hypo now hyper??with multinodular goiter

[beenewt3]

hello all !..i was diagnosed with multinodular goiter and thyroisis where my antibodies attack my thyroid..was hyperthyroid on synthyroid for 9 mths had blood work every 2wks and my tsh is very suppressed the dr took me off synthyroid because im hyperthyroid now..i still feel very tired and my muscles hurt ,blurry vision,brain fog,i felt better on synthyroid but my dr says dont take them..what should i do is this normal.will my thyroid go back to hypo again?because the surgeon said if it stays hyper he will take the nodules out....is it normal to have hypo symptoms when your hyper..thank you for any responce as i dont know too much about this ive been reading up a little on it but dont understand the switch and why its happening...thankyou once again....b.

[gimel]

Sorry if I'm repeating anything from above, but I am on the way out and haven't gone over the whole thread.  

Patients taking thyroid meds frequently find their TSH is suppressed.  this does not mean you are hyper unless you are also having hyper symptoms, due to excessive FT3 and FT4 levels.  

A good thyroid doctor will treat a patient clinically, by testing and adjusting Free T3 and Free T4 as necessary to relieve symptoms, without being constrained by resultant TSH levls.  Symptom relief should be all important, not just test results.  

I know the difficulty in getting clinical treatment in Canada.  It is basically the same in the UK.  I thought you might get some worthwhile info from this quote from one of our UK members.  "What I have learned from my experience is that you have to go to the Dr's office and TELL THEM WHAT YOU WANT and to go backed up with knowledge.  You have to tell them that you have done your reading and looked into your condition and care about the long-term treatment of your health and thyroid.  If you fight for what you want, you will eventually find someone that is happy to go along with your wishes.  But we all have to take charge of our own health, right?"

So, as a start, this is a link to a letter about clinical treatment.  It is written by a good thyroid doctor for patients that he consults with from a distance.  The letter is sent to the PCP of the patient to help guide treatment.

http://hormonerestoration.com/files/ThyroidPMD.pdf

[beenewt3]

hello again!..im not in the states..im in canada..in the country where drs are few and good specialists are very rare unless you drive 4hrs away...but im going to ask for my #s from my family dr...the endo just keeps saying dont worry about the #s ill look after them..also i take metoprolol tartrate for my heart i have disrythmia..and my heart goes soo fast without my pills...i also have restless leg syndrom the dr put me on meds for that too but they dont help..he also put me on sleeping pills ..i am not one for taking any pain meds i feel they are just a bandage that hides the true problems..i do things as naturaly as i can..as for the symtoms of hyper..i have gained weight ive always been tiny..110lbs..now im 130 i still feel tired most days and my muscles ache and feel weak..i havent been able to work at my job for 10mths now and i had to tell them i wont be coming back...im a positive thinker but this has frusterated me because just a year ago i was doing pretty good healthwise...im almost 50 now and feel like 90 somedays.right down to my eyesight.....again thankyou for being there and i will post my #s if and when the dr gives them to me..all i know is my last results where tsh very suppressed and t3 and t4s were.0n low side...and dr said im hyperthyroid now...i think they took me off synthyroid to see if my thyroid is going to go back to hypo??..once again thankyou..have an awesome day...b

[danie17075rm]

I was very very very hyper and symptomatic (heart raced all the time, heart palps, couldn't breathe, high bp, panic attacks etc).  In just never went back to being hypo.  I was severely ill.  I couldn't live my life.  My choices were RAI, surgery or antithyroid drugs.  I was going to attempt antithyroid drugs, but my goiter started choking me so bad.  The doc also told me for my thyroid, surgery was the best option as wit RAI it takes things in at different rates and it would have been a long process for me.  Taking antithyroid drugs I don't think would have worked for me any better than thyroid meds.  I fluctuated sometimes daily.  My tsh shot to high extremes from month to month before settling on hyper.  Hashi's usually gives you a short period of being hyper, but generally most people don't stay hyper like I did. I'm not sure I didn't also develop graves at the time.   Everyone is different though, and there is no indication this will happen to you.  You said you were on .75 mcg of thyroid so that leaves a LOT of room for decreasing.  Maybe your dose was just too high?  Also, did you have hyperthyroid symptoms?  I had them all of the time.

[goolarra]

If you're in the States, your doctor has to provide lab results upon request.  They're yours...you paid for them.

There are some people who believe that fibro is not a separate disease, but is actually hypothyroidism.  Interestingly, it's often treated with thyroid hormones...

What do you take for your heart?  Do you have a diagnosed heart condition?

I do have Hashi's and a multi-nodular goiter.  I don't go hyper any more...that's usually in the early stages of the disease.  I'm guesing that you weren't really hyper, either.  It sounds to me like your TSH was suppressed due to meds.  If youe weren't having hyper symptoms, then you probably weren't hyper.  Hyper symptoms can include weight loss, heast intolerance, diarrhea, annxiety, elevated HR or BP, insomnia, etc.

[beenewt3]

thankyou so much!!..so you went hyper too?..and they just removed all of your thyroid..hope your doing well from surgery!..did the dr tell you why he removed it all?..you said you were hypo at first did you feel differant when you went hyper?..or were you still feeling tired with sore muscles?.once agin thankyou for the info..and hope your doing good..hope your recovery is fast and you feel great again..thanks...b

[danie17075rm]

These other individuals will help you with everything that is going on.  I just wanted to tell you that it is possible to transition to hypo to hyper.  I was hypo for 3 years on meds, and went hyper.  I was taken off meds, and finally kept going hyper even on my own.  I had a large goiter  with no nodules, so I have no idea what kept me hyper for the better part of a year.  I just had my thyroid removed a few days ago though, because I was pretty much out of options.  I'm wondering why your doc didn't try decreasing your meds rather than just taking you off of them.  As the others said though, if you can get your numbers, the can really help out.  Everyone is different and the numbers in the "normal" range are not always what feels best for us.  Good Luck.