulous. says "i get dry mouth sometimes".
"dry mouth"??? thats it?
Then there are others such as me, coldthyroid, danielle etc who have good labs but have these crazy a$$ symptoms that never go away. I swore in 2010 that in 2011 I would have one Dr. bill and that would be for my yearly physical. Now its 2013 and I feel just as crappy as i did back in 2010 when all of this started. Nothing else is bad on my blood work. How is this possible?
"dry mouth"??? thats it?
Then there are others such as me, coldthyroid, danielle etc who have good labs but have these crazy a$$ symptoms that never go away. I swore in 2010 that in 2011 I would have one Dr. bill and that would be for my yearly physical. Now its 2013 and I feel just as crappy as i did back in 2010 when all of this started. Nothing else is bad on my blood work. How is this possible?
I do appreciate your help, but comments like the last one are certainly uncalled for.
If growing up and acting like an educated adult means to knock people down for trying to get to the bottom of comments, then it looks like I will be a 3 year old for the rest of my life.
If growing up and acting like an educated adult means to knock people down for trying to get to the bottom of comments, then it looks like I will be a 3 year old for the rest of my life.
Even though you have not addressed this last comment to me, it appears as such that you intended to. I am not playing games with you.
Remember, advice hear is free. Your complaining on a free forum. People only get to complain if they pay for a service.
On the other hand you have had more help than anyone I know here. We can not take you by the hand every step of the way, especially when we dont know exactly what is going on with you health wise. I suspect its not just a thyroid problem. Like I said earlier, I saw a product at Wal Mart for ear ringing in the vitamin Isle. You did not acknowledge this.
Sometimes we have to goggle new things ourselves to figure out how to fix ourselves. Goggling is a learning experience, if you choose to make it one. We all have to do our own homework.
You have asked me any times if you should change med or dose, how many time you went forward with that I would not have known. And you have repeatedly asked some of the same questions for years, ignoring my answers. So why would I go out of the way with all the details, If I suspect you will just ignore them again.
For the record, I made logical choices in my med changes.
Years T4 did not work for me at all. So I learned what Drs could not tell me. I discovered original Armour did work, then I was forced to change and try 5 different brands of dessicated meds from 2009- 2011 due to two manufactures ending production permanently (thanks FDA), and two current brands that became unavailable in this region, which is how I ended up on Canadas Erfa.
Please grow up and act like an educated adult.
Remember, advice hear is free. Your complaining on a free forum. People only get to complain if they pay for a service.
On the other hand you have had more help than anyone I know here. We can not take you by the hand every step of the way, especially when we dont know exactly what is going on with you health wise. I suspect its not just a thyroid problem. Like I said earlier, I saw a product at Wal Mart for ear ringing in the vitamin Isle. You did not acknowledge this.
Sometimes we have to goggle new things ourselves to figure out how to fix ourselves. Goggling is a learning experience, if you choose to make it one. We all have to do our own homework.
You have asked me any times if you should change med or dose, how many time you went forward with that I would not have known. And you have repeatedly asked some of the same questions for years, ignoring my answers. So why would I go out of the way with all the details, If I suspect you will just ignore them again.
For the record, I made logical choices in my med changes.
Years T4 did not work for me at all. So I learned what Drs could not tell me. I discovered original Armour did work, then I was forced to change and try 5 different brands of dessicated meds from 2009- 2011 due to two manufactures ending production permanently (thanks FDA), and two current brands that became unavailable in this region, which is how I ended up on Canadas Erfa.
Please grow up and act like an educated adult.
that was merely an example. I meet all people all the time that need my help. I dont tell them to look it up themselves. i tell them what they need to know, what i can do to help. How to find doctors, what has worked for me, what hasnt worked for me. Life is too short to play these games. People help me, im going to help people. If someone has an idea to help me please by all means please tell me.
This is considered very helpful to me:
"I agree that you might look into vitamin/mineral deficiencies, etc. For instance, while tinnitus is typically not curable, zinc deficiency has been linked to it and may provide some relief. "
on the other hand this does not do anything for me
"
Yet, there is a history of myself and others repeating myself with you. Sometime I think you might not completely read peoples replies. You have been repeating this same cycle for years of asking people questions and then asking if you should change med again. Its obvious to others, you have changed med enough times, don't do it again any time soon. "
agreed!
Im going on a year now with Z E R O changes. In fact you yourself have made more changes than i have. SO have others. The only change i have made is dosing up, and down (1 time) based on my labs. Other than that, i have been on the same meds since feb 2012.
