Aa
Could this be MS?
Could this be MS, or another autoimmune disorder. Or even a vascular problem... My symptoms began a year and a half ago with transient monocular vision loss of my left eye upon waking. It happend 4 times within a few months, and always happened upon waking from a nap or longer sleep. I began to have some eye pain as well. I had a negative CT scan in ER, and no findings after seeing a neuro-opthamologist. It went away for a while. About a year later I had a few more episodes, followed by some numbness and tingling on the left side of my body. I thought maybe I was so scared that I was imagining it, but it was so terrifying I went to the ER and was referred to a Neurologist. I had a regular MRI, without contrast, and it was negative. It's been several months, and no more symptoms other than some eye pain. This does not seem normal, yet there have been no findings. Could it be ischemic, vascular etc. Should I have more tests to look at the arteries, or a different type of MS? Also, could it still be MS and no lesions have shown up yet? I'm scared of having something, and not being treated for it as it worsens. I do have a history of autoimmune problems. I tested positive for RA, yet strangely it was transient. I asked the doctor to test me for human parvo virus because I read that it is the only thing that can cause a transient positive RA factor. I had meningitis 10 years ago. I have interstitial cystitis. I often have joint pain and swelling, yet no positive tests to say what it is. My sed rate isn't high, negative ANA.. What could be happening to me? The only other thing I can think of is disc problems. Two ruptured discs, lumbar. One surgery, and need another. I'm worried about MS, even though everything has been negative.
Hi soonerfan255.
There could be a correlation between amaurosis fugax and your cerebellar malformation, however it very difficult to establish this correlation with most diagnostic testing methods available.
You may want to go to the "tuberose" website,
(Information for Transformation.This self-help alternative medicine site offers extensive educational information on the topics of natural healing, holistic and biological dentistry, herbal medicine, cleansing and detoxification, heavy metal detox, diet, nutrition, weight loss, tried and tested health equipment and products available for the natural management of health.)
and check the article on Systemic Enzymes as well as the information on Energetic Anatomy. Note: The latter is a rather long download.
Hope you find it helpful.
Wish you well.
Niko
There could be a correlation between amaurosis fugax and your cerebellar malformation, however it very difficult to establish this correlation with most diagnostic testing methods available.
You may want to go to the "tuberose" website,
(Information for Transformation.This self-help alternative medicine site offers extensive educational information on the topics of natural healing, holistic and biological dentistry, herbal medicine, cleansing and detoxification, heavy metal detox, diet, nutrition, weight loss, tried and tested health equipment and products available for the natural management of health.)
and check the article on Systemic Enzymes as well as the information on Energetic Anatomy. Note: The latter is a rather long download.
Hope you find it helpful.
Wish you well.
Niko
Re vision problems...I have vision issues, that come and go, floaters, reduced visibility at times, kinda goes black at times, but my husband is the one with the diagnosis of a rare eye disorder, his vision suddenly started to go bad and this was all before any of the diagnoses of other problems. He was eventually diagnosed with a rare eye disorder usually only found in people with diabetes. Now that we have his new diagnosis it all makes sense, as while he does not "have" diabetes, he has damage to pancreas due to iron overload, and nodules. Also, we found out that angioid streaks are often overlooked or not symptomatic in some people but in others they cause further damage to Bruch's membrane, causing retinal and macular damage, like hemorrhaging, as in the case of my husband, AND are found in people with hemochromatosis!!! So I came across all this investigating his eye diagnosis, AFTER we received his iron overload diagnosis (HHC). That was one of the first things I looked up when we found out, and lo and behold...also these angioid streaks are found in people with dry macular degeneration, and his grandmother and uncle both have this. Well, his grandma died, but uncle still alive...anyway, there are so many things attached to iron as source...my husband had pain behind eye, pressure, vision distortion, and felt like he had stuff under his eyelids, like air bubbles or some FOD...foreign object debris.
Hope you can get some resolutions...think back to your family history and background...this is a good clue for systemic disease and complications and or death from common ailments that no one thought anything of.
Take care...
Hope you can get some resolutions...think back to your family history and background...this is a good clue for systemic disease and complications and or death from common ailments that no one thought anything of.
Take care...
