Aa
lets settle this once and for all(pit tumors function o ncognition)
as you all know i got an mri done march 2009,and they found a 2mm miroadenoma which theyve done nothing about. anyway,ive noticed my cognition has been declining at an exponentially fast rate. knowing what i know about hoe slow pit tumors grow, i think i might have had this sine i was in the 5th grade. i am 20 now,but i noticed 6th grade i started feeling dumber....needless to say i just got fired from my new job after working 6 shifts cause ididnt know how to peel a banana..sad i know.
anyway,my dad keeps insisting that the neuros are correct,and this tumor isnt whats impairing my functioning. i would like to think this tumor is the source of all my pain so i can find a doctor to remove it..although thats easier said than done obviously.
also what do you guys think about cyberknife? i see nasty sideeffects although my neuro claims it is side effect free.
im ginally going for my mri that ive been putting off.
rumpled im going to st barnabas in livingston lie you suggested. i just say id like an mri done on a 3t machine and id like the method to be dynamic contrast right
anyway,my dad keeps insisting that the neuros are correct,and this tumor isnt whats impairing my functioning. i would like to think this tumor is the source of all my pain so i can find a doctor to remove it..although thats easier said than done obviously.
also what do you guys think about cyberknife? i see nasty sideeffects although my neuro claims it is side effect free.
im ginally going for my mri that ive been putting off.
rumpled im going to st barnabas in livingston lie you suggested. i just say id like an mri done on a 3t machine and id like the method to be dynamic contrast right
Thanks for asking. I have not had any issues that I know of that could be attributed to my cyst. I really do hope they get you figured out....
My thyroid eye disease is getting a lot better, still dry spots on them, but they are getting less painful.
I do have a dr. appt. next week, but I think it is related to getting old, "arthiritis" of the hands.....swollen index finger joints. I don't wake up with them swollen, but as the day goes they become swollen & red & painful to touch the joint area. I did recover from my shoulder surgery that I had back in Jan., pain gone & healed well.
Other than that, no other issues...Thank God..
My thyroid eye disease is getting a lot better, still dry spots on them, but they are getting less painful.
I do have a dr. appt. next week, but I think it is related to getting old, "arthiritis" of the hands.....swollen index finger joints. I don't wake up with them swollen, but as the day goes they become swollen & red & painful to touch the joint area. I did recover from my shoulder surgery that I had back in Jan., pain gone & healed well.
Other than that, no other issues...Thank God..
i get them pre approved...only concern is that they make me do it at a certain facility...this fqacility only has 1.5s and didnt know what dynamic contrast was.
i got my last mri intraveniously is thate dynamic
how have ur symptoms been tote ;)
i got my last mri intraveniously is thate dynamic
how have ur symptoms been tote ;)
Be careful on the MRI you requested of your brain. Just becasue you get it done will NOT mean your insurance will pay for it. If your doctor did not order the brain MRI, your insurance will say you will be responsible for that bill. MRI are very expensive...so be careful & find out if your insurance will cover both MRI's....
Never heard of a colonoscopy/upper endoscopy speeding metabolism- have you had your thyroid function tested since the big weight drop?
is it possible that the colonoscopy/upper endoscopy sped up my metabolism. the last few months ive finally been gaining weight(goood thing)..but i lost some weight on my prep obviiously. however after the colonoscopy ive been trying to gain it back using the same weight gain diet as i used before the procedure...and im losing weight now. i was around 180-185 before the procedure..now im 170-173. ill be pissed if it sped me up
Why I was concerned- you said it wasn't worth mentioning and that doesn't sound like what I've seen of you- it has seemed to me you usually don't hesitate to be forthright about your medical issues. Also- you had posted this about your muscle injuries earlier in the thread:
"by testdeprived , Aug 18, 2010 09:32AM
plus the injruys are from my doing also "
Full lumbar spine is part of your lower spine- five vertabrae make up your lumbar spine. It does not include your neck, which are your cervical vertabrae.
That's great that the 3 Tesla is only 30 minutes away, per mapquest! The neurologist is ignorant if they say you need no follow up imaging for your pituitary tumor and if you had documented proof of that statement, you should report them to the medical board. Y
ou should be able to get a f/up pituitary MRI from any endocrinologist... possibly even a primary care physician if you bring them info from a medical online source they feel is reputable about how you should get f/up pituitary tumor imaging . And you will want to bring info on why 3 Tesla is the way you want to go- how it gives superior imaging quality, important when viewing small areas.
