Aa
Non-Stop Migraine
37 y/o female
Smoker
5'6, 105 lbs
Spontaneous galactorrhea x1 year
Vision changes, right eye
Droopy right eyelid
Dx with 8mm non-secreting, hemorrhagic pituitary tumor 2 weeks ago from an MRI
Tumor is NOT pressing on the optic nerve and is 'contained'
Multiple hormone profiles, CBC, and other labs unremarkable except for low B6
Having non-stop, debilitating headaches with stabbing pain--literally 24h/7d with no relief
Given Elavil 25mg, i hs, and Darvocet N-100, i q 4-6h with no relief
Taking Zomig 5mg q 24h with no relief
Advised that the pituitary tumor is coincidental to the migraines/stabbing pain but no explanation as to what is causing them...
Smoker
5'6, 105 lbs
Spontaneous galactorrhea x1 year
Vision changes, right eye
Droopy right eyelid
Dx with 8mm non-secreting, hemorrhagic pituitary tumor 2 weeks ago from an MRI
Tumor is NOT pressing on the optic nerve and is 'contained'
Multiple hormone profiles, CBC, and other labs unremarkable except for low B6
Having non-stop, debilitating headaches with stabbing pain--literally 24h/7d with no relief
Given Elavil 25mg, i hs, and Darvocet N-100, i q 4-6h with no relief
Taking Zomig 5mg q 24h with no relief
Advised that the pituitary tumor is coincidental to the migraines/stabbing pain but no explanation as to what is causing them...
Great!
Was the ACTH in a chilled tube, spun immediately (while you were sitting there) and the tech knew it was a frozen test? It degrades in minutes at room temp so if it went into a bin, the results are wrong.
Were your tests done in the morning, fasting? Any other hormone tests done? Are they planning on repeating the tests?
I ask as my tumor was said to be an "incidentaloma" when I was lactating - as I only had a modestly elevated prolaction. But I had a lot of symptoms besides - migraines aside, and I ended up having a lot of issues. so make sure that you are monitored.
In the end, I had a prolactinoma and Cushing's disease.
Was the ACTH in a chilled tube, spun immediately (while you were sitting there) and the tech knew it was a frozen test? It degrades in minutes at room temp so if it went into a bin, the results are wrong.
Were your tests done in the morning, fasting? Any other hormone tests done? Are they planning on repeating the tests?
I ask as my tumor was said to be an "incidentaloma" when I was lactating - as I only had a modestly elevated prolaction. But I had a lot of symptoms besides - migraines aside, and I ended up having a lot of issues. so make sure that you are monitored.
In the end, I had a prolactinoma and Cushing's disease.
IGF-1, ACTH, LH, FSH, ADH, TSH, and PRL were all done. All were normal.
Been seen by neurologist, endocrinologist, and neurosurgeon all SPECIFICALLY for the pituitary tumor.
Been seen by neurologist, endocrinologist, and neurosurgeon all SPECIFICALLY for the pituitary tumor.
You need to get help for the pituitary tumor even though they are not treating it as a finding. You are symptomatic even though they do not think so. The lactatation and headaches are a clue. Plus they only did basic bloodwork probably and not all the pit hormones most likely - did you get IGF-1, ACTH, LH, FSH, ADH and TSH in addition to the PRL?
Going on anti-depressants now will just interfere with testing. The depression is a symptom, not the cause. It is hormonal. You need a pituitary doc.
The vitamins fall with this too - did they check D - that goes as well.
Get thee to a neuro- endo, not a diabetes endo.
Going on anti-depressants now will just interfere with testing. The depression is a symptom, not the cause. It is hormonal. You need a pituitary doc.
The vitamins fall with this too - did they check D - that goes as well.
Get thee to a neuro- endo, not a diabetes endo.
Have an Answer?
You are reading content posted in the Brain/Pituitary Tumors Community
Here are 15 ways to help prevent lung cancer.
New cervical cancer screening guidelines change when and how women should be tested for the disease.
They got it all wrong: Why the PSA test is imperative for saving lives from prostate cancer
Everything you wanted to know about colonoscopy but were afraid to ask
A quick primer on the different ways breast cancer can be treated.
Get the facts about this disease that affects more than 240,000 men each year.
