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WHY is there NO SUPPORT for any website on withdrawal of Fentanyl
I have checked the web and have NOT found any web sites that help with withdrawal from Fentanyl. WHY is that? This is horrible to go through. I did only by the chance of life or death and for me, it was almost death. Down to 108 pounds and all the doctors could do was cut my morphine dose etc. After finding out how the fentanyl and all the drugs were affecting me, my pancreas reacted and my intestines were causing problems so I had to stop cold turkey.
My point is that this is NO SUPPORT from the medical community about this and this is horrible!
Yes, I kicked it cold turkey over one month now but my body still has to clean itself out and get back to normal and that is still going to take time but there is no advise from the medical community or help on how to kick this. Cutting down the patch doesn't apply in my situation because my doctor can only cut me down to 25mg because that is the lowest is formulary pharmacy will allow. They do not carry anything lower. I was on 50mg and when I saw what this stuff was doing to my body, it scared the hell out of me.
My doctor was only trying to accommodate my pain levels which I appreciate, but ignored the side effects that were happening. I had GI problems and more problems but this went unnoticed. I had to take control of what was happening to me and the medical staff could only offer me drugs like diazipan to help with the withdrawal. The diazipam did not do enough and I had to take more and that only lead to more addiction. I tried something I used in the past for pain which was Gabapentin and that at least helped get me some sleep at night along with a muscle relaxer and it is now over one month that I am fentanyl free but the medical community offers no assistance except rehab and another pill to get you off this drug.
Be aware and after doing research I find I had to do what was best for me and NO DEPEND on the medical community for help because there was no out there.
Yes, there is support from many people who are going through this and the support from the people does help my mental state of mind but how do you advise someone medically who is going through this when there is no medical support.
I WANT TO SAY THANK YOU VERY MUCH FOR THE PEOPLE WHO HAVE SUPPORTED ME IN THIS ROUGH TIME. THEY HELPED ME SURVIVE AND MY SINCERE THANKS TO EVERYONE THAT HAS OFFERED THEIR ADVISE AND SUPPORT. AT LEAST I KNOW THEY HAVE MY BACK AND I THANK THEM FOR THE SUPPORT THEY GAVE TO HELP SAVE MY LIFE!!!!
My point is that this is NO SUPPORT from the medical community about this and this is horrible!
Yes, I kicked it cold turkey over one month now but my body still has to clean itself out and get back to normal and that is still going to take time but there is no advise from the medical community or help on how to kick this. Cutting down the patch doesn't apply in my situation because my doctor can only cut me down to 25mg because that is the lowest is formulary pharmacy will allow. They do not carry anything lower. I was on 50mg and when I saw what this stuff was doing to my body, it scared the hell out of me.
My doctor was only trying to accommodate my pain levels which I appreciate, but ignored the side effects that were happening. I had GI problems and more problems but this went unnoticed. I had to take control of what was happening to me and the medical staff could only offer me drugs like diazipan to help with the withdrawal. The diazipam did not do enough and I had to take more and that only lead to more addiction. I tried something I used in the past for pain which was Gabapentin and that at least helped get me some sleep at night along with a muscle relaxer and it is now over one month that I am fentanyl free but the medical community offers no assistance except rehab and another pill to get you off this drug.
Be aware and after doing research I find I had to do what was best for me and NO DEPEND on the medical community for help because there was no out there.
Yes, there is support from many people who are going through this and the support from the people does help my mental state of mind but how do you advise someone medically who is going through this when there is no medical support.
I WANT TO SAY THANK YOU VERY MUCH FOR THE PEOPLE WHO HAVE SUPPORTED ME IN THIS ROUGH TIME. THEY HELPED ME SURVIVE AND MY SINCERE THANKS TO EVERYONE THAT HAS OFFERED THEIR ADVISE AND SUPPORT. AT LEAST I KNOW THEY HAVE MY BACK AND I THANK THEM FOR THE SUPPORT THEY GAVE TO HELP SAVE MY LIFE!!!!
I have the flat film type, i want to keep cutting it down, i really just want to stop it all right now, i can't take it. I dont know what to do, especially because i havent eaten in seriously five days. I also hardly drink anything. i dont want to get dehydrated but i can hardly swallow.