If you feel the injuries to your back are purely muscular and not spinal in nature, why not schedule the pituitary MRI first and schedule the lumbar MRI for a later date. That way you'll be sure and get the pituitary MRI in with your insurance- it should be a slam dunk with your insurance anyway, given your previous record of having a pituitary tumor.
"by testdeprived , Aug 18, 2010 09:32AM
plus the injruys are from my doing also "
Full lumbar spine is part of your lower spine- five vertabrae make up your lumbar spine. It does not include your neck, which are your cervical vertabrae.
That's great that the 3 Tesla is only 30 minutes away, per mapquest! The neurologist is ignorant if they say you need no follow up imaging for your pituitary tumor and if you had documented proof of that statement, you should report them to the medical board. Y
ou should be able to get a f/up pituitary MRI from any endocrinologist... possibly even a primary care physician if you bring them info from a medical online source they feel is reputable about how you should get f/up pituitary tumor imaging . And you will want to bring info on why 3 Tesla is the way you want to go- how it gives superior imaging quality, important when viewing small areas.
If you feel the injuries to your back are purely muscular and not spinal in nature, why not schedule the pituitary MRI first and schedule the lumbar MRI for a later date. That way you'll be sure and get the pituitary MRI in with your insurance- it should be a slam dunk with your insurance anyway, given your previous record of having a pituitary tumor.
ok i called them. the woman said it was as strong as a regular, although it was a mean secretary. she said only the office in jamesburg has the 3t,and the princeton office has 1.5. i mapquested it and its 30 mins away.
i just hope insurance will pay for this. not only am i requesting a brain mri at the same time as my spine mri,but i am requesting a 3t wide bore mri! and i dont think the neurologist will tell insurance i need one. she said shed write the script for one, but last time i was there(may 2010..which was 1 year 2 months from my last mri) he said i didnt need an mri
i just hope insurance will pay for this. not only am i requesting a brain mri at the same time as my spine mri,but i am requesting a 3t wide bore mri! and i dont think the neurologist will tell insurance i need one. she said shed write the script for one, but last time i was there(may 2010..which was 1 year 2 months from my last mri) he said i didnt need an mri
they ae weightlifting injuries from deadlifting. i feel they arent worth mentioning because i know what has to be done for those...i seek your guidance on curing my tumor/headaches problems. i dont know why ud think im abused...
anyway,i got back from the ortho today. my dad and i had to beg him for mris. he agreed to do a full lumer spine)does this include my neck?) he wouldnt do the chest.
im worried that because im getting this mri,the insurance wont pay for the brain one. and they will refuse to pay for the 3t one..especially the wide bores.
i also dont know why ud think i hurt myself....
anyway,i got back from the ortho today. my dad and i had to beg him for mris. he agreed to do a full lumer spine)does this include my neck?) he wouldnt do the chest.
im worried that because im getting this mri,the insurance wont pay for the brain one. and they will refuse to pay for the 3t one..especially the wide bores.
i also dont know why ud think i hurt myself....
Well, they definitely speak positively about the MRI machine on your link, and I think it's worth calling Princeton about to see if it's right for viewing small pit. tumors.
If you learn it is better than 1.5 for viewing microadenomas of the pituitary and equals the regular 3 tesla for pictures, you could request your doctor to refer you for an MRI specifying for it to be done on the kind of machine you're wanting.
Your doctor office could send the order with a request for that specific type of MRI machine and when Princeton calls you to set up the date, you can make sure it is for that machine, otherwise you don't want to make the trip. As far as what to schedule when, I would think your pituitary tumor and spinal injuries would be priorities and after those, the soft tissue injuries, if the doctor orders muscle MRIs for you.
X-rays are not good for viewing soft tissue injuries and to my knowledge, can't show muscle tears. If your doctor ordered x-rays for muscle injuries, without trying to rule out a bone problem, they had you exposed uselessly to radiation.
I am concerned you have spinal injuries you feel aren't worth mentioning. If you are being abused or are hurting yourself and that's why you feel they aren't worth mentioning, I urge you to seek help.
If you learn it is better than 1.5 for viewing microadenomas of the pituitary and equals the regular 3 tesla for pictures, you could request your doctor to refer you for an MRI specifying for it to be done on the kind of machine you're wanting.
Your doctor office could send the order with a request for that specific type of MRI machine and when Princeton calls you to set up the date, you can make sure it is for that machine, otherwise you don't want to make the trip. As far as what to schedule when, I would think your pituitary tumor and spinal injuries would be priorities and after those, the soft tissue injuries, if the doctor orders muscle MRIs for you.
