The closest diagnosis I can think of with your symptoms is Mixed Connective Tissue Disease (MCTD). MCTD is liked to the gene HLA-DR4 (same gene seen with type 1 diabetes) and a listed trigger for MCTD is silica which is a listed hazard at oil rigs. Something to consider anyway.
High Ribonucleoprotein (RNP) indicates MCTD. A Rheumatologist would be worth seeing for a full evaluation and blood work up. You can have a negative ANA with a connective tissue disease. It might not be common but it is still possible. And while low white blood cells count is usually seen, I've read a case study of someone with a few symptoms of connective tissue disease with a high white blood cell count with negative ANA and was diagnosed with Undifferentiated Connective Tissue Disease (UCTD).
UCTD is if you don't meet the criteria for one of the well defined connective tissue diseases and may have a couple of the symptoms seen in one or more of the various connective tissue diseases but not have enough to make the diagnosis. The lab tests may even be negative with UCTD.
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Excerpt from Cedars-Sinai - Mixed Connective Tissue Disease...
"When symptoms of Mixed Connective Tissue Disease first appear, they may suggest that the person affected has any one of several rheumatic diseases. However, when a person has mixed connective tissue disorder, the symptoms aren't as severe or as widespread as they would be if the person has lupus, scleroderma, rheumatoid arthritis or other rheumatic disorder.
This condition has many symptoms, including:
Pain in two or more joints. Almost all persons with mixed connective tissue disease have this symptom. Three out of four persons with the condition have arthritis and may have the swollen, deformed joints of rheumatoid arthritis.
Raynaud's phenomenon. This symptom may appear years before any other.
Skin changes. These can be like those of lupus or red patches over the knuckles, violet discolorations of the eyelids, loss of hair over the body and abnormal opening up (dilation) of the capillaries of the hands and face that may form a tumor
Swollen hands. This is the most common symptom. With time, the fingers look more and more like sausages.
Muscle weakness. There may sometimes also be tenderness.
Difficulty swallowing and keeping food in the stomach.
Loss of sensation in the nerves of the face and head.
Lung disorders. Nearly 80% of the people with mixed connective tissue disease have some involvement of the lungs. Symptoms can include inflammation of the lining that covers the lungs and the inside of the chest, difficulty breathing or pulmonary hypertension.
Kidney disease. Only about one out of every 10 patients has this symptom, which is often mild. In some cases, however, it can become life threatening."
Thanks for the reply..
ok that sounds quite familiar.. how would that be treated.. steriods?
im still not sure how to explain the thrush... its in my mounth and on my penis.. i've never had it before and have spoke to my wife at home.. she hasnt had it but is going to use a duo just to be sure... im concerned that my immune system must be weak from something.
Il mention to my doctor about the connective tissue concept.. he said that because my ANA was negative and WBC elevated then it cant be anything rhumatic or connective tissue related.
Excerpt from Patient UK's article Mixed Connective Tissue Disease....
"Mixed connective tissue disease (MCTD) must be suspected in any child presenting with Raynaud's phenomenon. Patients may also present with any combination of the following signs and symptoms:
Lethargy.
Fever.
Polyarthritis.
Rash, vasculitic, petechial or raised purpuric.
Telangiectasia.
Lymphadenopathy.
Alopecia.
Tight skin and/or 'sausage shaped' fingers.
Dysphagia (probably related to autoimmune modulated effects on the oesophageal musculature).[6]
Epigastric pain and/or tenderness.
Pleuritic chest pain.
Systolic and/or diastolic heart failure.[7]
Pericardial rub.
Muscle weakness.
Trigeminal neuralgia.
Sensorineural deafness.[8]
Subcutaneous calcification.[9]"
Epigastric pain is localized to the region of the upper abdomen immediately below the ribs and a petechiae are little red dots that commonly appear in clusters and may look like a rash - petechial rash.
also today after checking my entire body I found dark brown patches in a few places... under my armpits.. the web of my left hand.. on my left leg and on my belly.. I dont know if this is significant but my brother has addisons.. could it be that..
the doctor just dismissed it and said addisons is really rare... should i push for more testing?
something is causing my pain and im really fed up with the NHS...all I get is.. "oh..ok thats strange.. im not sure"... been trying for 6 months now to get some sort of refferal
ok so I am definately having a lot of epigastric pain!.. and the rash does look like petechiae... I was worried about leukemia when the rash first came up as my granmother died suddenly when she was 35 from acute myloid leukemia
A low immune system means you are more vunerable to infections including a yeast infection. It could also be due to lower stomach acid as well since autoimmune diseases are linked to low hydrocholoric acid.