I've had my carotids checked as well. The only thing that showed up on my brain MRI is some sort of cerebellar malformation where it sinks down slightly. I'm wondering if there could be a correlation between amaurosis fugax and my cerebellar malformation? The neurologists and my PCP seem to have ruled out everything else. I'm going to ask for some bloodwork. I don't know whet else to check.
Thank you for the info. I just want to know what is going on with my body so I can treat it and feel better. When you said u have had vision problems, did u have eye pain and vision loss in one eye? I've gotten used to the joint pain, body aches, fatigue, and weakness. The eye thing scares me the most, along with that ER incident from the iron. I'm assuming it was the iron anyway. Thanks again.
No problem, I too have a terrible sciatic pain for as long as I can remember. It is not pleasant. I have also been told that I have lumbar facet syndrome...I am now wondering about that diagnosis, as I know that iron overload affects the vertebral joints among the other joints in the body. Sorry to hear all the trouble you've had and I hope you get some answers soon. The heart is the second most affected organ after the liver in this disorder, causing heart flutter, palpitations, and heart damage to the electrical system.
Take care.
Take care.
Continued...the doctor said it too would eventually rupture. He was correct as it did recently. The pain from this one is way worse. Ive had constant sciatic pain every day for months. I didn't have insurance when it first happened, is why I haven't had surgery. My fitness hes been greatly affected from the sciatic pain. I cant even walk or stand longer than a few minutes if that. I have tried to eat a healthy diet because food affects the way I feel. I have lost a lot of my strength and endurance. Being sedentary causes all of my other symptoms to worsen, plus takes the quality out of my life. This is why I feel I need to have a second laminectomy/discectomy. Thanks for your input.
Regarding my ruptured discs... while I was in the hospital for meningitis I began having back pain. I'd never had any back problems prior to this, other than muscle strain. I thought the pain had something to do with either the meningitis or the lumbar puncture for the spinal tap. It hurt enough for me to ask my doctor about it while I was still hospitalized. He said if it still hurt after I was discharged then we would get sn MRI. I was 27 then. I had my first laminectomy/discectomy at L4-L5 due to s large rupture. I went to several neurosurgeons to get more than one opinion before I had it. That was about 10 years before my second rupture that will Aldo require surgery. I healed very quickly from the first surgery, and I haven't had any problems from that one. The doctot back then said I had a bulging discst L5-S1
Yes, the treatment is phlebotomy, blood letting, usually once a week, depending on your iron levels, and be prepared for your dr to not know or understand the early symptoms or even agree with testing for it...we went over 10 years without a diagnosis, and it was missed the entire time. It was found by accident and only because of awareness of it, I was tested as we have two young children, I am 42, and I have found my own iron overload but ealry enough I don not have major damage, although I have been symptomatic for many years. I can tell you a few lightbulbs went off for me when I researched the condition for my husband!
Get all copies of your blood tests, it's good to keep them and know what your levels are and how your body changes over time, and you'll also know what they mean, the optimal levels, reference ranges are often not sensitive enough to aid drs to early detection of some problems...you'll soon learn the terminology, and if your blood work does not show the testing for iron overload, (tests you need are ferritin, transferrin saturation%, TIBC and serum iron...)as it is not routine, then you have reason to ask for it from your dr to rule it out at least.
Take care...
Get all copies of your blood tests, it's good to keep them and know what your levels are and how your body changes over time, and you'll also know what they mean, the optimal levels, reference ranges are often not sensitive enough to aid drs to early detection of some problems...you'll soon learn the terminology, and if your blood work does not show the testing for iron overload, (tests you need are ferritin, transferrin saturation%, TIBC and serum iron...)as it is not routine, then you have reason to ask for it from your dr to rule it out at least.
Take care...
Oh my goodness. That makes sense and ill tell u why. One night I got to thinking maybe I had low iron or b12. So I took sn iron pill late st night and the next morning st 5am I woke up feeling like I was having a hear attack and/or a stroke. I couldn't breathe and my entire left wide was numb and tingling. It was the worst my symptoms have ever been. The only thing I did different before that was take iron. Ive had b12 without a reaction. I will Sdi my doctor to check those things out. Is there a treatment for it?
Hi there, I just have a suggestion based on your symptoms, vision, and arthritic pain that comes and goes, and no tests showing anything conclusive...