X-rays are not good for viewing soft tissue injuries and to my knowledge, can't show muscle tears. If your doctor ordered x-rays for muscle injuries, without trying to rule out a bone problem, they had you exposed uselessly to radiation.
I am concerned you have spinal injuries you feel aren't worth mentioning. If you are being abused or are hurting yourself and that's why you feel they aren't worth mentioning, I urge you to seek help.
ill be devastated if they say no to the muscle mri....i have injuries that havent healed,and xrays show no tears or anything. insurance reccomended an mri though so i dont think itll be an issue. besides whats the DOCTOR got to lose?
i jsut got a few injuries nothing worth discussing
im so overwhelmed with things i dont know what to schedule,when.
i worry if i call princeton and ask them whats good for puituitary theyll ay 1.5 is fine...but idont want a 1.5..i want a 3.0...from my research its leaps and bounds ahead! i can get a 1.5 right heare,without traveling far to princeton
from the link i gave you do you think its a good one.
i jsut got a few injuries nothing worth discussing
im so overwhelmed with things i dont know what to schedule,when.
i worry if i call princeton and ask them whats good for puituitary theyll ay 1.5 is fine...but idont want a 1.5..i want a 3.0...from my research its leaps and bounds ahead! i can get a 1.5 right heare,without traveling far to princeton
from the link i gave you do you think its a good one.
I hope you won't be too disappointed if he says no for muscle MRIs. Why don't you call Princeton and see if they think that new machine you sent me a link about is one of the best for the pituitary gland? If they say yes and that's what you want, why not go ahead and schedule your pituitary MRI? What's wrong with your spine?
i haent talked to the dr about ordering mris for my muscle injuries. i see him tomorrow. i have had them for a year. i have had normal xrays,so i will demand mris...also in order for my insurance to pay for me to go see an out of network spin doctor i need mris of my spine.
i havent made the appointmentt to go to the pituitary mri...i really ant to get the 3t wide bore from princeton,but im scared its not as strong as a regular 3t. i wil lsend you the link to it in your private message
i havent made the appointmentt to go to the pituitary mri...i really ant to get the 3t wide bore from princeton,but im scared its not as strong as a regular 3t. i wil lsend you the link to it in your private message
I don't know about wide bore- I do know that closed MRI is better than open MRI for the pituitary. I learned there was such a thing as 3T or T3 through this forum and that 1.5 is not as fine of detail. I think a regular 3 tesla done dynamically would be adequate.
Have the muscle injuries been there long term? I'm surprised the doctor is ordering MRIs for those. They usually like to be conservative and not order the expensive tests for things like that. I would think 1.5 would be sufficient for muscle injuries. But if you have a problem with your knees, they might not be so great. MRIs at least used to be not very accurate for knee injuries.
If they are continuously taking pictures and use an auto-injector for the dye, rather than pulling you out to give you the dye and putting you back in, that would be dynamic. Has it been at least a year since your last pituitary MRI & if so, have you set up an appointment for the 3 tesla MRI of your pituitary yet?
Have the muscle injuries been there long term? I'm surprised the doctor is ordering MRIs for those. They usually like to be conservative and not order the expensive tests for things like that. I would think 1.5 would be sufficient for muscle injuries. But if you have a problem with your knees, they might not be so great. MRIs at least used to be not very accurate for knee injuries.
If they are continuously taking pictures and use an auto-injector for the dye, rather than pulling you out to give you the dye and putting you back in, that would be dynamic. Has it been at least a year since your last pituitary MRI & if so, have you set up an appointment for the 3 tesla MRI of your pituitary yet?
are wide bore mri machines as accurate as regular ones? i know that open mris arent too accurate, so im wonderign if its the same case with wide bore...(wide being less)
princeton hospital has a 3t machine that comes in wide bore...i hate the claustrophobic feeling of the regular mris...but ii want the most accurate machine possible..should i get it on a regular 3t? or a wide bore?
also they said they had a 1.5t GOLD??? is that better than an 3t??/ they said it was the best????? im sp confused. also it seems many places dont know the difference between dynamic contrast..and an mri with regular contrast. i asked the local mri facility here if they do it with dynamic contrast method, and she said it was just called regular contrast mri...where they press a power button to administer contrast(she got the emthod right)_,,,im worried this wont come out right.
oh im also having mris done for muscle injuries..do u think getting those done on a 1.5 will be fine(i doubt insurance will pay for 2 3t mris...also the 3t mris are a long travel form my house...im willing to go there for the brain..but for the muscle injuries i think the 1.5 will be fine since theres a facility 5 minutes from my house)
princeton hospital has a 3t machine that comes in wide bore...i hate the claustrophobic feeling of the regular mris...but ii want the most accurate machine possible..should i get it on a regular 3t? or a wide bore?
