Low TSH, Normal/low FT4, Normal FT3 having problems

[Newa]

I am 58 yrs congenitally hypothyroid since age 1 month on thyroid (proloid, Nature-throid). My TSH is and always been very suppressed <0.03 (miu/ml) FT4 = 0.9 (0.7-1.9 ng/dl) FT3 = 3.39 (1.45-3.48 pg/ml).   I take 2 3/4 gr thyroid daily and this just gets me ok with hypo thyroid symptoms, 3 gr is better but doctors won't prescribe and want me lower but I become very hypo ill at 2.5 and lower.  When I was younger doctors would refuse to prescribe thyroid for me and I suffered miscarriages, lost my hair, etc. so I am just getting by.  Currently, I also am having bloodwork consistently (8 tests in 2 years) come back with high PTH, high Ion calcium and high/normal serum calcium.  I also have bone density showing osteopenia and osteoporosis.  Doctors blame TSH for everything and won't look further into what's going on with my PTH and calcium.  I have sypmtoms of Hyperparathyroidism and hypothyroidism that seemingly cross-over.  I also have a high serum electrophoresis Lambda reading of 165 ( ).  I don't know where to search next.  Any input or suggestions would be appreciated. Thanks

[Newa]

Thanks for the advice.  I'm trying to find a doctor who will look at the possibility of two diseases occurring simultaneously.  It does seem the tests lean toward hyperparathyroidism but the doctors don't see that, only my TSH. Years ago an endo told me that most doctors don't understand that congenital hypothyroidism is not the same as primary acquired hypothyroidism. Thankfully he prescribed the higher dose of thyroid that I needed and saved me. But He has retired and I can't locate him.  Now I'm back to the text book know-nothings who think they do and have started spiralling down again because they won't look at symptoms or other possibilities.  
Newa

[Super_sally888]

Hi,

I think you need to find a dr that specialises in hyperparathryoid.  There is a doctor that specialises in this and they have a website for this.  The hyperparathryoid is consistent with high calcium and high iPTH. (if you google parathyroid and calcium you will surely come up with his site).

High PTH has nothing to do with the thyroid meds and docs are doing you very poor service by refusing to look further. What a shame you can't get meds at a level required to feel good.  I think a second opinion is warranted.

You may need to travel but would certainly be worth it.  Hyperparathryoid caused osteoporosis/ osteopenia is reversible with the parathyroid treated.