Aa
**newbie, hello
Hi there-
I read your Thy-roidian posts and feel at home here, I hope you don't mind me saying so as a newbie. I wish I could be of some help to all of you since I know how much this sucks. Let me know, I am registered here now. I am hope I am not tooo long winded- I am 38/f/happilymarried/ 5'6 179lbs/ 1 super good teenage kid/homemaker/Hashimoto/anxiety since 1998.
Meds: 150mg synthroid, 20mg Celexa, heartburn pills, 1000mgs b12, and probably a handful of Tylenol by the end of ea day.
I am a homemaker not by choice. I gave up my career @ Disney in 1998 due to this illness, I could no longer keep the job going anymore. (ya, thats a burden on my self-esteem-the judgements people whisper have been hurtful) Without insurance, I have never received good care so the story drags into years. My TSH levels are finally normal now, but I have been very sick with new symptoms. I went to the Dr. yesterday and was put on weekly b12 shots for completely numbed out/tingly swollen, red,hands/arms/feet/legs, dizziness, weakness, body aches. She never checked my b12 level though- She said I had a deficiency 2 months ago from the last lab and says thyroid patients cannot absorb b12 like they are suppose to. Gee, thats a new deal for me.
I have a never ending itchy rash on my scalp lately. I get daily headaches, slow thought process, confusion, unorganized, forgetful, and lethargic. I have to sleep alot. I cannot drive highways (only local rds)due to panic attacks. Depression is always a struggle to manage, I am told it is because of my thyroid.
I also exhibit low blood sugar problems, I gotta eat a little frequently or else I will pass out. I have to give my husband sympathy sex to keep him happy, but I LOVE him deeply. It isn't him. I have no sensations like I used to, and no drive. I am lucky he loves me, he is very supportive.
Now for the good news. Since I have been strangely sick for so long, and now I am "scarier" sick, I need to apply for disibility AGAIN so that I can get some insurance to find out what the hell is a matter w/ me for once. Without insurance, I just politely float in and out of Dr. Offices with a band-aid. I tried applying for disibility twice already in 2000 & 2001 but was denied. They say thyroid was not justification enough. Ok well, that SHOULD be changed, but do I gotta actually die of something before they will believe me??
I am a self taught-artist now and have done some good work in my studio, I am just starting to sell my work. I am trying to do something around my illness by working at home when I am up to it. My husband works overseas 3 months on 2 off. He pays most of the bills around here including all my medical bills which are not cheap. I don't have many friends anymore because I feel alienated in many ways from normal career oriented people with this illness. I am also sensitive about people judging me without all the facts since it has happened a few times.I won't tell people all this because I am private. I almost have an associates degree (2 quarters away) but I can't go and finish now because I can't concentrate, remember knowledge, or focus on books anymore.
Sometimes I feel I have lost or am loosing but I know I have no choice but to just keep on trying and avoid whining (other than now). I always put on a front for my daughter. I know she worries, but I want her to keep doing well in school & going forward. My 30's have been lousy health wise. I know something else has been the matter w/ me as well as hypothyroid but I cannot seem to get a clear cut diagnosis. I have been to the shrink- she also agrees my anxiety/depression is thyroid related. I am getting worse. Thanks for the shoulder, any advice would be so appreciated, and keep your chins up, God seems to work it all out somehow-
Thanks from the newbie~
I read your Thy-roidian posts and feel at home here, I hope you don't mind me saying so as a newbie. I wish I could be of some help to all of you since I know how much this sucks. Let me know, I am registered here now. I am hope I am not tooo long winded- I am 38/f/happilymarried/ 5'6 179lbs/ 1 super good teenage kid/homemaker/Hashimoto/anxiety since 1998.
Meds: 150mg synthroid, 20mg Celexa, heartburn pills, 1000mgs b12, and probably a handful of Tylenol by the end of ea day.
I am a homemaker not by choice. I gave up my career @ Disney in 1998 due to this illness, I could no longer keep the job going anymore. (ya, thats a burden on my self-esteem-the judgements people whisper have been hurtful) Without insurance, I have never received good care so the story drags into years. My TSH levels are finally normal now, but I have been very sick with new symptoms. I went to the Dr. yesterday and was put on weekly b12 shots for completely numbed out/tingly swollen, red,hands/arms/feet/legs, dizziness, weakness, body aches. She never checked my b12 level though- She said I had a deficiency 2 months ago from the last lab and says thyroid patients cannot absorb b12 like they are suppose to. Gee, thats a new deal for me.
