CAN ARNOLD CHIARI COME BACK AFTER SURGERY???

[KYKY84]

HI, I was diagnosed and treated for epilepsy when i was 14 months old all the way to the age of 17 which at that time i was diagnosed with ARNOLD CHIARI MALFORMATION. and I had my 1st surgery sept. 2001 in my home town and the doctor screwed up and i ended up back in the hospital for 1 1/2 weeks during halloween 2001 with a spinal fluid leak, and so i went to loyola university in chicago to have my 2nd surgery and that surgeon did an amazing job i was in hospital for 1 week and never had any problems after that..... however now 9 years and a child later im having alot of problems... i am getn blurred vision again, my legs are weak and give out on me more often again, Im getn migraine again in the back of my neck that makes me not able to lay on my back.... the migraines make me nautious, and miserable again and i havent been able to turn my head to the left without pain and stiffness for the last 3 months. i am Trying to get in to see a neurologist but its hard finding a doctor around here that accept my insurence and even harder finding a doctor that is familiar with ARNOLD CHIARI.
P.S is it normal for the back of your head to be numb and tingly after an arnold chiari surgery???? cuz the back of my head is super numb and tingly... sumtimes it feels like a bug crawld across the back of my head it feels really creepy

So my question is CAN ARNOLD CHIARI come back?
plz if nebody knows and has advise plz reply....

[ZilZil]

Yes, get the MRI and don't let the chiropractor touch you again.  For any reason.

When I was first diagnosed, I asked my Neurologist about cranial-sacral therapy and he OK'ed it.  I then found a practitioner that I (thought I) trusted and my symptoms (which were already bad enough to warrant surgery-I was just REALLY reluctant to go that route) got dramatically worse. Before her "treatment" I was having mild to mediocre pain and visual disturbances and impaired balance.  After, I was in excruciating pain and was blacking out for significant portions of the day, plus having vivid hallucinations and waking terrors.  I teach at a University and I recall clearly watching the letters of our agenda walk off the page while at a meeting.   Good times.
After several trips to the ER and another to my Neuro, I realized my Neurologist was and idiot and found another one who was "stunned" (his word) that I'd been encouraged to go to a chiropractor.  She could have killed or paralyzed me.

I ended up having surgery almost immediately after that.

[aricaruth]

Hello! I was diagnosed with chiari when i was sixteen underwent decompression surgery including the dura. I have been pain free for 9 years. I recently started working at a chiropractic office and he has all of his employees do an exam and do treatment through manual adjustments. Its been about four months I've been getting adjusted and about 6 weeks ago I noticed I would get a slight headache after a cervical adjustment. I should have listened to my body but trusted the doctor. This past week my all my former symptoms have come back. I feel muscle weakness, lightheaded, I'm horse a lot which is odd, I have a lot of pressure behind my eyes and off course the feeling of your neck up to your heard is about to burst. I am having an MRI done this week to check. I honestly didn't know that it could re occur. Has anyone else had a run in with chiropractic "care". Also, when severe symptoms re occur is it common to under go surgery again? It is so nice to be able to talk to others who know what I'm going through

[selmaS]

  If ur DD is having HA's and it is affecting her ability to have fun and function like little ones should then I would have her checked...but she is so young and it is hard with all the testing to get them to understand...and not to get scare from it all....so unless it is a issue such as daily, vomiting with the HA's or she can not sleep...etc...then I would wait...

Most Chiari Drs do suggest we have a C-section so we do not have to push, but for those of us that were not DX'd  we went thru natural child birth....so, not sure how it affects us....other then adding to the HA's/

[kimmywhitelion]

No i didn't have a c-section. But due to my history i wasn't allowed to push because of the pressure. That was difficult.
Im having a CT scan soon.
I was unaware of that information, definately hope its not.
I have four children, my little girl who is 5, gets headaches at the back of her head. Reading some posts and due to my history should i get her checked, or even all my kids? I would hate for them to go through what i am. Or anyone for that matter.

[selmaS]

  WOW that is a first, I never heard of them doing this surgery on someone that was pregnant....may I ask did u then have a C-section?

ICP (hydrocephalus) can develop post op and this is y I asked about a dura plasty and what type patch was used, I am a strong believer that those with EDS DX'd or unDx'd may develop ICP with a foreign matter dura patch...as I have seen this happen so many times...

I feel the excess CSF is the body rejecting the patch that was used,...

Good luck with the next MRI and do keep us posted....I pray it is not ICP.

[kimmywhitelion]

i had the surgery when i was four months pregnant, after going to the er they would not release me until the surgery was done.  I had a Foramen magnum decompression. It was noted that the downward herination of the cerebellar tonsil. Displacement was 8mm below the foramen magnum.
The syrinx was extending from C3/4 down to T4/5 level. They said that the orbits ethmoids sinuses and maxillary sinuses were unremarkable and that minimal fluid retention was seen within the left mastoid air cell.  I have no idea what that means. It is on my report from hospital.
i had another MRI scan after my operation and one a few weeks later then again at 6months after.
I went to my local gp today, he rang my neurosurgeon personally, an MRI has been booked but will be 6-8weeks. But they have arranged for a CT scan for either later in the week or early next week. They want to rule out hydrocephalus.