AVM in Right side of the Pons

[DanetteV]

I was just recently diagnosed with an AVM, which I was told is located in the right side of the Pons. I was told that it was in a place that is inoperable, and basically that was it. I suffer from terrible migraines which my neurologist said is a result of the AVM.  I am basically trying to find out more information about this and what are some options if there are any?

[rumpled]

Just keep in touch with your doctor, as well as find out from him if there are warning symptoms you need to be aware of. I think it is normal to be confused when you are just diagnosed!

Ask to if you need to wear a medic alert bracelet or the like.

[DanetteV]

Thank you for replying.  I just received my reports and they said that mine is
1.1 x 0.9 x 1.3cm and it's located in the right side of the pons.  As I was doing some research today I found out that the pons is only 2.5cm in length.  A friend of mine (whose mother had an avm) said mine is extremely small and nothing to worry about???  I'm just a little confused I guess.

[rumpled]

I posted a link about it in the health-pages (upper right under discussions) that may be helpful to you.
As the doctor probably explained, the brain stem is nothing you want to mess with typically, but I would still shop the MRA around to some specialists. Read up on medical papers and fax your report with a cover letter to some of the doctors and see if you get a bite. There may also be a clinical trial treatment.