This is considered very helpful to me:
"I agree that you might look into vitamin/mineral deficiencies, etc. For instance, while tinnitus is typically not curable, zinc deficiency has been linked to it and may provide some relief. "
on the other hand this does not do anything for me
"
Yet, there is a history of myself and others repeating myself with you. Sometime I think you might not completely read peoples replies. You have been repeating this same cycle for years of asking people questions and then asking if you should change med again. Its obvious to others, you have changed med enough times, don't do it again any time soon. "
agreed!
Im going on a year now with Z E R O changes. In fact you yourself have made more changes than i have. SO have others. The only change i have made is dosing up, and down (1 time) based on my labs. Other than that, i have been on the same meds since feb 2012.
COMMUNITY LEADER
"Would it not of been easier of them to just tell me what they took, and where they got it?" Sometimes we learn more, by doing the research ourselves. 2 people can read the same information and come away with 2 different interpretations.
Was the HCZ working for you, other than the weight gain?
I don't think I've seen any of your latest labs.
I agree that you might look into vitamin/mineral deficiencies, etc. For instance, while tinnitus is typically not curable, zinc deficiency has been linked to it and may provide some relief.
Was the HCZ working for you, other than the weight gain?
I don't think I've seen any of your latest labs.
I agree that you might look into vitamin/mineral deficiencies, etc. For instance, while tinnitus is typically not curable, zinc deficiency has been linked to it and may provide some relief.
instead of :
You have tried every thyroid med in the book. Its time to try and investigate other things ....some, I have mentioned.
maybe try:
You have tried every thyroid med in the book. Its time to try and investigate other things ....some, I have mentioned such as adrenal support. For me I took XYZ and it worked great. I was on some HCZ for a while but then i started to gain weight so i got off of it. So I started taking Dr. smiths adrenal support and saw some great positive changes from trying that.
You know it took me almost 4 weeks of investigaing "adrenal support" after someone mentioned it on here? Would it not of been easier of them to just tell me what they took, and where they got it?
You have tried every thyroid med in the book. Its time to try and investigate other things ....some, I have mentioned.
maybe try:
You have tried every thyroid med in the book. Its time to try and investigate other things ....some, I have mentioned such as adrenal support. For me I took XYZ and it worked great. I was on some HCZ for a while but then i started to gain weight so i got off of it. So I started taking Dr. smiths adrenal support and saw some great positive changes from trying that.
You know it took me almost 4 weeks of investigaing "adrenal support" after someone mentioned it on here? Would it not of been easier of them to just tell me what they took, and where they got it?
cryptic? not really.
I say it like it is, I'm not so hard to understand.
Yet, there is a history of myself and others repeating myself with you. Sometime I think you might not completely read peoples replies. You have been repeating this same cycle for years of asking people questions and then asking if you should change med again. Its obvious to others, you have changed med enough times, don't do it again any time soon.
You can try many other things to improve your symptoms as i already mentioned without changing thyroid med.
I say it like it is, I'm not so hard to understand.
Yet, there is a history of myself and others repeating myself with you. Sometime I think you might not completely read peoples replies. You have been repeating this same cycle for years of asking people questions and then asking if you should change med again. Its obvious to others, you have changed med enough times, don't do it again any time soon.
You can try many other things to improve your symptoms as i already mentioned without changing thyroid med.
You have somewhat ignored my advice above about its time to try other things going on and , once again, changed the question" to should you make another change in thyroid med".
You have tried every thyroid med in the book. Its time to try and investigate other things ....some, I have mentioned.
Re-read the last sentence in my last comment.
You have tried every thyroid med in the book. Its time to try and investigate other things ....some, I have mentioned.
Re-read the last sentence in my last comment.
In your opinion should I stay on this compound or make a switch to syn- kryptonite?
Per your lab s you pm'd. Surprisingly your FT3 looks pretty good for some one whose thyroid came under the knife. Somehow you convert pretty good.
My labs looked decent years ago on T4 med, but I still feel better on T3/T4 combo dessicated. You on the other hand, had reactions to taking T3, I wouldnt go back to that.
There comes a point in time when you have to look at the whole body like the examples I gave above. If I was only Erfa thy med (which works best for me) and didnt pay attention to other things or experiment with supplements, I would not feel as good as i do today. Its not that simple for some of us.
My labs looked decent years ago on T4 med, but I still feel better on T3/T4 combo dessicated. You on the other hand, had reactions to taking T3, I wouldnt go back to that.
