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hypothyroid and swollen, burning sensation in both ankles

a year ago I had my thyroid ablated. my blood numbers came back perfect for 4 months following ablation.I started to notice discomfort in both ankles, swelling and a sensation of burning. after 4 months I was put on synthroid. my weight gain has been constant, my eating habits are normal. due to pain in ankles it's hard for me to walk distance, or put any pressure on ankles, bending, walking,reaching etc.  No pain pill has helped, elevating does not help. I've been to every 'ologist' in the book, and not one of the doctors had a solution. I've taken a zillion blood tests, cardiac tests, vascular tests etc. all came out perfectly fine.  Everyone is flummoxed. I am still under the care of  my endocrinologist. I'm taking synthroid 150, and cytomel. recently I have been diagnosed with pernicious anemia, so I'm on B12(2000 a day) and Vit. D (2000 a day) My weight is off the charts, and my ankles are still swollen and burning. Is there anyone out there that has these symptoms? I'll keep the weight if I can just get rid of the pain in my ankles and lead a normal walking life.   HELP PLEASE  
Best Answer
Avatar universal
There are those who think that fibro is not a disease at all, but untreated hypo when people are in the lower ends of the ranges for FT3 and FT4.  

I'd say your doctor is being ultra-conservative.  With a range of 30-100 on D, you have a long way to go to be "toxic" with a result of 31.  A range on any test ought to be interpreted as the playing field within which the doctor can adjust meds/supplements, and he should be using the whole playing field.

I hope you have better luck with your rheumy on Monday.  

Vitamin D deficiency ofen goes hand-in-hand with hypo.  Maybe it's just that once hypo, vitamin D (among other things) has to be a little higher in the range than for healthier people.    
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Avatar universal
Turns out 3.5 was FT3  range is 2.3-4.2  under UNITS  pg/mL
TSH 0.015(L)    mIU/L    0.40-4.50
B12      972     239-931
Vit.D, 25            31        30-100
Ferritin          97       11-264
Free T4    1.47           0.78-2.19

That's the latest, so what do you think?



Helpful - 0
Avatar universal
Brilliance, brains and sense of humor...Bravo!
Didn't get through to dr. Will try again tomorrow.

Meanwhile burning continues, if you open your window you just might hear my scream!!!
Helpful - 0
Avatar universal
You might want to hold off on the bowling ball...that could cause it's own problems!  LOL  Talk about an intestinal obstruction...

Yes, Synthroid is T4.  And that's remained the same, so you could have labs whenever you want.
Helpful - 0
Avatar universal
By T4 meds, do you mean synthroid? I take 150mcg. Daily.  
Only other is cytomel, B12, D.
I'm not a pill popper, but at this point, I'd down a bowling ball IF it would take away my burning ankles!
Helpful - 0
Avatar universal
Your T4 meds weren't changed at all, correct?  If not, it might be a good idea to get labs sooner rather than later if your doctor is cooperative.  Cytomel acts pretty fast, so there's not a delay in levels rising like there is with T4, although there still is some "building".

That's all I can think of at the moment.  Once we know what your FT3 level is doing, there might be more suggestions, but until then, it's all just a guess.
Helpful - 0
Avatar universal
I've only increased cytomel since Thursday,  no change on scale or feelings, I remain hopeful.

Will also add iron/ferritin to my request list, anything else?
My next draw will be in a few weeks, would it be prudent to ask for it sooner?
Helpful - 0

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