also they said they had a 1.5t GOLD??? is that better than an 3t??/ they said it was the best????? im sp confused. also it seems many places dont know the difference between dynamic contrast..and an mri with regular contrast. i asked the local mri facility here if they do it with dynamic contrast method, and she said it was just called regular contrast mri...where they press a power button to administer contrast(she got the emthod right)_,,,im worried this wont come out right.
oh im also having mris done for muscle injuries..do u think getting those done on a 1.5 will be fine(i doubt insurance will pay for 2 3t mris...also the 3t mris are a long travel form my house...im willing to go there for the brain..but for the muscle injuries i think the 1.5 will be fine since theres a facility 5 minutes from my house)
I said nothing ventured- that means, if you don't try going to him, you definitely won't get any help from him, so why not give him a try? I'm sorry I confused you.
Wasn't your tumor on the small side? If so, I would think the 3 Tesla, which is supposed to have more detailed picture taking ability, would be the kind you want. They should always monitor any kind of brain tumor, including pituitary tumors, to see if they are growing or not. If it has been over a year, you should get that script for a place with the best MRI machine if possible and where they do it dynamically and right! If it has grown any, I would think they would want to re-test your pituitary hormones to see if any of them are coming back abnormal, being affected by the tumor. If all your numbers are coming back normal and your vision is not being affected, I it seems a number of doctors feel the risk of surgery outweighs the benefit of removing the tumor.
Re: ANA testing that looks for autoimmune disorders it looks like- if you give the doctor your list of symptoms and they feel it sounds like you may have this type of problem, then I'd ask for the test. I'd ask the doctor about my hemoglobin if I were in your shoes. How I prepare for a doctor visit often includes making notes of what is concerning me and letting the doctor know I'd like to be tested because of these specific symptoms, etc.. I often will have someone go in with me in case I miss something the doctor says.
While I don't know what if any of your symptoms might be caused by the pituitary tumor itself other than how you are feeling about it. There very well may be some symptoms caused by it. I'm no doctor. But at the same time, I do think you should make sure there isn't something else contributing to your symptoms when you have something that's come back abnormal, like your hemoglobin.
Wasn't your tumor on the small side? If so, I would think the 3 Tesla, which is supposed to have more detailed picture taking ability, would be the kind you want. They should always monitor any kind of brain tumor, including pituitary tumors, to see if they are growing or not. If it has been over a year, you should get that script for a place with the best MRI machine if possible and where they do it dynamically and right! If it has grown any, I would think they would want to re-test your pituitary hormones to see if any of them are coming back abnormal, being affected by the tumor. If all your numbers are coming back normal and your vision is not being affected, I it seems a number of doctors feel the risk of surgery outweighs the benefit of removing the tumor.
Re: ANA testing that looks for autoimmune disorders it looks like- if you give the doctor your list of symptoms and they feel it sounds like you may have this type of problem, then I'd ask for the test. I'd ask the doctor about my hemoglobin if I were in your shoes. How I prepare for a doctor visit often includes making notes of what is concerning me and letting the doctor know I'd like to be tested because of these specific symptoms, etc.. I often will have someone go in with me in case I miss something the doctor says.
While I don't know what if any of your symptoms might be caused by the pituitary tumor itself other than how you are feeling about it. There very well may be some symptoms caused by it. I'm no doctor. But at the same time, I do think you should make sure there isn't something else contributing to your symptoms when you have something that's come back abnormal, like your hemoglobin.
surgi,im confused....are you saying you think dr gordon wont help me?? you said it is assured gordon wont help,but then said it wouldnt hurt to go to him????????
gordon would most likely be open to anything,so if you dont mind writing some questions out you think i should ask ill ask him them all!!!!!!!
the main reason i was going to go get the 3 tesla machine mri was to see if maybe my tumor was bigger than they thought..since they used a regular mri w/w/o contrast...or maybe i had another hiding..like rumpled......but then what???? i havent found a neurosurgeon willing to do an endoscopic removal.
antinuclear antibody panel is a blood test. im not sure if it might help me? thats why i was inquiring about to you. i am not sure if icould post links here,but if you type into google it should come up!
thanks for the help as always
-dave
PS. do you agree the tumor isnt causing my symptoms. i notice you keep inquiring i may have some other disease to diagnose. i justdont know anymore myself.
gordon would most likely be open to anything,so if you dont mind writing some questions out you think i should ask ill ask him them all!!!!!!!
the main reason i was going to go get the 3 tesla machine mri was to see if maybe my tumor was bigger than they thought..since they used a regular mri w/w/o contrast...or maybe i had another hiding..like rumpled......but then what???? i havent found a neurosurgeon willing to do an endoscopic removal.
antinuclear antibody panel is a blood test. im not sure if it might help me? thats why i was inquiring about to you. i am not sure if icould post links here,but if you type into google it should come up!
thanks for the help as always
-dave
PS. do you agree the tumor isnt causing my symptoms. i notice you keep inquiring i may have some other disease to diagnose. i justdont know anymore myself.