There comes a point in time when you have to look at the whole body like the examples I gave above. If I was only Erfa thy med (which works best for me) and didnt pay attention to other things or experiment with supplements, I would not feel as good as i do today. Its not that simple for some of us.
Albert Einstein once said "im glad no one was here to help me, so i could figure it out all on my own". I sort of know what he was referring to.
"Simple question, have you ever felt hyper while labs also said so? "
I think when i got to 345 mcg t4, and my labs were near the toppest of ranges, i did feel hyper. Thats why i called my doc on a saturday and she dropped me to 330 mcg. thats where i am now. I think i am going to stay on the 330 for 5 weeks, but she told me to come in at 3. I think coming in at 3 weeks is what got me in trouble and caused me to go hyper. If i would of waited til 5 weeks, she would probably of told me i was hyper and decreased me.
The reason im on slow release t4 is accidental. I was very sensitive to synthroid and naturethroid. SO my doctor gave me a t4/t3 combo which was slow release because of the t3. I never felt more worse and i knew it was from the t3. So she took out the t3 but forgot to take the words "slow release:" off my prescription. So i increased, and increased and increased all this time not realizing i was on slow release. well i knew i was on slow release but didnt know that I probably shouldnt be on slow release t4.
So now im on 330 mcg t4 SR. I dont feel any better, my labs are pretty decent. Im wondering if because im feeling the effects of the hormone 24 hours a day instead of having it enter my system all at once. ALso i dont fully trust the compound. I dunno. The pharmacist said im on the second biggest dose hes ever given out. The most being 350 mcg.
Its weird, i still feel hypo. My labs show good, but maybe they havent been good enough. Maybe They need to be good and hold good for a couple months or something.
Remember i used to jump all over the place and everyone would yell at me? well ive been a good boy, the only changing i have been doing is at 4.5 to 5 weeks and its just been increasing. And in my opinion, there is no reason for me to take t3, because my t3 looks good. Right?
"Simple question, have you ever felt hyper while labs also said so? "
I think when i got to 345 mcg t4, and my labs were near the toppest of ranges, i did feel hyper. Thats why i called my doc on a saturday and she dropped me to 330 mcg. thats where i am now. I think i am going to stay on the 330 for 5 weeks, but she told me to come in at 3. I think coming in at 3 weeks is what got me in trouble and caused me to go hyper. If i would of waited til 5 weeks, she would probably of told me i was hyper and decreased me.
The reason im on slow release t4 is accidental. I was very sensitive to synthroid and naturethroid. SO my doctor gave me a t4/t3 combo which was slow release because of the t3. I never felt more worse and i knew it was from the t3. So she took out the t3 but forgot to take the words "slow release:" off my prescription. So i increased, and increased and increased all this time not realizing i was on slow release. well i knew i was on slow release but didnt know that I probably shouldnt be on slow release t4.
So now im on 330 mcg t4 SR. I dont feel any better, my labs are pretty decent. Im wondering if because im feeling the effects of the hormone 24 hours a day instead of having it enter my system all at once. ALso i dont fully trust the compound. I dunno. The pharmacist said im on the second biggest dose hes ever given out. The most being 350 mcg.
Its weird, i still feel hypo. My labs show good, but maybe they havent been good enough. Maybe They need to be good and hold good for a couple months or something.
Remember i used to jump all over the place and everyone would yell at me? well ive been a good boy, the only changing i have been doing is at 4.5 to 5 weeks and its just been increasing. And in my opinion, there is no reason for me to take t3, because my t3 looks good. Right?
Some out of order brain storming:
Compounded slow release t4? I dont know. You tried others, how does it compare to those?
Simple question, have you ever felt hyper while labs also said so?
We all need to make sure our thyroid med is working, and then treat remaining symptoms holistically or whatever works. Not all symptoms are thyroid, but they are related in those of us that had autoimmune thyroid. Some will say baloney, well , they probably are not here, or are just lucky and don't realize it.
When I go off on autoimmune and muscles issues here , I will admit I AM the muscle pain geek among us. And I realize some people are thinking this guy is nuts with all this pain and thyroid talk, well, they just didnt have the pain. On the flip side, I was never overweight with Hashimoto for maybe 30 years, never. That makes me lucky.. Some people will say thats impossible. Our symptoms are that different.
Did you try different elimination diets (with out us getting into detail here).
I truly feel a little better from eliminating lactose 2 years ago. Will I tell the world they all need to do this? No. Do I believe lactose affected my thyroid ? No. It did not change my thyroid dose or antibody levels. Did it relieve some symptoms that were very similar to hypo thyroid? Yes, but see the sentence before this.
