CAN ARNOLD CHIARI COME BACK AFTER SURGERY???

[KYKY84]

HI, I was diagnosed and treated for epilepsy when i was 14 months old all the way to the age of 17 which at that time i was diagnosed with ARNOLD CHIARI MALFORMATION. and I had my 1st surgery sept. 2001 in my home town and the doctor screwed up and i ended up back in the hospital for 1 1/2 weeks during halloween 2001 with a spinal fluid leak, and so i went to loyola university in chicago to have my 2nd surgery and that surgeon did an amazing job i was in hospital for 1 week and never had any problems after that..... however now 9 years and a child later im having alot of problems... i am getn blurred vision again, my legs are weak and give out on me more often again, Im getn migraine again in the back of my neck that makes me not able to lay on my back.... the migraines make me nautious, and miserable again and i havent been able to turn my head to the left without pain and stiffness for the last 3 months. i am Trying to get in to see a neurologist but its hard finding a doctor around here that accept my insurence and even harder finding a doctor that is familiar with ARNOLD CHIARI.
P.S is it normal for the back of your head to be numb and tingly after an arnold chiari surgery???? cuz the back of my head is super numb and tingly... sumtimes it feels like a bug crawld across the back of my head it feels really creepy

So my question is CAN ARNOLD CHIARI come back?
plz if nebody knows and has advise plz reply....

[selmaS]

  Hi and welcome to the Chiari forum.

We do have a list of Drs and there is one for the Ann Conroy Trust...see the Health Pages for the link.-http://www.medhelp.org/health_pages/list?cid=186

It is possible that u have some underlying related conditions going on....what symptoms did u have that u had surgery?

Do u know if u had a CSF obstruction and if a full decompression was done? Did they open ur dura and place a patch?

Did they rule u out for tethered cord, disk issues, ICP, POTS....???

DO u also have EDS? That can add to how u heal post op.

[Lexie06]

Hello everyone

I had surgery last July which was a decompression, the surgeon says everything went to plan, if this is so why am I still getting symtoms and in so much pain the pressure in my head is awful, I have since been referred back to the neurologist who said to me that chiari is now cured is he living on another planet? N have been given so many tablets to help with the pain and none work, it's driving me mad my youngest child has EDS too so makes it harder for me to find a doctor who understands my condition as all my time is taken up looking after her.  If anyone knows of any nhs doctors who specialise in chiari could you please let me know as I don't know what else to do.

[selmaS]

  Hi and welcome to the Chiari forum.

Yes, COLD and RAIN...any weather changes can affect how we feel.

It is possible with the injuries u sustained in both accidents that the cerebral tonsils are causing another CSF obstruction.

Have u had a recent MRI?

[Inneedofguidance]

Hello Everyone,
I Had Surger For CM1 (7 Mm Herniated) In August 2005. In April 2006 I Was Hit From Behind At A Red Light And Bumped My Head Pretty Hard In The Top Of My Car. I Sustained Whiplash,  Through 6 Months Of Physical Therapy, And Became Disabled Later That Year I Got On Ssd. I Continued To Try Working Part Time, And Did So For About 4 Years.......Recently, I Was In A Head On Collision Where My Airbag Deployed And I Hi The Back Of My Neck On My Head Rest, This Has Made My Life A Living Nightmare. I Sustained Whiplash, Concussion Syndrome, Loss Of The Normal Curve Of My Neck, And Have Had Constant Headaches, Nausea, Dizziness, And Terrible Neck Pain I The Are That Surgery Was Done. I Am Truly Miserable And Afraid. I Am Having Concentration And Memory Difficulties And Have Not Been Able To  Work.The Wreck Wa On 3/29 And I Have Only Been Able To Work For Barely A Month SincIe. After Reading This Blog I Guess It's Safe To Say My Symptoms Of Cm Are Worsened Now. My Question Is Whether I Should Continue To AlloW Chiropractic Spinal Stretching Or Not. I Need Help, Had Serious Neck Pain After The Adjustment Made Last Week, And Now I'm Afraid.(Side Note) Does Anyone Notice That, Rain And Cold Air Make Symptoms Worse?

[Sanshi]

Hi i am diagnosed with Arnold Chiari Malformation type 1/2 about a week ago.  My surgery is scheduled for the 1 July. I am very nervous. Can you tell me what to expect after the surgery?  How long will it take to recover and doing my normal routine?

[selmaS]

  Well cerebral ptosis...this can occur if too much bone was removed, it is also known as brain slump.

Intercranial hypertension can also develop post op, and for no apparent reason...a LP must be done to determine this.

Cerviocranial instability- this is something that can be more obvious post op....most with this have Ehlers-Danlos and the laminecktomy can weaken the top vertabra and cause it to be more unstable...

Pseudomeningocele this is a leak and collection of CSF...this can occur if the patch fails, or u reject the patch.

So knowing if u have tethered cord, ehlers-danlos b4 surgery is helpful...and many times Drs only look to the cervical spine for a syrinx, it is possible for them to form in the thoracic and lumbar spine.