I am in a similar situation. I have been dx with about 6 different AI conditions including T!D, Hashimoto's, pyoderma gangrenosum, Crohn's and a few others. I have been trying to sort it out for 25 years, all the while new AI conditions being added to my list. I have only seen a rheum. once, and have been waiting for over 7 months trying to get in with a new one since the one I saw stopped seeing patients. It takes a long time and is frustrating. Most of the people on the message boards have similar stories. Do Not give up. When a doc says you are depressed, look for a new doc. I know that is easy to say and hard in reality; but with AI the medical field likes to blame the patient. Keep trying. If I get any new answers I will post again to say what worked for me. Hopefully others with similar scenarios will also add any info they have on your post. In the meantime, try to rest and reduce stress as much as possible. Your GF diet will help you -- cutting out things like preservatives and following the anti-inflammatory diets can sometimes help. Keep active but gently active -- a great Endo I saw in the past recommended modified pregnancy yoga or gentle swimming and stretching and those seem to be helpful and keep you from getting more stiff and sore. Arm yourself with info and share it with your family so that they will try to be understanding. Remember to ignore doctors who are dismissive -- don't let them get you down because a persons opinion only matters if it is correct! Remember, a flare is bad but it will reduce and get better, too. Try to find something you love to do in the meantime that is easier on your health and can be shared with your spouse. It is okay to admit that flares are tough -- you will improve and it will make you enjoy life outside a flare even more. Kids are resilient and will be proud of their tough-and-tender Mom. Stay strong and as healthy as possible in the meantime, and please post when you find things that help you improve or your dx comes through! Best Wishes!
Hi. I have been to;d for years that my positive ANA with several diff patters are not that high. They were 1.40. I am guessing that's why they may not rush you. Past few years my level is up 1.85. I am living an awful life, 27/7. I give up on local Dr's, trying to find hospital.
What state do you live in because I never heard of waiting a year to see a rheumatologist. Maybe you need to go to the nearest city.