MCTD is treated with corticosteroids. Milder forms can be controlled with nonsteroidal anti-inflammatory drugs (NSAIDs) such as aspirin, antimalarial drugs or very low doses of corticosteroids.
Just to add, I was told I couldn't possibly have autoimmune pernicious anaemia by two doctors because I had normal blood cells. I demanded the antibody tests as I was very ill and I was convinced I had the condition. My labs came back positive.
Ok thanks for your help... I guess tge best thing to do would be to push for referral to a ruemetologist?
I've read Addison's can cause epigastric pain too actually. With a family history and some of your symptoms also listed under adrenal insufficiency, it's worth ruling out that condition for sure. I'm not a doctor but if they haven't given you a diagnosis by now it's time to see a specialist.
Wow, sorry to hear you are going through all this!
I am pretty sure a candida infection gone awry (throughout your systems) could cause almost all your symptoms but the thing with your blood vessels breaking easily...not sure about that one. A fungal infection or candida problem would have been made worse not better by an antibiotic. Which antibiotic were you put on and for how long? Did your problem get worse with it? A high sugar diet would be making it all worse, as well.
Anyway, I am not a professional, just another person who has suffered with health problems that have gone undiagnosed.
The two other things that came to my mind while reading your post are:
1) a kidney problem can cause hip pain in some folks when it's gone without being detected...and then it would also effect the body's ability to clean out waste and cause other toxic system issues. But didn't you say they checked all your numbers for organ functions?
and
2) Can you recall ANYTHING out of your norm that you were around or exposed to when all this began? ...any changes in life style, diet, etc...? Did it all start when you got on the rig?
I hope you are able to get adequate medical attention and get some answers.
You are in my prayers for a resolution and comfort.
Rhonda
Thanks a lot rhona... My kidney and liver function were normal.. Have not been exposed to anything new that i know of. I was on ciprofloxacin for a month ... 1gram a day.
Sorry i called you rhona... Thanks rhonda! Do you know if cabdida could cause joint pain? Also my tounge has had a yellow coat for as long as i can remember.. I brush it off every day...could that be related?.. I have cut out sugar
the red joints on my fingers look like they are changing a little bit.. today they are more dark than red.. its the joint nearest the fingernail on all my fingers.. the skin over the joint looks kind of reddish brown.. could this be hyperpigmentation rather than inflamed joints?
my fingers look almost exactly like this but the discolouration is darker and the joints dont look swollen
http://health-fts.blogspot.co.uk/2012/04/rheumatoid-arthritis.html
or it could actually be Acanthosis nigricans?.. can I upload a picture on here (i dont know if you can do that)
looking at these pictures im pretty sure its actually Acanthosis nigricans
im reading that a sudden onset of Acanthosis nigricans often accompanies joint pain and is a sign of cancer.. especially stomach or colon or liver cancer..
I have a hiatal hernia and had treatment for helibactor pylori in the past,... I suffer from terrible acid reflux and have done for years.. in the past few months it has been much worse but i ignored it.. its only reflux.. im used to it.
oh dear...
im gonna an edoscopy done asap and a colonoscopy as I also had all that blood in my stool...
il speak to the doctor as soon as I get back...
seems to fit
Hi again. Yes you can upload photos online your medhelp page. I have hyperpigmentation myself. My reasons include vitamin B12 deficiency and acanthosis nigricans (due to severe insulin resistance). There isn't any redness involved with acanthosis nigricans though.
My mother no longer suffers severe GERD/LPR since stopping acid blocker nexium and starting betaine HCI with pepsin supplements (to increase stomach acid) and digestive enzyme supplements (to help with digestion). She also has a hiatus hernia but these supplements still prevent acid reflux.
She had numerous symptoms of not enough stomach acid but included severe fungal infections. She failed the baking soda test with flying colours. Took an hour to burp! I posted this stomach acid test on another answer...
http://www.medhelp.org/posts/Vitamins--Supplements/vitamin-mineral-absorption-and-anxiety/show/1723371
"Rarely, yellow tongue may indicate a problem with your liver or gallbladder." -Mayo Clinic.
Yes, candida can cause joint problems, like arthritis if the candida has gotten into them.
Did many of your symptoms actually come on or get worse after the cipro?
