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Pituitary MEN1 and now adrenal insufficiency

I have MEN1.  Symptoms started many many years ago.  I went on Cabergoline in 2004.  Now I am hypopituitary and my adrenals are poofed out..  Not making DHEA, Cortisol, ACTH is low, estrogen, testosterone all low... My endocrine doctor's advice:  get a medic alert bracelet.  Has anyone encountered this?  I am extremely fatigued, have brain fog, everything hurts & flares up, and the weakness is just crazy.  I have to have my Mom open doors for me now. I also have myasthenia gravis.  I have an appointment with a new endocrine doctor in a couple of weeks.
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Avatar universal
COMMUNITY LEADER
I am in your same boat except I don't have MEN. I do joke I have MEN-Jen (my name is Jen) as I had a zillion tumors but not on the right places...

I do have a medic alert bracelet.  You have the option or going to medic alert where they have your data on line and they engrave and the person calls an 800 number or you can get a simple one in the drug store or on line that you can engrave or says "see wallet card". I am not comfortable with someone digging in my wallet so I opted for the medic alert type.

Sorry for delay I am sick.
Avatar universal
I understand Jen.  I see the new endocrine doctor tomorrow ( lucky # 7 ) and will see what he's willing to do to help me get back on track.  I did see some dog tags online I can get engraved.  I have a problem wearing jewelry like bracelets and watches.
Avatar universal
COMMUNITY LEADER
Then look into options like adding something to a shoe, paracord bracelets, and some people have even done tattoos.  I don't know about the last... I don't have any and not sure if it will be noticed.

There are a lot of options now.  I make my own bracelet and use the cheapest emblem of stainless steel. I do have to change it out as I mixed copper, bronze and silver and in summer it looks awful and turns my wrist green when I sweat.  I have had the necklaces and bracelets. It just depends on what is easier.  

Good luck with doc! Post back with news.
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