I tried gluten free, without success. But I do eat less gluten because I have proven that when I get digestive Candida (its a generic term for many overgrowths), gluten, with sugar and carbs will make it candida stay around and my supplemental arsenal against it will not be as effective. It has some very similar symptoms as low thyroid, most people do not know this fact.
You really need to make a checklist of everything you've heard about with similar thyroid symptoms and think about what you've done for it. Been here long enough, so you've seen everything by now. We are all proof that thyroid and similar symptoms are different for all of us.
I seen a new product at wall-mart (the long vitamin isle) for ear ringing, but didn't read it, since I don't have it anymore.
Stress: it effects adrenals, has its own symptoms and in turn effects the thyroid. Crave salt? Does a stressful event disturb sleeping for days after you mentally accepted or got over the event? - Adrenals. Many of us live with more stress than we used to (thanks economy). Do what ever you can to help your adrenals.
Even these alternative chiros that charge $3000 to $7500 for a thyroid program, do all of this stuff, and still don't know the initial starting cause after you listen to all their talk. You can do much on your own. Some odd tests MDs wont do, if you want go to a chiro just for the specific ones, like saliva adrenal is a good start.
Thinking about your past is a good place to start. Thats how I put my puzzle together. I'm not symptom free, but way better. And no Dr put a foot forward and said "lets get to the bottom of your symptoms". I paid them to do what I asked them to try. Some laughed in the process, refused my ideas, weren't successful with their ideas and don't deserve to be in health care. But I feel better now, sc#w them.
Compounded slow release t4? I dont know. You tried others, how does it compare to those?
Simple question, have you ever felt hyper while labs also said so?
We all need to make sure our thyroid med is working, and then treat remaining symptoms holistically or whatever works. Not all symptoms are thyroid, but they are related in those of us that had autoimmune thyroid. Some will say baloney, well , they probably are not here, or are just lucky and don't realize it.
When I go off on autoimmune and muscles issues here , I will admit I AM the muscle pain geek among us. And I realize some people are thinking this guy is nuts with all this pain and thyroid talk, well, they just didnt have the pain. On the flip side, I was never overweight with Hashimoto for maybe 30 years, never. That makes me lucky.. Some people will say thats impossible. Our symptoms are that different.
Did you try different elimination diets (with out us getting into detail here).
I truly feel a little better from eliminating lactose 2 years ago. Will I tell the world they all need to do this? No. Do I believe lactose affected my thyroid ? No. It did not change my thyroid dose or antibody levels. Did it relieve some symptoms that were very similar to hypo thyroid? Yes, but see the sentence before this.
I tried gluten free, without success. But I do eat less gluten because I have proven that when I get digestive Candida (its a generic term for many overgrowths), gluten, with sugar and carbs will make it candida stay around and my supplemental arsenal against it will not be as effective. It has some very similar symptoms as low thyroid, most people do not know this fact.
You really need to make a checklist of everything you've heard about with similar thyroid symptoms and think about what you've done for it. Been here long enough, so you've seen everything by now. We are all proof that thyroid and similar symptoms are different for all of us.
I seen a new product at wall-mart (the long vitamin isle) for ear ringing, but didn't read it, since I don't have it anymore.
Stress: it effects adrenals, has its own symptoms and in turn effects the thyroid. Crave salt? Does a stressful event disturb sleeping for days after you mentally accepted or got over the event? - Adrenals. Many of us live with more stress than we used to (thanks economy). Do what ever you can to help your adrenals.
Even these alternative chiros that charge $3000 to $7500 for a thyroid program, do all of this stuff, and still don't know the initial starting cause after you listen to all their talk. You can do much on your own. Some odd tests MDs wont do, if you want go to a chiro just for the specific ones, like saliva adrenal is a good start.
Thinking about your past is a good place to start. Thats how I put my puzzle together. I'm not symptom free, but way better. And no Dr put a foot forward and said "lets get to the bottom of your symptoms". I paid them to do what I asked them to try. Some laughed in the process, refused my ideas, weren't successful with their ideas and don't deserve to be in health care. But I feel better now, sc#w them.
Moose-
do you think im doing myself a dis-service by taking a compounded slow release t4?
I feel like im hypo but my blood work says im hyper. All i know is i feel like crap. My ears are blaring, its 70 degrees in my house and im wearing a winter jacket, and i was trying to put my 3 year olds toy together about 30 mins ago and it was too confusing for me. I have a bachelors degree and run a million dollar travel agency so im not un educated, im just thryoid dumb.
do you think im doing myself a dis-service by taking a compounded slow release t4?
