Does this sound like pituitary?

[danie17075rm]

I will try to make this as brief as possible even though the story is long.  I am 32.  When I was 21 I tore a ligament in my knee and in an accidental finding in the xray it showed spots on my bones.  The docs worried about bone cancer so I was given a bone scan which showed it was calcium deposits.  I was young, and they told me I was fine so I never though about it again.  A few years after that (a few years before ever getting pregnant) I started to lactate out of one breast.  Again the docs thought it was abnormal so they sent me for a mammogram and ductogram.  Both came out fine. They noticed I might have some hormonal issues, but again no one was concerned or recommended tests so I never even thought to ask more.  My hair was falling out, but my hair is thick, so I didn't think about that either.  I got pregnant when I was 25.  I also was 5 ft 6 and somehow in my 20's I grew to 5ft8.  I had extreme edema and pregnancy induced hypertension.  After having my son I started having heart palps and my hair was falling out in globs.  I found out I had a multinodular goiter.  I was placed on a very low dose of levothyroixin (1/2 of the lowest dose every other day).  When I took more than that it was too much.  Without it, my tsh started to spike.  I was okay on this dose although extremely fatigued.  10 months ago I went hyper for no reason and ended up in the ER because I couldn't breathe and my heart was racing.  I was taken off meds and went hypo.  (When I go hypo though, my free t3 and t4 always seem to stay pretty normal). For the last 10 months I have bounced around between hypo and hyper.  There is no happy medium for me and I can't tolerate drugs.  When my tsh was 3.4 I was given an uptake that showed I took in way too much iodine and my thyroid was hyper (odd since my tsh was 3.4).  Basically I keep feeling hyper although my tsh is opposite of what I feel.  I have periods of heart racing and heart palps. I get hot.  I start shaking.  I have became gluten intolerant in this time.  I have IBS.  I think I am becoming hypoglycemic.  I am on a beta blocker and a recent test showed my calcium at 10 (normal to 10.1) pth 55 and vitamin d was only 11.  This was kind of inappropriate for parathyroid but docs believe it is just a deficiency in D.  I can't take the D without heart racing however.  I have HORRIBLE headaches above my eye brows and the top of my nose now.  I recently developed oral thrush.  My whole body is falling apart.  My endo thinks I have hashimotos toxicosis (I do have high antibodies) and that I need my thyroid out.  I am meeting with a surgeon on May 10.  He told me today that if surgery didn't help my symptoms we would talk about other things.  UMMM that is too late.  My recent test results were:

TSH- 2.84 norm (.3-5.5)
Free T3 2.78   norm (1.9-3.9)
Free t4  .96   norm .76-1.7

I can't sleep at all.  I slept 1 hour last night.  I honestly feel as if I'm dying.  My bp has went up, but the beta blocker does help. Also, all my symptoms are HORRIBLE before my period.  In fact I have had my tsh tested right before my period and it shot up to 17.  I have very bad shortness of breath as well.  Sometimes before I even get out of bed I have to do so slowly.  I get dizzy and if I rush out of bed my heart rate shoots up.  In the hospital while hyper my heart rate was 147.  The beta blocker helps this, but it still has periods of shooting up.  Food seems to make me sick.  I feel nauseous a lot.  My digestive system is a wreck.  I think I have too much hair or a female.  I know I have hormonal issues, but does this seem like thyroid or pituitary?  I don't know anymore.  No one seems to no for sure on anything. Thanks for any help and reading all of this.

[rumpled]

The striae as they are called are a classic symptom but not everyone with Cushing's get them. I got them.

They really need to test all your hormones - it sounds like you need a neuro-endo!

[danie17075rm]

Ahh see that scares me that I will lose mine and it is not even the problem.  I have been studying pituitary issues, and really my issues started with breast milk production!  I also just seen something about stretch marks.  I have HORRIBLE purple stretch marks all over.  In fact my doctor commented on them when I was pregnant because he had never seen such bad ones.  Doesn't everyone get these though, or most people?  I have them on my arms and knees too.  I wrote my doc an email explaining all this and he hasn't wrote me back ugh.

[rumpled]

They did the same to me - I had Cushing's though - blamed the thyroid etc. and I lost mine due to the same, although I temporarily felt better since mine was diseased.

Look up on some of the sites and contact the people as they can direct  you on other tests as well.

[danie17075rm]

Thank you both.  Rupled- I have never had anything pituitary related tested.  My old endo, was the WORST.  He never did anything at all and the new one is okay, but he is just recommending having my thyroid out.  I still believe I need some more testing, because everything is not consistent with me.  Thanks for the input.  I'm gonna bring these issues up with my fam doc and the surgeon and see if one of them might be able to help me.  I will mention the tests you said.  

[rumpled]

A change in height and the bone issues - why has the doctor not investigated acromegaly? have you had IGF-1 and GH tested? Any pituitary MRIs done or other testing done besides the dexa testing?

Your symptoms are pretty consistent with acromegaly - and while you may have a thyroid problem as well, I think, as a layman, your main issue is growth hormone.