I have a never ending itchy rash on my scalp lately. I get daily headaches, slow thought process, confusion, unorganized, forgetful, and lethargic. I have to sleep alot. I cannot drive highways (only local rds)due to panic attacks. Depression is always a struggle to manage, I am told it is because of my thyroid.
I also exhibit low blood sugar problems, I gotta eat a little frequently or else I will pass out. I have to give my husband sympathy sex to keep him happy, but I LOVE him deeply. It isn't him. I have no sensations like I used to, and no drive. I am lucky he loves me, he is very supportive.
Now for the good news. Since I have been strangely sick for so long, and now I am "scarier" sick, I need to apply for disibility AGAIN so that I can get some insurance to find out what the hell is a matter w/ me for once. Without insurance, I just politely float in and out of Dr. Offices with a band-aid. I tried applying for disibility twice already in 2000 & 2001 but was denied. They say thyroid was not justification enough. Ok well, that SHOULD be changed, but do I gotta actually die of something before they will believe me??
I am a self taught-artist now and have done some good work in my studio, I am just starting to sell my work. I am trying to do something around my illness by working at home when I am up to it. My husband works overseas 3 months on 2 off. He pays most of the bills around here including all my medical bills which are not cheap. I don't have many friends anymore because I feel alienated in many ways from normal career oriented people with this illness. I am also sensitive about people judging me without all the facts since it has happened a few times.I won't tell people all this because I am private. I almost have an associates degree (2 quarters away) but I can't go and finish now because I can't concentrate, remember knowledge, or focus on books anymore.
Sometimes I feel I have lost or am loosing but I know I have no choice but to just keep on trying and avoid whining (other than now). I always put on a front for my daughter. I know she worries, but I want her to keep doing well in school & going forward. My 30's have been lousy health wise. I know something else has been the matter w/ me as well as hypothyroid but I cannot seem to get a clear cut diagnosis. I have been to the shrink- she also agrees my anxiety/depression is thyroid related. I am getting worse. Thanks for the shoulder, any advice would be so appreciated, and keep your chins up, God seems to work it all out somehow-
Thanks from the newbie~
You should request a cortisone testing be done, it was my adrenal you know. Docs dont usually run that test and I have read where people are being treated for thyroid and end up with adrenal problems or it could had been the adrenal in the beginning. I just came accross another forum that relates to me and prolly some of you in the neurolgy forums, they are all thinking Lyme disease there, and a simple blood test can come back begative but you could have it, spinal tap is a better test i guess but some of them demanded to be put on the med for it and i know one of them said she felt better after being treated for it even though her test was neg., makes me wonder now. I guess thats something i am going to let out about tues. I have mentioned lyme disease several times around here.
I have low blood pressure too I think it was something like 92 over 64 .What do you think that is all about? do you think that has something to do with fluctuating thyroid hormones?
LJ39 Leanne
LJ39 Leanne
He acted as if it was but I have these docs that just keep looking at all the same test i had done while i was in the hospital, they all go mmmmh mmmmh, then the neurol. will take a paperclip down my legs and ask if i feel it and thats all. You sound like me with them symptoms, i take xanax like a 1/2 of a .05 3 or 3 times a day, yes it takes are mind off it but it sure isnt heeling it. I decided today I need to start working out, riding a bike and find some kind of hobby maybe it will help who knows, i did just get done riding a bike and dang it wore me out! Went to the store to find some kind of hobby and found nothing i wanted to do, thats not me at all! In the beginning of my problems i had them burning sensations esp at night but those have gone, i was diagnosed with adrenal insuff. which i been reading it can be caused by hypo or being treated for hypo before the adrenal problem was realized, i went to the ER 7 times with major problems before that part was found out, dunno if you read my original story but i went through it all. Also I was under alot of stress when this all came on as well, we were selling our house getting a new one and got hit with ice storms in the middle of it all, my hubby got sent out to do storm work all at the same time, my mom keeps reminding me how much stress i was going through for a couple of months but i guess i just wasnt realizing i was really stressed, your adrenals control your stress level. My second trip to a ER that doc told me it looks like i have the million dollar disease, i was trembling all over like seazures at that time and he done nothing but gave me a script for a few ativan, all that time (5 months) I found it was my blood pressure dropping, the er just kept taking my BP lieing down, well it was ok lieing down but sitting and standing it was very low 70/40, by the time my adrenals were realized they were only a level 4. So anyway theres somemore about me. Today my hands have been very numb and that pain in the back of my head is just killing me, i feel like i have a brain tumor or something but I bind that right up in the name of JESUS! Nice hearing from you again, it is so great to find others like me I tell ya. I told my family they dont have to hear me anymore i found people on earth at my level,lol.
