Hi and welcome to the Chiari forum.
For most with chiari u have a short period that u r experiencing HA's prior to getting ur dx...so u r lucky in that regard....and as far as the NL saying ur pain is not from ur chiari is a typical response we get all too often.
In fact we have dubbed it the royal chiari run around...since we run from Dr to Dr trying to get answers and they all claim we have chiari, but it has nothing to do with our pains.
Not all with chiari are surgical candidates, but u do need further testing to see if u have a CSF obstruction and over crowding.
It is good to have a good NL as we all need one, but once u have a dx u can go to a NS, but u want a true chiari specialist to help guide u.We do have a list of Drs- use the list to help u do research...the list is not meant as a referral....u need to find the dr that is right for u.
http://www.medhelp.org/posts/Chiari-Malformation/LIST-OF-CHIARI-SPECIALISTS/show/1503562
"selma"