I think you need to get your ferritin retested- according to my doctor, that is the best indicator for what's happening with iron in your body.
One website says about perforated colon that some symptoms that are common that can occur are being febrile, chills, feeling like throwing up, constipation, diarrhea, and lower abdomen pain and cramps. You may be feeling things so much because you had an emptied out colon & likely are having a lot of gas now too. Have you tried taking simethicone and avoiding gassy foods for now?
Didn't you have a place in mind to travel to that had a 3Tesla machine that you were discussing with Rumpled? Why not get the script for that place? And regarding Dr. Gordon, nothing ventured, getting no help from him is assured, so why not give him a try? I think you should look into the hemoglobin elevation further. I've never heard of an antinuclear antibody panel before. What's that about?
One website says about perforated colon that some symptoms that are common that can occur are being febrile, chills, feeling like throwing up, constipation, diarrhea, and lower abdomen pain and cramps. You may be feeling things so much because you had an emptied out colon & likely are having a lot of gas now too. Have you tried taking simethicone and avoiding gassy foods for now?
Didn't you have a place in mind to travel to that had a 3Tesla machine that you were discussing with Rumpled? Why not get the script for that place? And regarding Dr. Gordon, nothing ventured, getting no help from him is assured, so why not give him a try? I think you should look into the hemoglobin elevation further. I've never heard of an antinuclear antibody panel before. What's that about?
do u think based on my labs i could have hematochromatosis???
i was thinking of asking gordon about testing for that,and maybe an antinuclear antibody panel? but iheard its expenive really.
i was thinking of asking gordon about testing for that,and maybe an antinuclear antibody panel? but iheard its expenive really.
i have no idea what these freaking doctors are thinking....none of these doctors care about me at all..thats why she didnt thnk. ihavent seen her in a few months. she saw me twice then said she couldnt help me anymore...she said shed write the sscript if i wanted..but idk where to go to get the dynamic 3t scan i want
idk whar gordon will do to me im beyond repair it seems.
as for the colonoscopy/upper endoscopy
how do i know if he perforated anything? eating/drinking has been feeling weird...and sort of painful like i feel the food and liquid press against every part of my esophoguys and colon....
also im feeling it in my back as well which is weird....
******* great....i not only wasted my time......but now im in worse shape...my life is just great
also my intestines ahve been feeling tabby as well i was hoping it would go away but it really hasnt.. i think he perforated something...just great
i always had some stabbyness..but it feels lower like its in the coolon
idk whar gordon will do to me im beyond repair it seems.
as for the colonoscopy/upper endoscopy
how do i know if he perforated anything? eating/drinking has been feeling weird...and sort of painful like i feel the food and liquid press against every part of my esophoguys and colon....
also im feeling it in my back as well which is weird....
******* great....i not only wasted my time......but now im in worse shape...my life is just great
also my intestines ahve been feeling tabby as well i was hoping it would go away but it really hasnt.. i think he perforated something...just great
i always had some stabbyness..but it feels lower like its in the coolon
Wasn't your last MRI over a year ago? If so, why does your doctor think you don't need a f/up MRI to see if the tumor has grown? If it has been over a year, that doesn't sound kosher to me. You going to make that appt. with Dr. Gordon tomorrow?
i never got it. last time iwent to the neuro which was likw 2 months ago she said ididnt need it. the only reason id go for another is to get a 3t scan with dynamic contrast,but idk if most places know how to properly do this.
besides,i know i have the tumor but noone wants to treat me.
im really not sure what my next step is,,,im thinking of going to that doctor gordon i told you about..he will know about my hemoglobin leevels.
besides,i know i have the tumor but noone wants to treat me.
im really not sure what my next step is,,,im thinking of going to that doctor gordon i told you about..he will know about my hemoglobin leevels.
What a blessing your colonscopy and endoscopy came back normal! Your next step is to get that follow up pituitary MRI or did you get it?
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