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unusual symptoms
Had some crazy symptoms starting as left ear pain and pressure, severe pain behind my left eye, left part of face became numb and tingly and vertigo. I had a difficulty comprehending when spoken to. A week later my gait is unstable but my vertigo is mostly gone, my muscles twitch, my right arm and hand is stiff and my left arm and head shakes. An MRI was normal. I have a history of hypothyroidism but 2 months ago it was in normal range. About 5 yrs ago I had severe, fall down vertigo and facial numbness that lasted only a couple of days and no other symptoms.
I am getting very frustrated not getting a proper diagnosis.....
Has anybody experienced something similar?
I am getting very frustrated not getting a proper diagnosis.....
Has anybody experienced something similar?
I have the same pain and pressure, also in my left ear. It feels like a migraine, but a little different. I wake up with it, and get it in late afternoon again. My TSH is 41, after being normal for two weeks. Before that, I had Grave's, an allergice reaction to tapazole, and then RAI. I was put on Levoxyl a week ago. I was told it would take 6 weeks to see how it has affected me. A few years ago, my older sister had symptoms that were undiagnosed, but most likely TIAs, and eventually she had a massive stroke. She just passed away in March. I bet she had thyroid problems too and didn't know it. My mother has thyroid problems and is on Synthroid. I didn't know this would be so complicated. The endocrinologist's nurse told me not to worry about my problems with thyroid and that it is very common. After reading everyone's comments, how can they say that this is a simple problem? My family dr. said that a TSH of 41 is not common, so I am going in to see her tomorrow afternoon. Good luck, everyone, with your thyroid and dizziness. I hope you all find an answer.
Do you also have a thyroid problem? I'm just trying to figure out if the symptoms are from that or if I should continue to look into other reasons such as Menier's......
I had the numb face feeling, along with screaming ear pain and ear ringing the numb feeling went away in a couple of days, but know i have a solid ear ache and a jaw ache to go with it, i wish i had an answer for you.
The neurologist thinks I may be having seizures, the ENT thinks I may have Meniere's, but nothing confirmed yet. I did have an MRI and it was normal but I have not had a CAT scan.
You are right, I'm not going to be blown off anymore, I'm tired of the runaround.....
Thanks for your input.
You are right, I'm not going to be blown off anymore, I'm tired of the runaround.....
Thanks for your input.
It feels good to have an explanation, at least for some of the symptoms, now I just have to figure out the rest.....
Let me know when you get your results.
Good luck.
Let me know when you get your results.
Good luck.
Thyroid stuff aside, your symptoms scream TIA (mini stroke) and/ or seizure! If you haven't had an MRI, maybe it would show it? A CAT scan will show damage, but a TIA won't necessarily cause any...The scary part of this is, TIA's are often a warning sign that there is an "event" like a stroke, hypertensive crisis, or something neurological in your future...If you are having TIA's, they may be coming from a spot in your body that is throwing off teeny blood clots, which are easily preventable if treated early...I'm only a Paramedic, and am not well versed in all the trouble grumpy thyroids can cause...But this is not a good thing...Please don't let the Drs blow you off...
Woah!
That is high! I hope you get to feeling better soon.
Keep me updated. Especially if the rocking on the boat feeling improves. My dose increase has not helped yet. I get retested in a few weeks.
That is high! I hope you get to feeling better soon.
Keep me updated. Especially if the rocking on the boat feeling improves. My dose increase has not helped yet. I get retested in a few weeks.
I just got my test results in...... TSH 37.6 pretty high...... It's strange, less than 2 months ago it was normal. No wonder I was feeling so awful!
I was on Synthroid for the last 15 years or since I was 21. I always felt like I still had symptoms so I switched to alternative support which seemed to work great, I was able to lose 30 lbs, also from eliminating dairy and wheat, felt more energy and happier than ever. All of a sudden all this happened. Similar things happened to me in 2003 and then I was on Synthroid. So I don't know whether it is the supplements or if this is something totally different. I have never had tremor before, pain behind the eye nor fatique this severe.......
Thanks, you make me feel like I'm not alone dealing with this.
Thanks, you make me feel like I'm not alone dealing with this.
Good luck with the blood tests.
Post them when they come back.
I think I am confused though. Are you on thyroid meds?
Some days I can feel very well with a good amount of energy and other days, it is like I am back to square one. In comes and goes in cycles, it seems.
Post them when they come back.
I think I am confused though. Are you on thyroid meds?
Some days I can feel very well with a good amount of energy and other days, it is like I am back to square one. In comes and goes in cycles, it seems.
That is exactly what I feel, like rocking in a boat. TIA is scary...!
