miserable

[karri144]

I just want to say that i am miserable. i am in so much pain. im going to see a rheumy for the first time tomorrow. i had ana testing done and it came back low positive. they nevr told me the numbers.  ive never been so anxious before. i just want answers. for so long ive been told this is all in ym head. every joint in my body HURTS. my muscles HURT. all i want to do is sleep...all the time. im depressed as ever and i just want someone to remind me that there is hope. im so sick of this.

[paleviolet]

Just came across this forum which is now over two years old.

Very happy to hear Plaquenil is working well for you!

Asking you, and everyone else who is on that drug, to go for reputable vision testing twice a year, without fail.  Because the drug is so long acting, if/when a problem is discovered (and the medication stopped), damage to eyesight can still continue.  Ideally, the patient should have a baseline test before starting Plaquenil, and followup tests performed every 6 months after that.  Although vision problems are not common, they can be devastating.  Please do not wait years before going for an eye exam.

Happy 2012 to all!

[PlateletGal]

My chiropractor believes that fibromyalgia is an autoimmune condition. You know I think that the medical community is going to be changing their view of autoimmune conditions and these syndromes.... but it make take a few more years.

I hope you guys enjoyed the session with Dr. Nicolson.

Best,

PlateletGal

[itsallinmyhead1969]

from the queen of "itsallinmyhead". dont ever think that. only you know your body. be that squeky wheel. im fixing to myself. im tired of being ignored. im tired of this awful pain. best of luck and many hugs...amy

[cino]

Aside from having severe fibromyalgia for many years and in constant pain 24/7 with that, and having 7 herniated discs pressing on nerves and being in contact pain with that, I break out in terrible hives for 6 months out of the year. I have been on prednisone for the hives and hospitlized with huge welts, but had to go off the prednison as it put my blood pressure up to 220/120.  The hives are unbearable. Antihistamines dont seem to work much, and if they do, it is something I need to take on a daily & nightly basis. However, I have found that my air conditioner that dehumidifies the air is a good thing. The humidity adds to my misery, so being in a cool non humid environment helps me. Let me know if you find anything.

[PlateletGal]

They have done a lot more research on both CFS and fibromyalgia and fortunately, there is a lab test that can apparently make the diagnosis for both of these conditions. The national lab performing this test is Red Labs USA --- they have a website if anyone is interested. The test is still considered a "research" lab test, but hopefully that will change soon.

What fibromyalgia, CFS, lyme and autoimmune conditions all have in common is that they are Th1 inflammatory conditions and pathogens play a critical role. For more information, you can google, "The Roadback Foundation".

Best,

PlateletGal

[zmombomb]

I read on the net somewhere that fibromyalgia is the diagnosis they give when they can't figure out what's wrong with you.  It's a catch all that means nothing.  I have been through the bone and muscle pain for 9 years and was told it was from depression, and from stress.  Only one doctor believed it was Lupus.  After my stepson was killed in Iraq, they thought the depression was making it worse.  It's always a possibility, but I remember hurting before he died.  FINALLY, I found a rheumatologist that did different blood tests and she said I have Lupus, Sjogren's Syndrome, and Autoimmune Hepatitis.  She gave me Plaquenil and I have to say it's a GOD SEND!!!  I stopped taking my arthritis meds and pain meds, as well as the muscle relaxors!!!  It's awesome.  My stomach is killing me, but I think I will get past that part at some point.  So, hang in there.  See if they will at least give you the Celebrex, or Celebrex and plaquenil together for a couple months.  The celebrex helps within 24 hours.  But after about a year, you'll find it isn't helping anymore and you'll have to stop it for about 2 weeks.  If you aren't on Plaquenil when you stop that, you will HURT and wish you were dead.  Even if the Rheumy doesn't think you have Lupus, ask for the Plaquenil anyway.  Remember, I went nine years.  Finally, I have a true diagnosis!  You will get one also.  One person on here said she kept getting a negative diagnosis and finally---right before a blood test, spent a day or two in the sun (which will make most of us Lupus "victims" hurt and sleep a lot!!!) and it made her blood tests so very positive they couldn't ignore it.  It may be something you'll want to do the day before your blood tests.  My tests have always been very low positive, so low that tthey can be considered negative. !!!  Keep pressuring the doctors for pain meds!  

[karri144]

I hear ya on the hives. Ive had chronic allergies for as long as i can remember. hives is one of my biggest problems. but i saw the rheumy today...he doesnt think i have lupus although i have many symptoms. hes thinking more along the lines of fibromyalgia. this causes chronic pain including joint and muscle pain, poor sleep, rashes, chronic fatigue and very commonly depression, caused by the stress and anxiety of the illness. its caused from an extreme sensitivity in the nervous system to pain and also something about neurotransmitters. they took 11 viles of blood [ i thought i was goiing to die!] and i go back to see him september 3rd for the results. if theyre all negative then the dx will be fibromyalgia. there is no test for it but i guess it makes sense. i am relieved, not as much as i thought i would be, but se la vie [such is life]. thanks for your comment.

[margypops]

There is definatly hope so hang in there and you will get some answers, I have found some for me today, since Mid May I have had Chronic Urticaria (Hives) I keep on reasearching all day tring to find answers and relief from the burning and itching, well today I have diagnosed that I have Dermagraphism by doing my own Tests on my skin also Pressure Urticaria and Chronic Urticaria, it gave ideas about treatment ,however it did say sometimes this runs its course and one could have it for Years,this was brought on by Dental work in May I also was given Penicilling and took Advil, all could have contributed to0 my getting it. Okay I hera tyou think this is all about her, but we are all suffering something I guess how about you go into your Search Engine and put in the Symptoms, maybe under joint pain, its a start, also if you are depressed or anxious it is not in your Head you can get the Physical symtoms. Hope you get some answers from the Doctor.soon