Hi Quinnboss.
So sorry about your your pain & suffering.
Most of your symptoms are consistent with celiac disease, which is unfortunately missed in most celiac's sufferers.
It might also be wise to consider ruling out gluten intolerance at the same time.
-------Grains/carbs/gluten intolerance----
Look into Gliadin test (urine), by Cyrex labs. They test 12 forms-not just the alpha ordered by most doctors- of gliadins regarding gluten intolerance (not necessarily digestive).
Now they can also test which part of the body is affected.
The tests you can look into FYI (not necessarily a recommendation) are:
Array 2 – Intestinal Antigenic Permeability Screen™
Array 3 – Wheat/Gluten Proteome Reactivity and Autoimmunity™
Array 4 – Gluten-Associated Cross-Reactive Foods and Food Sensitivity™
One thing that you can do on your own-before you explore these tests further- is Dr. Coca's Pulse Test, it's a free download, and it will indicate within a week, any reactivity, any allergies, any intolerance and sensitivity to anything ingested, that is considered offensive by the immune system.
It is a great self-test, for the degree of accuracy, however, should you find it too difficult to do because of your schedule, there's a simplified version that I can send you, as second option.
Never mind; It takes just an extra minute. Here it is:
Dr. Cocoa's Pulse Test (simplified version)Just sit in a chair and come to rest for about 5 minutes. Take your pulse for a full 1 minute (not the 15 sec. multiply by 4 thing). Then put whatever you want to test in your mouth and chew it for 30 seconds. Then take your pulse again. If you find it is faster by 6 beats, you are allergic or have a sensitivity to it. If you have type “O” blood, use 4 beats as the criteria instead of 6. It’s that simple.
Malabsoption issues, improperly digested macronutrients and Leaky Gut (Intestinal permeability) create an environment that is condusive to the manifestation of many similar symptoms to yours.
There's a simple urine test available for Leaky Gut Syndrome: mannito/lactulose test.
A fungal infection, Candida, is one of the precursors of Leaky Gut
and you can do your own screening test for that (not diagnostic) :
Saliva Test for Candida. Just look it up. Short and simple!
A complete nutrient/vitamin panel along with a mineral tissue analysis (not serum) might help rule out deficiencies.
Oh, I almost forgot. Also related to gluten, Immunoglobulin A nephropathy
needs to be ruled out. IgA accumulates in the kidneys and affects its filtering ability and it may cause microscopic hematuria (red blood cells visible under a microscope in the urine).
Hope this helps and you can let me know if you need more details,
however, please note that my comments and suggestions here, are not intended as a replacement for medical advice.
Best wishes.
Niko
Most of you symptoms are what I suffered with at one time. The recurrent bladder infections are likely caused by candida yeast overgrowth, as well as all of your other symptoms. The candida overgrowth creates inflammation in the colon, causing leaky which then causes gluten intolerance and food allergies. My husband and I were treated for lyme disease thinking this would cure all of our symptoms. The treatment didn't make us feel any better.
It wasn't until we started on a candida diet, started taking nyastatin ( anti-fungal drug), and many other supplements to kill candida and replenish our bodies that we began to feel better.
I no longer have blood in my urine, suffer with IBS symptoms, no longer have pain in my kidneys or abdomin, no longer have bladder infections or burning. I do not get bloated and have lost 20lbs.
Right now I am killing the candida and it causes my allergies to set off and my rashes become worse. If you look into this condition you will realize that the reason celiac disease is becoming so prolific is because of our use of antibiotics and poor diet.
Candida Yeast overgrowth is worth looking into! There is a candida forum that can help with supplements and diet.
I forgot to mention problems with sleep and ovarian cysts.
I went to see my gynecologist about my problems and she told me that my ovarian cysts are caused by to much insulin in my body.
The only way to lower insulin in the body is to get off of sugar and go on a high fiber low carb diet. I know longer have ovarian cysts since being on the candida diet.
My sleep is much better as well.
Once you get this imbalance caused by candida yeast overgrowth it sets your body up for all kinds of deficiencies as well as infections. Your immune system will be compromised. Taking antibiotics will only make your problem worse. My husband and I have been fighting this for almost 5 years. We finally got to a point where we can exercise without to much fatigue or pain. We no longer suffer with terrible IBS symptoms.