msfergy
msfergy
I have twitch in eye also,but I think it is from clonazapan anti anxiety drug.I am on very low dose but I think when it starts to wear off it can cause twitches .I get twitches all throughout body .usually when relaxed....very weird.I have weird feelings of pain in back of my neck and head also nerve tingling type pain burning. I guess you could say,It is hard to describe.If I do not take clonazapan my symptoms are much much worse.Did your neuro say he thought it was related to your thyroid or does he have any clue??
LJ39
LJ39
No breast implants, they ruled out MS on the MRI'S I had done. The Neuroligist does not say much to me at all except go back to Endo. Waiting till Tues to let it all out on the Internal Med doc. He never said if it would go away. The feelings in my neck and head worry me the most and the nerve feelings in my body that move all the time. My eye even has that twitch that wont go away. I been trying not to do anymore research because we tend to run into everything and that just stresses us more even though we would like to know.
msfergy
msfergy
neurologist put me on lyrica awhile ago but did not help too much.I think this drug is the same as neurontin.I just hate the idea of masking the problem with drugs.Did your Neurologist have ANY clue to what he thinks is causing your problems ??you mentioned he ruled out ms.how did he do that?? mri evoke potentials? did he say he thought these these symptoms would just go away over time??It still kind of worries me.I have heard that ms is a very hard thing to diagnose and it takes years sometimes even with negative test results.I do not have visual disturbances or motor issues just the sensory things,but I made the mistake of researching ms too much on internet and got myself all worked up even though my neurologist happens to be ms specialist and has said very unlikely,I still worry.I think when you have small children you just think about taking care of them and with a disabling disease like ms it would be very difficult.GOtta try to get it out of my head!!! silly questions but do you happen to have breast implants of any kind??
Leanne
Leanne
Ahhh nevermind I just reread your original post, I cant keep track of who was who here sometimes. So it has been 6 months for you, I am on 8 months now. :( Also the Neurologist put me on Meurotin for nerve pain, it seemed like it used to help but not lately.
Your Mom aounds great to....... My mouth doesn't tingle it just has like skin peeling in it with a white coated like tounge, strange I know but it seems my tounge has been sweeled ever since also. I have not had radiation therory, they are talking about removing the left lobe to test it before they go any further for now. KIP Leanne and also how old are you? I am 35
Msfergy
Msfergy
yes I have tingling in mouth and tongue and my nose even has same kind of sensations.roof of mouth etc...How have you been feeling lately??I just got back from camping with my parents and family and I must say trying to keep somewhat of a normal routine had helped me, and I am just trying my best not to think too much about the way I feel I am trying to detach myself a bit by keeping busy.It seems to help me (this week anyway).I think you and I really sound like we are in the same boat.I had the whole nodule goiter thing going on before I had rai therapy.I know there is a connection!!Hang in there.By the way I think it is so sweet your mother wrote in .My Mom is the same age your mom is and she is beside herself in pain,feeling helpless not knowing how to help .She has been there for me through this whole horrible experience by helping me so much with my kids ,and holding me when I am sobbing.We are so lucky to have Mom's that care for us so much.I really Love my mom too!!!
Leanne
LJ39
Leanne
LJ39
Yes Mommy you are right! And I do thank you for all your support to, without you I dunno where I would be. I love you......:)
I am glad my daughter (msfergy) has found others who suffer from her same symptoms as I know first hand the Hell she has been going through with all the Drs. & ER's in the middle of the night etc. as I am her #1 supporter & have only missed 2 times being with her when she went to ER...
This has totally drained me as well as her as you know a Mother feels every pain her child goes through... I am 64 & all this worrying don't do me justice either but she has needed me so much..
