0.00 TSH

[Jenny530]

I have been being treated for hyperthiroid/Graves disease for almost 4 years.  I just got my blood work back and my T4 is 2.4, my T3 is 8.9 and my TSH is 0.  My symtons are not what you might expect.  I am always very cold during the day, hot flashes when I sleep.  I am tired a lot and fall asleep very easily.  I get heart palpitations and the shakes, but that ususally subsides if I eat.  I also have endometriosis, diagnosed 8 years ago and take orthocyclin every day to supress symtoms.  I am only 26 years old and need some help to get my energy back.  I am taking 10 pills a day for the hyperthiroid and the only option the Dr. gave me is to have it removed, but my symtoms are not that of a normal hyperthiroid problem.  Where do I go from here?

[stella5349]

It is very apparent your TSH shows Hyper thyroid. Shaking and night sweats are usually not common or normal within your age. I thyroid stormed in 2004. Prior to that I had felt pretty good even through I was experiencing your symptoms. I lost weight which I thought was wonderful I slept little, I was approaching 40 yrs old with the mind set thinking WOW getting to 40 is great! Then it hit. Heart paps, hair falling out in clumps, shaking, basel temp change etc. I was at a weight of 102 at 5'6".

Make sure you and your doctor monitor your levels. That TSH is not good. I had trouble when I did start going to the doctor, even getting a blood test ran.

Now post RAI for 5 years I have trouble still getting balanced. Thyroid storming is not fun.... trust me.

Good Luck

[GravesLady]

LOL! What's normal?
I am 11 years RAI treated Hyper/Graves.  I have always been a cold person, AM, PM, winter, summers. I never had a hot flash.  You are tired because with a TSH of 0 you are on over drive and being worn out, so naturally you would be tired.
Heart palpitations and the shakes even subsiding after eating is a symptom of hyper.  I get all the above with exception of hot flashes, when my TSH is out of Labs hyper range and due to over medicated.

You didn't say what medication you are on. I suspect ATDs (?) thereby in which case, another type of treatment may be required to control your levels.

What is your Lab reference range for your T levels.  I don't recognize or relate to your   levels.  You should have the FTs done which will give a truer thyroid statues.  Certain factors interfere with T levels, where they don't interfere with the FTs.

Your options are:
Exhaust all your drug doses until you run out - see if you can find better dose that works.
RAI
Surgery.

Good luck!

[ifupleze]

I answered your first post.