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Medullary Sponge Kidney Disease (MSK) Community

This patient support community is for discussions relating to Medullary Sponge Kidney Disease (MSK).
1 - 20 (of 661) questions
What is the life expectancy of someone with severe msk?
Does anyone on here suffer really badly from nightsweats? I when I wake up in the morning soaking with sweat and think it must have some...
Hi everyone. Has anyone had this surgery done? I am conimplating having it done by Dr. Wolf in Michigan, but I am just looking for some...
My twin sister and I both have msk and have for 13 years, she passes stones and I don't I usually get hydronephrosis and that's when I ha...
I received a call from my doctor two days ago. She mentioned my ultrasound shows multiple stones in both of my kidneys. She said that she...
I finally got into see a pain management doctor last week. For the past week and a half I have been having constant pain on my left side....
I was dianosed with msk at age 32 i am now 33 ad have pain in my left back side often amd at times it gets really bad. Doctors look at me...
Hi there, New here and although I have a long history of stones, I'm in Ontario Canada. I was finally diagnosed with MSK about a ye...
Hello everyone. I am a newcomer with the Medullary Sponge Kidney Diagnosis. I have just found out after 5 years of relentless pain, tes...
my midwife is sending me to a kidney specialist because she doesnt know anything about msk and im hoping it doesn't ruin my birth plans h...
If you also suffer with reoccurring kidney pain whether you are passing stones or not...please respond as I am relieved to know I am not ...
Hello everyone, I recently found out I have MSK and was told I would definately need a kidney transplant at some point in my life, bu...
Just stopping by to say hello -- how is everyone doing? C~
In Early Jan. I had a bladder infection. I first noticed it because it looked like white bubbles or white things were in my urine. Then...
I was diagnosed with MSK last December. I've been struggling with kidney stones for over a year. Urologist did a 24 hr. urine collection...
I have MSK and was diagnosed young with osteoporosis, no cause has been found. Does MSK cause bone loss or prevent someone from reaching ...
Any one heard of Chandra Piedra and taken it with success? Apparently it is a natural stone-breaker and I would love to know that it has ...
so if you can help me so i can help her and i would want to know how to help her she is in a lot of pain i need to help her she is in ...
I have to make this short because I dont have much time but I wanted to know if anyone else suffering from the MSK has successfully been ...
Happy anniversary to ChitChatNine- your Community Leader! Please take a moment to reach out to ChitChatNine, and give a shout out for ho...
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