My daughter has 2 young girls to care for also (9 & 10) and its been so hard for her... And her husband has had alot of doubts but he should know she wasn't always that way all the years they have been together.... Someone needs to start a Foundation for this unknown illness that the Drs. can't seem to find a cure for.. We can spend Billions sending people to outer space but can't afford to find a cure for all the illnesses here on Earth.. We also need a Universal Health System for all here in the USA... Other country's have it.. "Good Luck to You All & May God Help All of You"
"msfergy's MOM"
This has totally drained me as well as her as you know a Mother feels every pain her child goes through... I am 64 & all this worrying don't do me justice either but she has needed me so much..
My daughter has 2 young girls to care for also (9 & 10) and its been so hard for her... And her husband has had alot of doubts but he should know she wasn't always that way all the years they have been together.... Someone needs to start a Foundation for this unknown illness that the Drs. can't seem to find a cure for.. We can spend Billions sending people to outer space but can't afford to find a cure for all the illnesses here on Earth.. We also need a Universal Health System for all here in the USA... Other country's have it.. "Good Luck to You All & May God Help All of You"
"msfergy's MOM"
Ok with everyone else here it does make me feel better to know I am not alone and not NUTS. Also do you all have problems in your mouth with everything else?
Everyone thinks that I am going nut's too don't worry you are not alone.My husband said he is going to commit me if I go too crazy,which I really do not appreciate.Especially when you know something is wrong with you,but you look totally normal from the outside My whole family think that I am losing it also.They just don't understand how I feel. I am going to talk to someone about pain management also. I had my mri done, they found a bulging disc in c5 c 6 but neuro said has nothing to do with neuropathies,but at same time does not know what it is ...lotta help that was.He just thinks very low risk of ms because of normal tests,and he said the only test left now is time!!!Great.!!! meantime 6 months of hell and still no diagnosis.Only Linc is THYROID.We are all in the same boat.Thanks for listening.
Leanne
LJ39
Leanne
LJ39
I have had so many test done, I am seeking a internal medicine doctor now to get to the bottom of all this as well, also i am going to a pain managment clinic on sept 6 to see if they can help me. I have dained my blood to the bottom and had MRI of everything, i do have some facet joint disease and disc denerative going on as well but them docs act like that shouldnt be my problem and keep mentioning my thyroid. Sometimes i wonder if i am going crazy, my hubby wanted to have me admitted to a phys ward but he actually read some of this on here and i think he realizes i am not the only one out there, Thank You ALL.......... But WTH is it our thyroid or what??????????
Hi there! just wondering what tests did your internal med doc do for you??I am thinking of going to get my G.P. to give me a referral to a internal med doc to get to the bottom of my medical problems. I have many of your symptoms also .Sorry about so many spelling mistakes in last post just came back from long road trip and hands not working properly.
Leanne
Leanne
I can relate to all of you I was treated with rai therapy 8 months ago for hyper thyroidism due to toxic nodule on my thyroid. For six months I have been suffering from terrible neuropathies nerve pain tingling burning numbness in bottom of feet sometimes pain in back of head and neck.specialist's say no relationship between thyroid and symptoms but all other test's mri blood work and almost every othet test imaginable reveal nothing all normal!!! now my blood levels are normal but still feel horrible,on armour thyroid replacement my GP and I are working together,since endo doc's would not put me on any thyroid med's,not even for a trial said my levels were normal!! so It could no possibly be related to thyroid .So I took matters into my own hands and insisted My GP is really great.been on therapy for 2 months and neuropathies still persist despite normal blood levels.
I will get to the bottom of this eventually...I need to for my family.
for anyone who has not read my post i posted on the 16 th ( I think) and title is please cna someone help suffering from neuropathies .I really feel better hearing all of your stories,at least I know I am not alone, and crazy.Thank's girls.
Here anytime to talk
LJ39 ( Leanne )
I will get to the bottom of this eventually...I need to for my family.
for anyone who has not read my post i posted on the 16 th ( I think) and title is please cna someone help suffering from neuropathies .I really feel better hearing all of your stories,at least I know I am not alone, and crazy.Thank's girls.