Mixing all those meds is very dangerous. Try weaning down off the Fentanly little by little. First, stop checking them. Use it properly. Do you have the gel-filled or the flat film-type? If you have the film type it can be cut by slivers and it makes it much easier. The gel type CANNOT be cut.. Please rethink taking the meds your friend is sending you. Xanax and Seroquel can be quite dangerous mixed with other drugs.
I also got sucked into fentanyl hell and am trying to ween myself off right now. Unfortunately I never used them correctly. I am prescribed 50mcg patch but I never wear them, i cut them in half and cheek two a day- i know its wrong and dangerous and i am ashamed because i had just rehabbed off a 150mg methadone and ambien habit. I didnt realize fent was so strong. Unfortunately for me I dont't have good doctor care to help me detox because i live in a foreign country.(thats actually the reason i went to fent, they only carry it- no oxy no ambien, no benzos, but for some insane reason their pharmacies have the patch. I can;t eat as I ween down or sleep its awful. Also I have a 2 year old and i hate myself for getting hooked again. during these horrible wd i force myself to take care of her as best i can, thank god i do have a nanny to help me. Should I try and start wearing them and then ween down or just ween down off cheeking bc wd is going to suck either way. Also, my friend is mailing me some oxy to help the wd, and luckily i have some xanax and seroquel i brought with me when i moved here. any advice or anyone else withdrawaling let me know.
Agreed, the medical community is numb when it comes to support. I have checked and researched all the web sites and they were not very helpful. There was a lot of fear I read about on this fentanyl withdrawal and the side effects were horrible from all that I read. Yes it did scare me but the fear of what I looked like and what this was doing to the people around me, scared me even more. That is what gave me the guts to do this. I saw no other choice. I am not terminal, just have a lot of pain issues due to my DJD/DDD disease but I need the proper doctor to address these issues and now I know what to do. I have been clean over one month and still hit areas of side effects but I know these are the side effects of my system cleaning itself out. I am feeling much better mentally, more active, have an appetite, focused on the day ahead, and want to do things instead of just staying in bed sleeping because I am in pain. I have a lot to catch up on in my life now and have the focus to want to do that.
It is nice to be able to think clearly again and make my choices of what I want to do with the day ahead, instead of being in bed all the time.
It takes a lot of mental strength to go through this but I have been through a lot in my life time. I have survived a lot of pain and misery, counseling. and anger management. I have put myself in a new perspective each day reminding myself of the accomplishments I can do. I never expected to see myself live this long with all the pain and misery I have been through. I was waiting for the time when the doctors would tell me there was nothing more for me that they could do. Somehow that never happened and I am very thankful that I have made it to this point beyond my expectations and I am not asking any questions as to why. I just know there is a purpose for all that I have gone through, survived and made it to this point so from here it is just looking forward to what I can accomplish and thankful that I have make it to this point.
I have outlived all my family and am the only one left which I find interesting. I have no children, keep a reclusive life by choice, and have the best caregiver in the world that has helped me through this. Now I have to be aware of what doctors to trust keep up with the research, education and leaning experience and MAYBE ONE DAY, WRITE A BOOK ...entitled 'Don't let this happen to you"...!
It is nice to be able to think clearly again and make my choices of what I want to do with the day ahead, instead of being in bed all the time.
It takes a lot of mental strength to go through this but I have been through a lot in my life time. I have survived a lot of pain and misery, counseling. and anger management. I have put myself in a new perspective each day reminding myself of the accomplishments I can do. I never expected to see myself live this long with all the pain and misery I have been through. I was waiting for the time when the doctors would tell me there was nothing more for me that they could do. Somehow that never happened and I am very thankful that I have made it to this point beyond my expectations and I am not asking any questions as to why. I just know there is a purpose for all that I have gone through, survived and made it to this point so from here it is just looking forward to what I can accomplish and thankful that I have make it to this point.
I have outlived all my family and am the only one left which I find interesting. I have no children, keep a reclusive life by choice, and have the best caregiver in the world that has helped me through this. Now I have to be aware of what doctors to trust keep up with the research, education and leaning experience and MAYBE ONE DAY, WRITE A BOOK ...entitled 'Don't let this happen to you"...!
Thanks for the support. Yes you are correct when the doctors want to run tests WHILE you are going through withdrawal. Sometimes they want to run tests while you are on the drug and find some stupid reason why you are reacting the way you are. At any rate, I found that I was having too many problems with all these drugs in my system and had to do this for myself after loosing so much weight. Of course my doctor gave me medication to increase my appetite but your body does not respond when you have that many drugs in your system. When the FEAR of what I looked like and what I was doing to the people around me who care for me, kicked in, I just chose to stop these drugs cold turkey and it was the FEAR of what this was doing to me that gave me the incentive.