What baffles me is that I am starting to feel a little better without changing my dosage, other then starting having tremors instead. Still severely fatiqued, fall asleep on the couch after doing light housework. I zone out in a middle of a conversation and I feel stuck in my noisy Tinnitus head. It is ridiculous!!
I'm going for blood tests today, hopefully it will solve this.
What baffles me is that I am starting to feel a little better without changing my dosage, other then starting having tremors instead. Still severely fatiqued, fall asleep on the couch after doing light housework. I zone out in a middle of a conversation and I feel stuck in my noisy Tinnitus head. It is ridiculous!!
I'm going for blood tests today, hopefully it will solve this.
I have never heard of Chiari malformation......
What a drastic change, especially if you are medicated!! You are right, it is better to deal with the diagnosis than not knowing what the heck is wrong and feel like nobody believes you.
That nighblindness is SO inconvenient, a lot of stubbed toes and near accidents in the car at night. You could have REALLY gotten hurt when you fell down the stairs.
Take care.
What a drastic change, especially if you are medicated!! You are right, it is better to deal with the diagnosis than not knowing what the heck is wrong and feel like nobody believes you.
That nighblindness is SO inconvenient, a lot of stubbed toes and near accidents in the car at night. You could have REALLY gotten hurt when you fell down the stairs.
Take care.
I had the same kind of thing a few years back. Felt like when I walked I was rocking in a boat. I had an MRI, and a neuro-surgeon say to me, there's nothing there....I said,,WHAT? Not even a teeny brain? He didn't like the joke. They thought I might have had Meniere's too, and went to every darn doctor this side of Melbourne!
I even passed out talking to my little children, which they thought was funny and asked me to do it again....sigh..kids! I have basically no night vision at all, any headlights just make me see a glow for 2 seconds, not so good for driving!
I did have a couple of episodes of going blank for a minute, then my speech was slurred and my arms felt like lead. The doc said they were T.I.A's (Transient Ischemic Attacks) which are like little fireworks going off in a tiny vein in the brain,not enough to kill but certainly scares the begeebees out of you! I have read since that Hashimoto's can do that. I also had severe depression for no apparent reason.
Looking back I now know it was probably the beginning of my Hashimoto's attack. I was hyperthyroid but with normal levels...grrrrrrr..couldn't convince any doctor there was something WRONG!
My suggestion is get a anti-thyroid anti-bodies test done. I waited 15 years before I finally kicked butt and got told I do indeed have Hashimoto's Disease. Believe me if I can convince you to go get that checked and it is Hashimoto's then you can get treated, I wouldn't wish it upon my worst enemy this rotten disease.
Cheers!
I even passed out talking to my little children, which they thought was funny and asked me to do it again....sigh..kids! I have basically no night vision at all, any headlights just make me see a glow for 2 seconds, not so good for driving!
I did have a couple of episodes of going blank for a minute, then my speech was slurred and my arms felt like lead. The doc said they were T.I.A's (Transient Ischemic Attacks) which are like little fireworks going off in a tiny vein in the brain,not enough to kill but certainly scares the begeebees out of you! I have read since that Hashimoto's can do that. I also had severe depression for no apparent reason.
Looking back I now know it was probably the beginning of my Hashimoto's attack. I was hyperthyroid but with normal levels...grrrrrrr..couldn't convince any doctor there was something WRONG!
My suggestion is get a anti-thyroid anti-bodies test done. I waited 15 years before I finally kicked butt and got told I do indeed have Hashimoto's Disease. Believe me if I can convince you to go get that checked and it is Hashimoto's then you can get treated, I wouldn't wish it upon my worst enemy this rotten disease.
Cheers!
I was just reading Thyroid for Dummies and trouble seeing at night IS a symptom of hypothyroidism!
Have you ever heard of Chiari Malformation? It is a brain stem compression thing. It can cause many neuro disorders. An MRI can doagnose it, but you have already had that.
I just found out that my TSH has gone up to 5.1 from 1.4!! It explains my increase in hair loss, slightly more dizzies, and fatigue. I am so glad I have an abnormal result to explain my symptoms!
You will probably be a more compassionate nurse since you are going through your own rough times- healthwise. I am a microbiologist, so I don't see the patients, but I feel for them.
I just found out that my TSH has gone up to 5.1 from 1.4!! It explains my increase in hair loss, slightly more dizzies, and fatigue. I am so glad I have an abnormal result to explain my symptoms!
You will probably be a more compassionate nurse since you are going through your own rough times- healthwise. I am a microbiologist, so I don't see the patients, but I feel for them.
Wonder if nighblindness is a part of thyroid problems........
I'm so sorry you got these disorders to deal with, you must be very frustrated!
I think I can rule Dysautonomia out, I only get dizzy when hungry or too hot.