Here anytime to talk
LJ39 ( Leanne )
Adrenal Insufficiancy is when your adrenal glands stop absorbing sodium, potassium and not sure what else but that is why I am on steroids, my Blood Pressure was so bad i felt like i was dieing and running to every emergency room around and being sent back home till they caught it at 70/40, Doctors never really check into your cortizone level, however I have read post on here that people who were hypo ended up with adrenal problems later and don't know why, my endo says it just happens and it isn't caused by the thyroid so I am still up in the air with that one. I think the steroids are making me retain water and causing adema but GEEEEE he says no, but my second opiniom doc (internal med) says YES it can. I was going through alot of stress moving and so on when all this hit me with the neuropathy problems,adrenal gland, and told thyroiditis so maybe that is what put it all into full force. I just don't know if having the left lobe with the solid goiter on it will help any and I am scared to have the surgery done, adrenal problems make you high risk with any surgery I guess. Also my back problems started the same time as the rest also, now have facet joint disease and disc degeneration and the orthapedic place just don't want to relate to it and do anything for me, and I assume it's because of the medical problems, they just want me to go to physical theropy all the time and have cortizone shots done. They act as if it is thyroid related so I dunno I am just about done with trying to get help, I pray and read my bible just about every day and I have put it into his hands. I only had 3 B12 injections done then i just started taking the pill everyday, did the injections help you? Also as of yesturday I am going back down to 25mg of levothyroxine a day to see if it helps, it seems the neuro problems have been worse since they uped my dose, when I got out of the hospital a week later i could not walk due to pain in the leg, i was on 75mg and was shaking everytime i took it also diareah, 50 mg wasnt so bad the shakes did calm down but still alot of pain. I also crave junk food alot and yes it is a bad habit! I need to get on a good diet as well, I have gained 20 lbs. in the past 4-5 months. Also on your neuro problems do you get pain in the back of your head? And feel things in your nerves? It almost seems like it is coming from my spine but the muscles in my top back are always so tight.
God Bless you..............
Tina
God Bless you..............
Tina
Hi there, so good to hear from you ~
Amy- I know EXACTLY what you are saying girl and I KNOW you must go through the ringer trying to raise 2 boys and be a wife while being sick. It is no pic-nic. I wonder if there really is such a thing as SLIGHTLY hypo??? You sound alot more than slightly hypo to me unless you have something else up to??? Please let us all know when you know something. I also loose way too much hair and it no longer looks healthy. It looks thin, dry and lackluster even though I spend money on good shampoos/conditioners. The itchy sores are freaking me out to. As for your marriage- I am so glad that you and your husband have pulled together through "sickness" and in health. I know being sick makes you feel like such a burden because many times I feel like one to. That right there is enough to trigger depression if you get to feeling overwhelmed. My husband feels the burden of my illness I know- I get so sad if I dwell on it. I try and make it up to him in tender ways. I stay consciously focused on his needs because I never want him feeling that my illness is more important than his happiness. In other words, I work hard on my marriage and so does he. In fact- I have 90% of my life's commitment invested in my little family and have room for little else being sick. Otherwise, I would be involved in a professional career as well as a mom and wife. I am spread as thin as I can be already or everything would fall apart with my little family. My mom is just now realizing that there is a serious problem with my health after almost 10yrs. Her "judgements" in the past caused me to grow a bit of a back bone, but I feel resentment towards her. I learned to tune her out and alienate her. We have a surface relationship, but she is trying to buddy up now but I don't allow it because everytime I do, she does or says something hurtful. I keep her at a safe distance and she can't make it harder anymore..I let her know I love her but there is that line I had to draw. I find personal happiness in my art studio. It is the only time I become an individual and it reflects in my work. I want very much to take the studio to the next level but I know my limits and must put my family first since I have very little energy- so the household comes first. I work in the studio alot when my husband is away and my kid is in school. Our child is well adjusted but has had to do a lot more "giving" than a kid should have to. I could not help that- but in return, I have always given back my full support, attention, guidance, and commitment as best as I can. I am proud of her, she is a super good kid but she has never had it easy. She has to play a responsible role in the family to and pitch in but I have been careful not to let her feel like she is the parent. She has suffered loneliness because of my illness at times, we talked about it, my heart broke- but we found ways to avoid that from happening any more. Thanks for writing to me, and I am glad you are finding out what is wrong with you, keep us posted on your full diagnosis. I really appreciate your support.
