are there any adults here with mild CP?

[mamiJ]

I was born with mild CP. The spacicity was in my legs and with the help of braces and therapy, I was able to walk "normal".

I am now 38. I have always had almost no muscle on the left side of my body. If I was very tired, sometimed I would get a little limp,but that's all.

Now, I have been having neuropathy, and most recently spacicity in arms and legs that becomes quite  painful.

Sometimes, I notice my fingers and toes sticking together.

What I'm wondering is do any other adults with mild CP have these symptoms?

The dr's have no idea what is causing my issues.

Thank you for reading

[Rbn090]

Im 36 with mild cp.  I wore braces as an infant because my feet pointed inward.  Growing up I could run.  As a teen if I ran I would fall because of tripping over my feet.  In my mid 20s I had my 1st sharp pain in the ball of my foot.  It felt like someone smashed my foot with a hammer.  I was walking up wooden stairs barefoot.  I notice now if I wear shoes more than 3 months my feet hurt badly.  I have tried the Richie brace for both feet.  I got another set of braces that I cant wear.  My left foot at the ball is 1/2 inch thicker than the right.  I have a 5 yr old son I can hardly keep up with.  I work 45 hrs a wk on a cement floor.  The last 2 years have really been getting worse.  I don't know how much longer I can continue this.  I work in a factory doing mindless work.  I have a hard time learning new concepts.  It is so frustrating.  Its like my brain will let me learn 5%  of a new task.  After that I get a splitting headache because I honestly cant figure it out.  Any thoughts to disability retirement how it works???

[timidlady]

I'm 36 years old with mild CP that effects my right side. It's so hard to find other adults that have this condition. I'm so glad there are some. I thought maybe kids just disappeared when they grew up or something. I don't limp when I walk unless I walk quickly but I'm walking much slower now any ways. Walking is my main means of transportation so I'm walking about 4-5 miles a day. The best is the elliptical at the gym because I can get a pretty good motion without all the added weight of my body. I can get pretty stiff but when I get car rides I really feel sore. I have problems with feeling tightness in my outer thigh and when I am in bed for the night, I feel pressure in my knee. I give that a break by putting a pillow under my leg. I make small veneer corner pieces for a living. My job is to attach the wood to a zinc piece of metal with glue and par down the access with scissors. They bought me lefty scissors and whined about my accuracy because it has become difficult to conquer my fine motor. However, with consistent use, I have seen some improvement. Mostly I am weird because my walking speed is so slow. I don't tell people about my CP but I think they are figuring it out. Maybe you need a hobby that makes you use your hands, like making teddy bears or sewing quilts or something like. I know if they take me off my little pieces sometimes it's hard to go back to and I cut my hands sometimes with the razor blade but I DO improve. I find most my body is slow to start but does get better with time. Just so happy there are other adults like me out there.

[Cp43]

Thnxs for the info. and the link---very helpful.

[guhit]

I don't have CP but my boyfriend who I love so much has mild CP. Maybe I'm just here to get to see what is going on to better understand and know how you all feel. I love him so much and I would really love to know more about mild CP so I can better understand him and his ways and for me to really show him how much I care about him.  

I have so much regard with people who have CP, even before i met my boyfriend. I may not know any of you, but you do inspire me.

[guhit]

I don't have CP but my boyfriend who I love so much has mild CP. Maybe I'm just here to get to see what is going on to better understand and know how you all feel. I love him so much and I would really love to know more about mild CP so I can better understand him and his ways and for me to really show him how much I care about him.  

I have so much regard with people who have CP, even before i met my boyfriend. I may not know any of you, but you do inspire me.

[captwash]

Hi Cp43

Have you heard of  "selective dorsal rhizotomy (sdr)"  . I discover a young man  named Nico Phillips,who has been working an a documentary called  The Nerves Of Us: (Changing The World One CP Adult At A Time)  

Although the documentary's not yet completed this link discuss the SDR option for adults

http://www.indiegogo.com/projects/the-nerves-of-us-changing-the-world-one-cp-adult-at-a-time.

At the bottom of this webpage there are links to YouTube for additional  videos.

Wish you the best
Mark