I just read about spinal cord compression, that could be a possibility, at least it would explain some of my symptoms, I have a bulging disc in my neck. At this point I'm considering everything.
I just starting having tremors yesterday in my head and left arm and then my left leg became weak and tingly. That made me pretty nervous. Embarrassing too!!
I will make sure I ask for the free t4 and t3 levels, I'm going to be more alert on the tests results and ask more questions. After all we are the best advocates for our own health.
I agree, it has made me gain more knowlegde, I'm studying nursing so who knows, it may come in handy later......
I'm so sorry you got these disorders to deal with, you must be very frustrated!
I think I can rule Dysautonomia out, I only get dizzy when hungry or too hot.
I just read about spinal cord compression, that could be a possibility, at least it would explain some of my symptoms, I have a bulging disc in my neck. At this point I'm considering everything.
I just starting having tremors yesterday in my head and left arm and then my left leg became weak and tingly. That made me pretty nervous. Embarrassing too!!
I will make sure I ask for the free t4 and t3 levels, I'm going to be more alert on the tests results and ask more questions. After all we are the best advocates for our own health.
I agree, it has made me gain more knowlegde, I'm studying nursing so who knows, it may come in handy later......
Wow, you have night blindness, too?
Autoimmune diseases do travel in packs. Look up Polyglandular Autoimmune Syndrome (PAS). My mother and 1 sister are also hypo. Thyroid hormone effects evry cell in our bodies.
I have had Alopecia Areata (bald patches of scalp hair), now Hashimoto's and probably a mild, new case of Vitiligo (loss of skin pigment). Luckily, I am fair skinned, so unless I point it out, it is not obvious. Just small white spots that won't tan.
Yes, you can have Lymes w/o the rash. Most people don't recall a rash or a tick bite.
Dysautonomia is an autonomic nervous system failure. It can cause dizziness and other symptoms due to changes in blood pressure and pulse when sitting and especially standing. I find it very difficult to remain standing still and get dizzy and weak. I have to keep moving around. That apparently keeps the blood moving and pushes it back to your brain, keeping me from passing out.
Do you have a range on the t3 result? Make sure next time to get free t4 and free t3 levels, not totals. The frees are more accurate.
This crusade we are on has certainly made me more informed on many health issues. I could probably give a lecture or two! LOL
Autoimmune diseases do travel in packs. Look up Polyglandular Autoimmune Syndrome (PAS). My mother and 1 sister are also hypo. Thyroid hormone effects evry cell in our bodies.
I have had Alopecia Areata (bald patches of scalp hair), now Hashimoto's and probably a mild, new case of Vitiligo (loss of skin pigment). Luckily, I am fair skinned, so unless I point it out, it is not obvious. Just small white spots that won't tan.
Yes, you can have Lymes w/o the rash. Most people don't recall a rash or a tick bite.
Dysautonomia is an autonomic nervous system failure. It can cause dizziness and other symptoms due to changes in blood pressure and pulse when sitting and especially standing. I find it very difficult to remain standing still and get dizzy and weak. I have to keep moving around. That apparently keeps the blood moving and pushes it back to your brain, keeping me from passing out.
Do you have a range on the t3 result? Make sure next time to get free t4 and free t3 levels, not totals. The frees are more accurate.
This crusade we are on has certainly made me more informed on many health issues. I could probably give a lecture or two! LOL
It is hard to deal with being a very active outdoor person to have to rest after brushing your teeth.
I also have night blindness! My husband always has to wait for me to go to bed before he turns the lights out, otherwise I'm feeling my way over there tripping over everything... :) In traffic I am danger to my self and others so I try to avoid driving at night.
I don't have the latest results but the one before that showed TSH 1.27 and T-3 was low; 0.58.
I am starting to believe that if the thyroid is not functioning well, the symptoms may become similar to other autoimmune diseases, like MS, Lupus or Sjogren's, at least for some people. I have 2 sisters, one has MS, the other Vasculitis. Right now I have most of my sister's MS symptoms + bruise VERY easily like my other sister, but thank goodness I don't have the lesions on my brain. Something very strange going on with our genes?!!!
Can you have Lyme without having the rash?
What is Dysautonomia?
I'm right with you in the crusade, this year was supposed to be devoted to me getting healthy, so I lost weight eating better, execised and took care of myself better than ever and then got worse!!
I also have night blindness! My husband always has to wait for me to go to bed before he turns the lights out, otherwise I'm feeling my way over there tripping over everything... :) In traffic I am danger to my self and others so I try to avoid driving at night.
I don't have the latest results but the one before that showed TSH 1.27 and T-3 was low; 0.58.