Deena
Tina- What is Adrenal insuff?? That is something I am unfamiliar with. On your swelling - I was told to watch salt intake, I have all that swelling/tingling/numbness (perephial neuropathy) to even with a low salt diet, but any extra salt will aggravate my/your condition & make make you more miserable feeling. Stay away from the drive thrus and all junk foods. I crave that stuff but only allow myself a treat once a week in a happy meal form. I NEVER order the full size combo deal, it is a big enough (salty) portion for 2 people! Only in small quantites and in moderation should you eat those things being as sick as you are. I was also told to drink as much water as I possibly can, maybe it will help you to even though it isn't a cure. I have not heard of them changing their ingredients for levothyroxine, but just to be sure- I'd call the pharmacy and ask. I wanna get my thyroid taken out to for the exact reasons, but I am hearing more and more that that isn't a cure all in many cases so PLEASE let me know what you have heard on the subject???? How long have you been taking b12 by injection? I really hope you get to feeling better soon, and keep on top of those Dr.'s or you will end up lost in a pile of paperwork like they always do to me. I also have to stop letting that happen, I am learning to be a pain in their booties. Thanks for writing, This is such a great place to vent huh???? I really really needed to do that to since I get so uncertain of the future, and worn down from the not knowing. Thanks for writing to me & thanks for the support. I really hope you are able to find out more soon. I will be around the boards as time allows to read up on what is going on. Let me know if you ever need a shoulder~
Deena
Amy- I know EXACTLY what you are saying girl and I KNOW you must go through the ringer trying to raise 2 boys and be a wife while being sick. It is no pic-nic. I wonder if there really is such a thing as SLIGHTLY hypo??? You sound alot more than slightly hypo to me unless you have something else up to??? Please let us all know when you know something. I also loose way too much hair and it no longer looks healthy. It looks thin, dry and lackluster even though I spend money on good shampoos/conditioners. The itchy sores are freaking me out to. As for your marriage- I am so glad that you and your husband have pulled together through "sickness" and in health. I know being sick makes you feel like such a burden because many times I feel like one to. That right there is enough to trigger depression if you get to feeling overwhelmed. My husband feels the burden of my illness I know- I get so sad if I dwell on it. I try and make it up to him in tender ways. I stay consciously focused on his needs because I never want him feeling that my illness is more important than his happiness. In other words, I work hard on my marriage and so does he. In fact- I have 90% of my life's commitment invested in my little family and have room for little else being sick. Otherwise, I would be involved in a professional career as well as a mom and wife. I am spread as thin as I can be already or everything would fall apart with my little family. My mom is just now realizing that there is a serious problem with my health after almost 10yrs. Her "judgements" in the past caused me to grow a bit of a back bone, but I feel resentment towards her. I learned to tune her out and alienate her. We have a surface relationship, but she is trying to buddy up now but I don't allow it because everytime I do, she does or says something hurtful. I keep her at a safe distance and she can't make it harder anymore..I let her know I love her but there is that line I had to draw. I find personal happiness in my art studio. It is the only time I become an individual and it reflects in my work. I want very much to take the studio to the next level but I know my limits and must put my family first since I have very little energy- so the household comes first. I work in the studio alot when my husband is away and my kid is in school. Our child is well adjusted but has had to do a lot more "giving" than a kid should have to. I could not help that- but in return, I have always given back my full support, attention, guidance, and commitment as best as I can. I am proud of her, she is a super good kid but she has never had it easy. She has to play a responsible role in the family to and pitch in but I have been careful not to let her feel like she is the parent. She has suffered loneliness because of my illness at times, we talked about it, my heart broke- but we found ways to avoid that from happening any more. Thanks for writing to me, and I am glad you are finding out what is wrong with you, keep us posted on your full diagnosis. I really appreciate your support.
