Normal Mri?

[feelingfatigued]

Has anyone had a regular mri come back normal then went on to have an abormal mri later which showed a pituitary tumor?

[rumpled]

Yes, I had an MRI the year before I had an MRI that found my tumor.  Looking back, some doctors see the tumor there on that one.

I also was read as having a tumor on the left side for 12 years, and the week before surgery, my pre-op MRI said I had a lesion on the right. That was my first dynamic pituitary MRI.  Surgery revealed I had a prolactinoma on right and the left lesion flattened out and was all over the left.

My symptoms initially were more the prolactinoma related one, lactation etc. then I got more Cushing's symptoms. I was of course told I was fine and the pituitary had nothing to do with it. I was nearly dead by the time of diagnosis with no immune system and forget healing (no diabetes!).  I know I was sick way before they found the tumors.

I know one lady that took 35 years, and pretty much it takes a decade for most. I figure if I can help people test correctly, which held me back a lot, maybe I can help shave some years off.

[feelingfatigued]

Hope you're feeling better soon. I've read a few threads here and you seem to be one of the more active members/giving quite a lot of advice, and have suffered with a pituitary tumor for 12 years before removal right? Just curious, did you have initial mri that was normal? And did you go through periods where your symptoms would settle before getting worse again during all those years?

I've been symptomatic for over 10 years and I have read that people with pituitary tumors can have them for many years before they finally get them treated.

[rumpled]

Sick myself so behind.
Pituitary MRI is different technique than a standard MRI. Also radiologist can miss, or a small one can fall between slices.

Dizzy is more likely a sinus issue IMHO.

[feelingfatigued]

Thanks for replying. Can you elaborate?

In my case, I started to have some strange dizziness a few years ago, neuro did a standard mri, came back normal. Since then I get intermittent dizziness and am in even more pain (pain is always in my eyebrows/eye socket region, not sure where yours is?) and now I am having another mri.

[rumpled]

Yes.