Ms

[old1]

I have recurring hypothermia. It worsens when I am on prednisone.  I have damage (I do not know what kind) to my pituitary and am not producing growth hormone.  Normally I have this a few times (4-10) a year, but when I am on large doses of prednisone I have it daily.  I am a type I diabetic (39 years), and when I have the hypothermia my BG is usually in the 55-60 range.  I did an experiment one night, and stayed up all night when this was an almost daily occurance. I ate and checked my BG till about 4AM, and consumed just over 100g carb.  In the morning my BG was about where I wanted it. The endo then had me eat 100g of carb as a 'snack', and tapered it as the prednisone was tapered. He was a fellow and left at the end of the year.  Since then I have had endo's and my primary care doctor have either told me they don't believe me, it is munchousen and I want attention,  or to just control my BG 'better'. It is terrifying when it happens, and I worry that it is quite dangerous. I have had low BG untold times, but it is not like the total disorientation with the hypothermia. I know that whenever a person goes hypothermic their BG falls, and due to the riduclous amount of carbs I have to consume when it is happening daily, and that it happens constantly when I am on prednisone, I don't believe it is just 'poor control'. I am concerned that I might be on prednisone again fairly soon, and would like some advice.  The reasons I have been on prednisone include sarcoidosis and autoimmune hemolytic anemia and ITP. I also have CLL and my IGG/IGA/IGM are low. For years I have been diagnosed with Mixed Connective Tissue Disease, but recently my ANA has been normal, after 15 years of being elevated. I consider hypothermia an oral temp less than 94; they have been as low as 89. (I live alone and cannot take my own core temp) I have wondered if the pituitary and possibly other glands have been damaged by the sarcoidosis, and they are better on the prednisone. But I don't know how to approach what type of doctor for help.

[ewford]

  Contact ILADS as your symptoms COULD be Lyme related.SArco, MCTD, AHA and ITP are all Lyme symptoms.  Contact www.  ilads. org    to find a doctor near you.  This can all be related to an intracellular bacterial chronic infection.