I'm happy to hear you finally have a diagnosis, it must be a relief to finally understand the origin of your symptoms. I too was forced to wonder for a long while before receiving a proper diagnosis. I hope your doctors are helpful in finding an appropriate treatment for you. Let us know how it goes! :)
I'm not sure whether to congratulate you, or apologize for your diagnosis. It's not curable, but I hope you find a treatment that works. I know it's comforting to know what you have, I too had a long search for a proper diagnosis. What medication are you starting with?
hi i forgot to say . i had a weird test done where i had to lie down sit up *4 to see what happens it showed an increase in hr when lying and sitting i think that why they decided it pota along with positive tilt test