I am starting to believe that if the thyroid is not functioning well, the symptoms may become similar to other autoimmune diseases, like MS, Lupus or Sjogren's, at least for some people. I have 2 sisters, one has MS, the other Vasculitis. Right now I have most of my sister's MS symptoms + bruise VERY easily like my other sister, but thank goodness I don't have the lesions on my brain. Something very strange going on with our genes?!!!
Can you have Lyme without having the rash?
What is Dysautonomia?
I'm right with you in the crusade, this year was supposed to be devoted to me getting healthy, so I lost weight eating better, execised and took care of myself better than ever and then got worse!!
The computer has really bothered me in the last 2 years since my most recent vertigo attack in 6/06.
My eyes used to to feel "jumpy". I have had muscle twitches for alomost 3 years, but they now seem to be subsiding.
I am sorry you have to deal with this and the kids. My daughter said that my favorite place to be was the couch! That was 2 years ago during the first summer that I was so busy I could barely move to take care of them.
My ENT who was treating me for Meneire's ordered an MRI w/o telling me that he suspected MS. I was having trouble seeing in the dark and fell down the stairs.
I also had a "bulls eye rash" back in 1994 before my first episode of vertigo. All Lyme tests have been negative, but my Endo says Lyme is still a possibility. It is the one dignosis I have left for last. I want to see if my latest dose increase of thyroid med does the trick.
They are also considering Dysautonomia in my case.
Do you have any thyroid results from before now?
Thanks for commiserating. I hope you get some answers soon and try to keep in touch. It is my personal crusade to figure out if these vertigo/ear symptoms are related to thyroid.
My eyes used to to feel "jumpy". I have had muscle twitches for alomost 3 years, but they now seem to be subsiding.
I am sorry you have to deal with this and the kids. My daughter said that my favorite place to be was the couch! That was 2 years ago during the first summer that I was so busy I could barely move to take care of them.
My ENT who was treating me for Meneire's ordered an MRI w/o telling me that he suspected MS. I was having trouble seeing in the dark and fell down the stairs.
I also had a "bulls eye rash" back in 1994 before my first episode of vertigo. All Lyme tests have been negative, but my Endo says Lyme is still a possibility. It is the one dignosis I have left for last. I want to see if my latest dose increase of thyroid med does the trick.
They are also considering Dysautonomia in my case.
Do you have any thyroid results from before now?
Thanks for commiserating. I hope you get some answers soon and try to keep in touch. It is my personal crusade to figure out if these vertigo/ear symptoms are related to thyroid.
Thanks for responding.
I have not been tested for Lyme, but I was told possible Meniere's by an ENT until he saw the laundry list of all the other symptoms which he thought looked like MS. He sent me to a neurologist who thought it might be a bad case of migraine or a very off thyroid. I will be retesting the TSH and I will definately consider Lyme.
It is now 2 weeks of these symptoms and it is driving me crasy, just typing right now is making my head spin but I'm desperate to know if this will get better, since I'm a busy mom of three and I really don't have time to feel this horrible and my kids do not like the armchair mom I have become.
I'm sorry you are going through this also and I hope you will recover soon also.
I have not been tested for Lyme, but I was told possible Meniere's by an ENT until he saw the laundry list of all the other symptoms which he thought looked like MS. He sent me to a neurologist who thought it might be a bad case of migraine or a very off thyroid. I will be retesting the TSH and I will definately consider Lyme.
It is now 2 weeks of these symptoms and it is driving me crasy, just typing right now is making my head spin but I'm desperate to know if this will get better, since I'm a busy mom of three and I really don't have time to feel this horrible and my kids do not like the armchair mom I have become.
I'm sorry you are going through this also and I hope you will recover soon also.
Have you had tests for Lyme Disease?
I have muscle twitches, off and on left ear pain, and off and on vertigo. I was previously dx'd as having Meneire's Disease and Migraine Associated Vertigo. The "best" diagnosis was "anxiety"!
Was is your TSH? Normal Range is not good enough. TSH should be between 0.5-2.5/2.5.
I had 1 drop attack (fall down vertigo) and 2 near misses. My MRI's were also essentially normal.
Also consider Bell's Palsy with the facial numbness, though it usually lasts longer than a couple of days.
Have you seen a neurologist?
I have muscle twitches, off and on left ear pain, and off and on vertigo. I was previously dx'd as having Meneire's Disease and Migraine Associated Vertigo. The "best" diagnosis was "anxiety"!
Was is your TSH? Normal Range is not good enough. TSH should be between 0.5-2.5/2.5.
I had 1 drop attack (fall down vertigo) and 2 near misses. My MRI's were also essentially normal.
Also consider Bell's Palsy with the facial numbness, though it usually lasts longer than a couple of days.
Have you seen a neurologist?
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