Deena
Tina- What is Adrenal insuff?? That is something I am unfamiliar with. On your swelling - I was told to watch salt intake, I have all that swelling/tingling/numbness (perephial neuropathy) to even with a low salt diet, but any extra salt will aggravate my/your condition & make make you more miserable feeling. Stay away from the drive thrus and all junk foods. I crave that stuff but only allow myself a treat once a week in a happy meal form. I NEVER order the full size combo deal, it is a big enough (salty) portion for 2 people! Only in small quantites and in moderation should you eat those things being as sick as you are. I was also told to drink as much water as I possibly can, maybe it will help you to even though it isn't a cure. I have not heard of them changing their ingredients for levothyroxine, but just to be sure- I'd call the pharmacy and ask. I wanna get my thyroid taken out to for the exact reasons, but I am hearing more and more that that isn't a cure all in many cases so PLEASE let me know what you have heard on the subject???? How long have you been taking b12 by injection? I really hope you get to feeling better soon, and keep on top of those Dr.'s or you will end up lost in a pile of paperwork like they always do to me. I also have to stop letting that happen, I am learning to be a pain in their booties. Thanks for writing, This is such a great place to vent huh???? I really really needed to do that to since I get so uncertain of the future, and worn down from the not knowing. Thanks for writing to me & thanks for the support. I really hope you are able to find out more soon. I will be around the boards as time allows to read up on what is going on. Let me know if you ever need a shoulder~
Deena
Also i wonder if they have added something new to levothyroxine, i have been on it for 2 yrs but never had these symptoms.
You all sound like me, I thought I was getting MS also but they have ruled that out. Everyone around me thought I was nuts and prolly still do, I also have Adrenal insuff., I was deadly sick for 5 months before it was discovered, I was always told I was hypo but found out it was thyroiditis (goiters and nodule) might be having it taken out to see if these syptoms go away, my endo tells me that these symptoms are not my thyroid but my second opinion from internal med doc seems to think some of them may be. I have delt with pain and numbness since December now and it drives me crazy, i take b12 vitamin everyday and had a few shots but it didnt seem to do any good. My feet and ankles have been swelling lately also.
Tina
Tina
Hi! I am also new to this disease.(April) I just saw an endo. 3 days ago and he ordered a ton of blood work. We know I am slightly hypo. but VERY symptomatic. He thinks it is Hashimotos but I don't go back until September. And he says I need some fine tuning. Glad to know I am not crazy.
Your symptoms are so familiar that I just had to respond to you. I have had an itchy, scabby scalp for years and nothing helps. Now my hair is so thin and I have always had a thick mane. I have an autoimmune arthritis that started in my late 20s and apparently, all of this is related. I have been treated for severe depression. Had SEVERE depression after first child(he is 8) and all of the thyroid stuf started after I bit the bullet and had another child(14mos.) You know when something is wrong with you! But I know my wonderful husband is so sick of me being sick. I am almost 38, have been married for 13yrs.(on the 27th) I have 2 beautiful boys and I am SO TIRED and lethargic. My depression ALMOST destroyed my marriage. I thank God for my husband every day. Sex is a chore. I want to - I just am so tired and have extreme vaginal dryness - which they also think is thryroid related. The doc. drew all my hormone levels as well. So I know how you feel!! Hang in there. I know you feel like giving up when Dr.s just don't seem to listen! Keep on keeping on and vent here like everyone else. I hope you feel better soon! ~ Amy
Your symptoms are so familiar that I just had to respond to you. I have had an itchy, scabby scalp for years and nothing helps. Now my hair is so thin and I have always had a thick mane. I have an autoimmune arthritis that started in my late 20s and apparently, all of this is related. I have been treated for severe depression. Had SEVERE depression after first child(he is 8) and all of the thyroid stuf started after I bit the bullet and had another child(14mos.) You know when something is wrong with you! But I know my wonderful husband is so sick of me being sick. I am almost 38, have been married for 13yrs.(on the 27th) I have 2 beautiful boys and I am SO TIRED and lethargic. My depression ALMOST destroyed my marriage. I thank God for my husband every day. Sex is a chore. I want to - I just am so tired and have extreme vaginal dryness - which they also think is thryroid related. The doc. drew all my hormone levels as well. So I know how you feel!! Hang in there. I know you feel like giving up when Dr.s just don't seem to listen! Keep on keeping on and vent here like everyone else. I hope you feel better soon! ~ Amy
Thanks for such sweet letters, and for your support!
