I've been suffering disabling symptoms for over 18 months and am no closer to being diagnosed. I was 19 years old when I was struck by sudden extreme constant nausea, upper abdominal ache, approx 2 inches above belly button. I went from being extremely active to having literally barely enough energy to make the stairs. I always have very cold feet externally but feel extremely hot to me, dizziness, knawing pain in stomach, heat intolerance, weakness (especially in legs), brain fog, inability to sleep unless I take sleeping tablets.
I initially lost 2 and a half stone in weight, but have managed to start putting some back on by prescription nutritional drinks.
My symptoms are disabling, but doctors I've seen haven't been able to give any kind of diagnosis.
When I gently push down 2 inches above my belly button, where the pain is, I get these really loud gurgling noises from my stomach.
I had a 3 day heart rate variability monitor which showed no parasympathetic activity during the day, and it fluctuates between sympathetic and parasympathetic during sleep.
The possibility of autonomic dysfunction has been mentioned and I'm waiting for a gastric emptying study to see if I have gastroparesis. But would this cause such debilitating symptoms?
Another doctor mentioned the possibility of POTS and Ehlers Danlos???
I've had thyroid tests, tests for Addisons disease, MRCP, brain CT scan, barium meal, various blood tests and an ultrasound, none of which found anything.
I take the strongest anti nausea medication, but nothing works.
Does anyone have similar symptoms or any ideas what this could be?
Would really appreciate any help!