Steven,
I just read again over the top description you wrote and it looks like the only symptom you really had BEFORE the rx of cipro was your ab pain, is that right?
Have you looked at the huge range of side effects and complications accompanying cipro? It's kinda crazy. You very well could be suffering complications of that rx...maybe will start getting better soon on it own as your system fights to get rid of whatever the rx left in you...just guessing.
Obviously you do need to try to find out still what's going on.
But reviewing that info up top it looks like much of your stuff may have been brought on by the cipro or made worse by it. Worthy bringing up to doc and re eval of liver and kidney function in case the rx did cause an issue. Good news on that possibility is that you are off it now, right?
Are you drinking plenty of water?
Also continuing to address the original mystery ab pain w/ imaging or colonoscopy, and yes, you should get your reflux under control now so your tummy and esophagus can have a break..
Was the original pain it in, near, or related to your groin? Could you have a hernia? (of course I am now connecting with my own experience as I went years and years w/o someone figuring out that I had a hernia).
I'd almost bet (but I don't gamble) that if most of your symptoms came on AFTER starting the cipro that much of what you are experiencing either came from that or was made worse by it.
If possible fungal/candida and can't get to doc there are certain things you can do to stop feeding it, one you've already done: stopped eating sugar. That's hard to do! It's in almost everything unless you eat whole,non fruit foods. But garlic and coconut oil both have anti-fungal properties, topically and internally FYI
http://blog.sterishoe.com/toenail-fungus-treatments/10-foods-for-an-antifungal-diet/
Again I am not a professional, if there is something very safe we can do like food choices to help a situation...WHY NOT try it, right? It can't hurt.
Keeping you in prayer and hoping you begin to see improvements very soon. It can be so stressful to not know what is going on.
Blessings!
Rhonda
P.S.
yeast infections/fungal infections also goes upper gastro issues like increased reflux and indigestion, which really can clear up quite nicely once the candidas or fungus is under control.
So many things, including the stress of unknown illness, can cause our digestive system to go whacky. Stress, coffee, processed foods, chocolate, too many oranges, etc can ALL cause the lower esoph sphincter to stay open and not keep the acid where it is supposed to stay (in the stomach)...it is rarely really too much acid as a cause...the acid we need and it is just not being held into it's intended home, usually.
check out this link showing ALL the crazy side effects of the cipro. Have another doc make sure your prostate is ok (maybe they were wrong about enlarged??? and your intestine are ok too, no hernia, no polyps etc w/colonsocopy) but I find this list here VERY interesting.... http://www.mayoclinic.org/drugs-supplements/ciprofloxacin-oral-route/side-effects/drg-20072288
yeah im off the cipro now... i think you might be right and most of my symtoms could be a reaction to the cipro. Im going to speak to my doctor about it next week... he didnt mention anything about side effects and there was nothing about joint pain in the insert... all it said was that this antibiotic can cause C-DIFF
right, but did you read the link and what can really happen? I mean if we read the real deal or someone tells us BEFORE we take some of these things we MIGHT NOT even take em. Anyway, even if joint pain weren't a side effect listed there is always a possibility of either a candida in the joints or basic inflammation being caused by something whether it be illness or side effect.
It is easy to think that everything we are experiencing is all caused by one thing or all related to one illness but sometimes it can be a couple different things going on a the same time....I know from first hand experience, LOL, I have been known to totally freak myself out...but all in all it turns out to be a good thing to be persistent in getting answers...NO DOUBT. Hang in there man!
For sure rhonda... Il be fine just have to get that doctor of his lazy *** so he can refer me to someone who can actually give some answers... I see you like the waves... Whats the surf like over there at the moment... Here in scotland we get some good surf but the snowboarding is better ;-) supposed to be taking my kids up the hill next saturday but i think i might struggle lol x
It's winter here right now so the waves would be very cold LOL . And we have several winter storms coming through back to back here on the east coast USA so the waves were pretty crazy looking on the photos friends have shared. I spend summer there, where the pic is taken and I am presently about 2 and 1/2 hours inland of the beach. We just had a bunch of snow drop on us, a little more than the area is regularly accustomed to....so snowboarding would be a better choice right now where I am also :)
Sounds like you might wanna take it easy for a bit, though, huh? The kids need there dad to get healthy :) and then you could have at it! It's good though, it sounds like you have access to your family and docs, I was thinking you were literally 'out' somewhere stationed and unable to get to adequate help.
Once again, blessings!