My mum has a grade 2 inoperable meningioma in the pit suprasellar region (suprasellar cistern, cav sinus, pit fossa, clivus and sphenoid sinus), growing fast and causing all sorts of anxiety & psychiatric symptoms .
They originally found the pituitary tumour in Nov 2015 after mum got SIADH and had neuro- surgery in Dec 2015. At that time it was causing all sort of anxiety & psychiatric symptoms as well as her right eye to close (iii N). Pathology came back as Grade 1 M . She had a MRI 3 months later (March 2016) and it had grown back greater than its original size. By April 2016 it was causing the same eye ,anxiety & psychiatric symptoms. She had to have emergency 2nd surgery and was diagnosed a few weeks back with Grade 2 M . They are fast tracking rapid ARC radiation . All this is so overwhelming but the anxiety & psychiatric symptoms make it so much worse for mum. Her MDT say they've never seen anything like it and so I thought Id see if anyone out here had experienced something similar and if so, what treatment they were on?