I feel like im hypo but my blood work says im hyper. All i know is i feel like crap. My ears are blaring, its 70 degrees in my house and im wearing a winter jacket, and i was trying to put my 3 year olds toy together about 30 mins ago and it was too confusing for me. I have a bachelors degree and run a million dollar travel agency so im not un educated, im just thryoid dumb.
About "perfect labs".
As far as hormones and vitamins go, perfect labs would represent optimal availability of questionable hormone or vitamin in the blood. This does not mean that the specific cell receptors are absorbing and using available hormone or vitamin in question, weather it be naturally from our own bodies or additional replacement / supplemental form. Testing for this is not fully there yet. The only good thing I can see about going hyper from too much thyroid hormone replacement is you know that your cells are indeed using the hormone. Reverse T3 test is one example that seems to take some mystery out of cells not using available hormone.
Thyroid hormone resistance as an example, has very limited knowledge in the medical world, I've only seen it mentioned here once or twice since 2009. Its thought that people D'xed with fibro, but have good thyroid labs might have some form of thyroid hormone resistance or maybe even some cell resistance towards another hormone.
As far as hormones and vitamins go, perfect labs would represent optimal availability of questionable hormone or vitamin in the blood. This does not mean that the specific cell receptors are absorbing and using available hormone or vitamin in question, weather it be naturally from our own bodies or additional replacement / supplemental form. Testing for this is not fully there yet. The only good thing I can see about going hyper from too much thyroid hormone replacement is you know that your cells are indeed using the hormone. Reverse T3 test is one example that seems to take some mystery out of cells not using available hormone.
Thyroid hormone resistance as an example, has very limited knowledge in the medical world, I've only seen it mentioned here once or twice since 2009. Its thought that people D'xed with fibro, but have good thyroid labs might have some form of thyroid hormone resistance or maybe even some cell resistance towards another hormone.
I am surprised your friend feels this good after having his thyroid removed with thyroid cancer, very lucky guy.
There is no one answer to your question. The human body is so complicated with different functions overlapping others and the fact that the body really needs to be looked at as a whole when there are difficult issues. Looking at the body as a whole is unlimited even though we have limitations in the lack of scientific knowledge on the body. Of course money and insurance plays a role in this as well.
Fact is people are not designed the same. Ranges of everything in the body are just averages of the population. We have chemicals everywhere, and limited knowledge on what many of them do to humans.
No one really knows for sure the true story of elevated antibodies of any disease. There are lots of theories, and there are most likely many reasons, not just one. Throw hormones in it too and the possibilities are huge.
I'm sure someday there will be a super computer "Dr" program that can hold all of the proven knowledge, its possible now to do this - a plug in version of the Dr in "House" LOL. But then there is all the unproven stuff that has some truth to it that needs review too..
The fact that our medical system is so narrowly minded in specialization makes diagnosing and treatment very challenging. Drs dont even know the stuff that is proven. Why is that? I really dont think a doctors job or expected knowledge is that difficult.
There is no one answer to your question. The human body is so complicated with different functions overlapping others and the fact that the body really needs to be looked at as a whole when there are difficult issues. Looking at the body as a whole is unlimited even though we have limitations in the lack of scientific knowledge on the body. Of course money and insurance plays a role in this as well.
Fact is people are not designed the same. Ranges of everything in the body are just averages of the population. We have chemicals everywhere, and limited knowledge on what many of them do to humans.
No one really knows for sure the true story of elevated antibodies of any disease. There are lots of theories, and there are most likely many reasons, not just one. Throw hormones in it too and the possibilities are huge.
I'm sure someday there will be a super computer "Dr" program that can hold all of the proven knowledge, its possible now to do this - a plug in version of the Dr in "House" LOL. But then there is all the unproven stuff that has some truth to it that needs review too..
The fact that our medical system is so narrowly minded in specialization makes diagnosing and treatment very challenging. Drs dont even know the stuff that is proven. Why is that? I really dont think a doctors job or expected knowledge is that difficult.
I am at the Southwest corner of the state, just northwest of Saint George
in Ivins. I have an appointment with an Orthpedic Surgeon on Monday.
But any help would be appreciated. How are you feeling, any better?
Best Regards FTB4
in Ivins. I have an appointment with an Orthpedic Surgeon on Monday.
But any help would be appreciated. How are you feeling, any better?
Best Regards FTB4
I forgot you were in utah... my friend is a forensic toxocologist there. I wonder if he knows anyone that can help you :)
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