Myliljay- I am sorry you started this so young, you are still young very though and I really hope your health improves more. It is sad that you started so young with these issues. You so hit it on the head when you wrote about how these problems ruin relationships and jobs- LOL- not funny, haha. I really feel alot more validated now. I just wish it wasn't such a shadowy illness. It is one thing to tell people you have cancer and they go "oh my, I understand" but it is something totally different to tell someone "I have thyroid problems." They think you have a headache, or they think you needed an excuse for gaining weight or something else. Some thyroid people are fine with the right dose while the rest of us who are not fine appear to be hypochondriacs. I believe thats a big part of the problem. Thanks for writing to me, I really enjoyed reading your letter. I am always avail to talk or try and cheer you up when you need that~
Leanne- I wanna read your post but I don't know where to go, I was fumbling through and didn't find it. You really remind me of me alot and thanks so much for writing to me- It sounds like you have your plate full at home. I know your kids probably keep you super busy even when you are spent. I hope your husband is supportive of you with these problems you have. You sound pro-active and very determined, thats great- I am sure your family loves you deeply, and thats what family is for, to support eachother. I know you feel that same sense of being a burden- but you didn't choose this, and you seem to make good lemonade with the lemons ya got. I am determined to find a way to get a diagnosis, (i will pay as I go) I have to since it isn't really a choice. I am going to go to a new dr.and request current blood testing for my b12 deficiency - ( I have no idea if thats what i really have since this cocky dr. never checked) Then, I will move into the next phase if the b12 comes back ok. That will be Diabetes screening , then-Lupus, and finally MS. Just one thing at a time till I know an answer. I chose MS last since you seem to think that isn't the cause. I have done lots of research and I think maybe it could be diabetes in conjunction with thyroid but I really can't be sure since I am suspicious of Lupus to. I have so many symptoms. Maybe, I am like you and just have a lousy thyroid and they won't find a thing........................The neuropathy thing is worse now, and new I might add. I have havd thyroid problems for 10 yrs and never had neuropathy so awful like now.
Thanks for your inspiration, you keep your chin up to, your a sweet person. I am here if you wanna talk~
Moonwind- Thanks very much, I have really vented alot in the last couple days....lolo I look forward to getting to know you to.
Myliljay- I am sorry you started this so young, you are still young very though and I really hope your health improves more. It is sad that you started so young with these issues. You so hit it on the head when you wrote about how these problems ruin relationships and jobs- LOL- not funny, haha. I really feel alot more validated now. I just wish it wasn't such a shadowy illness. It is one thing to tell people you have cancer and they go "oh my, I understand" but it is something totally different to tell someone "I have thyroid problems." They think you have a headache, or they think you needed an excuse for gaining weight or something else. Some thyroid people are fine with the right dose while the rest of us who are not fine appear to be hypochondriacs. I believe thats a big part of the problem. Thanks for writing to me, I really enjoyed reading your letter. I am always avail to talk or try and cheer you up when you need that~
Leanne- I wanna read your post but I don't know where to go, I was fumbling through and didn't find it. You really remind me of me alot and thanks so much for writing to me- It sounds like you have your plate full at home. I know your kids probably keep you super busy even when you are spent. I hope your husband is supportive of you with these problems you have. You sound pro-active and very determined, thats great- I am sure your family loves you deeply, and thats what family is for, to support eachother. I know you feel that same sense of being a burden- but you didn't choose this, and you seem to make good lemonade with the lemons ya got. I am determined to find a way to get a diagnosis, (i will pay as I go) I have to since it isn't really a choice. I am going to go to a new dr.and request current blood testing for my b12 deficiency - ( I have no idea if thats what i really have since this cocky dr. never checked) Then, I will move into the next phase if the b12 comes back ok. That will be Diabetes screening , then-Lupus, and finally MS. Just one thing at a time till I know an answer. I chose MS last since you seem to think that isn't the cause. I have done lots of research and I think maybe it could be diabetes in conjunction with thyroid but I really can't be sure since I am suspicious of Lupus to. I have so many symptoms. Maybe, I am like you and just have a lousy thyroid and they won't find a thing........................The neuropathy thing is worse now, and new I might add. I have havd thyroid problems for 10 yrs and never had neuropathy so awful like now.
Thanks for your inspiration, you keep your chin up to, your a sweet person. I am here if you wanna talk~
Moonwind- Thanks very much, I have really vented alot in the last couple days....lolo I look forward to getting to know you to.
Welcome to the forum. this is great place to come for advice friendship . Or if you just need to vent.
I will look forward to getting know all of you.
Love Venora
I will look forward to getting know all of you.
Love Venora
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