It is now July 17th and I am clean over one month of all the drugs in my system and I do feel better. Hit a little depression stage but forgot that is part of the process. Each day gets better and I can feel it. I am more active by choice, clearer thinking, want to eat, have put on weight again and although the pain is off and on, I will trust my orthopedic surgeon and new pain management team for answers. My family doctor was only trying to accommodate my pain issues because he understands my history. This area is not his specialty but he was trying to help my pain issues and although I am mad at him (without telling him), I advised him of what I am doing and he has accommodated me with sleeping medication which has helped to a point. I will advise him on my next visit of what I had to do and how I had to help myself.
The medical community is cruel to make people go through this without any advise. Fentanyl is a very strong medication and although I have read up on it, it had too many side effects to my system and there is not enough information about that with the fentanyl side effects. That is horrible and the medical community should be shamed for that. It is mentioned that the fentanyl is mostly given to terminal patients but now I can understand why it kills them. It shuts down a lot of your system that you are not aware of at the time. This drug dulls the senses and keeps the mind numb but not the pain. I learned a lot about what this medication does and will never take it again unless I am terminal and that is long time to come.
I have seen people on a morphine drip for end of life purposes and that is more humane then the fentanyl.
At any rate, I am doing much better and proud I kicked this stuff. I will build my body back up to what it is supposed to be and be proud that I did it and advise anyone who uses this fentanyl patch of the dangers it presents and hope the medical community is watching! Thanks for the thoughts and caring. It can be done with fear and that is what worked for me.
It is now July 17th and I am clean over one month of all the drugs in my system and I do feel better. Hit a little depression stage but forgot that is part of the process. Each day gets better and I can feel it. I am more active by choice, clearer thinking, want to eat, have put on weight again and although the pain is off and on, I will trust my orthopedic surgeon and new pain management team for answers. My family doctor was only trying to accommodate my pain issues because he understands my history. This area is not his specialty but he was trying to help my pain issues and although I am mad at him (without telling him), I advised him of what I am doing and he has accommodated me with sleeping medication which has helped to a point. I will advise him on my next visit of what I had to do and how I had to help myself.
The medical community is cruel to make people go through this without any advise. Fentanyl is a very strong medication and although I have read up on it, it had too many side effects to my system and there is not enough information about that with the fentanyl side effects. That is horrible and the medical community should be shamed for that. It is mentioned that the fentanyl is mostly given to terminal patients but now I can understand why it kills them. It shuts down a lot of your system that you are not aware of at the time. This drug dulls the senses and keeps the mind numb but not the pain. I learned a lot about what this medication does and will never take it again unless I am terminal and that is long time to come.
I have seen people on a morphine drip for end of life purposes and that is more humane then the fentanyl.
At any rate, I am doing much better and proud I kicked this stuff. I will build my body back up to what it is supposed to be and be proud that I did it and advise anyone who uses this fentanyl patch of the dangers it presents and hope the medical community is watching! Thanks for the thoughts and caring. It can be done with fear and that is what worked for me.
please just take it as any other opiate when it comes to WD.
You can do it, and I am with you, the med community can really s**k when it comes to dealing with this. My respirations were so low, and the idiot was going to send me for all kinds of breathing tests lung tests, ugh, and here, it was the opiates, duh. I din't know, but the doc should have. but anyway, take it one day at a time, you should be feeling much better very soon.
hugs,
Lily
You can do it, and I am with you, the med community can really s**k when it comes to dealing with this. My respirations were so low, and the idiot was going to send me for all kinds of breathing tests lung tests, ugh, and here, it was the opiates, duh. I din't know, but the doc should have. but anyway, take it one day at a time, you should be feeling much better very soon.
hugs,
Lily
I actually had great support coming off of fentanyl from my pain doc. He switched me to an oral medication and tapered me from there- it was still awful and I eventually jumped c/t because I couldn't handle tapering....But that was me not the docs. This being said, I am in Canada so...
I commend you for your clean time and wish you all the happiness in the world!
I commend you for your clean time and wish you all the happiness in the world!
It's really criminal there's no real support coming off Fentanyl. It's a very hard drug to come off. i tapered and it was horrendous. I can't imagine doing it CT.
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