My husband and I suffer from many of the same problems, among others, but the drs missed for over 10 years his genetic disorder called hemochromatosis that causes the body to store excess iron instead of getting rid of it. As the iron levels increase we become more symptomatic, and early signs are arthritis joint pain, swollen and tender joints, vision problems are common, and numbness and tingling pain in various parts of body also common. Chronic fatigue, muscle weakness, all early signs. Did you mention your age? Most women are slow to be diagnosed and load iron more slowly due to monthly periods, so iron is lost during that and childbirth. Symptoms can begin showing earlier, though and docs miss these signs and attribute them to other immune disorders as they match symptoms. If you haven't had your iron levels checked, not the CBC's, get them to check ferritin, transferrin saturation%, TIBC and serum iron.
Iron is toxic heavy metal, and we need so little to have healthy function. even small elevations over time cause damage as they laod onto joints, tissues and organs.
Take care, and keep us posted along the way...
My husband and I suffer from many of the same problems, among others, but the drs missed for over 10 years his genetic disorder called hemochromatosis that causes the body to store excess iron instead of getting rid of it. As the iron levels increase we become more symptomatic, and early signs are arthritis joint pain, swollen and tender joints, vision problems are common, and numbness and tingling pain in various parts of body also common. Chronic fatigue, muscle weakness, all early signs. Did you mention your age? Most women are slow to be diagnosed and load iron more slowly due to monthly periods, so iron is lost during that and childbirth. Symptoms can begin showing earlier, though and docs miss these signs and attribute them to other immune disorders as they match symptoms. If you haven't had your iron levels checked, not the CBC's, get them to check ferritin, transferrin saturation%, TIBC and serum iron.
Iron is toxic heavy metal, and we need so little to have healthy function. even small elevations over time cause damage as they laod onto joints, tissues and organs.
Take care, and keep us posted along the way...
Thank u very much for your reply. I just wrote a long response an accidentally erased it! I will rewrite it soon when I get a moment. Thankful u!
Hey soonerfan555.
Welcome to the forum.
Look into the possibility of Amaurosis Fugax, with a possible cause
being an atherosclerotic ophthalmic or carotid artery ( leading to temporary restriction of blood flow - retinal hypoxia-) or giant cell arteritis.
There are many different causes.
CT scans and MRIs may not be the best options for your diagnosis. You would be better served with a dynamic type of imaging such as a SPECT scan, to my opinion, that shows how blood flows. The neuro-ophthalmologist or the neurologist should have asked for something like this. Maybe it's a matter of costs.
As far as your RA test results go, not only they're not conclusive,
they could be very flawed!
Take a look at my Nov.1st reply to TamaraBaybee, to give you an idea.
My conclusions are based on real studies. If you need any further details send me a message.
The human parvovirus and MS suspicion cannot be supported at this time according to your symptom presentation.
On the other hand, your surgery could be linked to your issues.
Any such invasive procedure, being a major stress-or, would be a potential
trigger for an underlying pathogenic infection, to get activated.
Can you offer some more details regarding your 2 ruptured lumbar discs
and the surgery?
Wishing you well.
Niko
P.S. What are your favourite foods and what is your current fitness level?
Welcome to the forum.
Look into the possibility of Amaurosis Fugax, with a possible cause
being an atherosclerotic ophthalmic or carotid artery ( leading to temporary restriction of blood flow - retinal hypoxia-) or giant cell arteritis.
There are many different causes.
CT scans and MRIs may not be the best options for your diagnosis. You would be better served with a dynamic type of imaging such as a SPECT scan, to my opinion, that shows how blood flows. The neuro-ophthalmologist or the neurologist should have asked for something like this. Maybe it's a matter of costs.
As far as your RA test results go, not only they're not conclusive,
they could be very flawed!
Take a look at my Nov.1st reply to TamaraBaybee, to give you an idea.
My conclusions are based on real studies. If you need any further details send me a message.
The human parvovirus and MS suspicion cannot be supported at this time according to your symptom presentation.
On the other hand, your surgery could be linked to your issues.
Any such invasive procedure, being a major stress-or, would be a potential
trigger for an underlying pathogenic infection, to get activated.
Can you offer some more details regarding your 2 ruptured lumbar discs
and the surgery?
Wishing you well.
Niko
P.S. What are your favourite foods and what is your current fitness level?
Have an Answer?
You are reading content posted in the Autoimmune Disorders Community
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
