A neurologist probably would not know cushing's from his elbow. They certainly do not know how to test or treat it. So if you do not get a good response, that is why. You may get a rare doc who understands the disease, but most only got a half page in medical school that just pretty much stated it was rare.
Better doc to start is an endo - and even most normal endos are duds - I finally had to drag my tumor off to a neuro-endo but unless you have a proven tumor, a neuro-endo will not take you in some cases - gotta ask around, send tests around etc. Take pics of body changes and someone with you to vouch for eating habits. Sad, but true.
thanks you for ur response thats what i was thinking i am going to take it up with my nurologist on my next appointment
It is possible that it could be a rise in cortisol. Abdominal weight gain, anxiety like that are symptoms of Cushing's syndrome. However, I am not sure about the extra fluid on the brain - the CSF may be putting pressure on the pituitary, which is also sitting in a bath of CSF.
Found on a website:
"Idiopathic intracranial hypertension can rarely be associated with an underlying endocrine disorder such as Cushing's syndrome, hyperthyroidism, or with administration of thyroxine or growth hormone."
So it is possible that the Cushing's caused the CSF issue. Ask about testing for Cushing's syndrome.