CAN ARNOLD CHIARI COME BACK AFTER SURGERY???

[KYKY84]

HI, I was diagnosed and treated for epilepsy when i was 14 months old all the way to the age of 17 which at that time i was diagnosed with ARNOLD CHIARI MALFORMATION. and I had my 1st surgery sept. 2001 in my home town and the doctor screwed up and i ended up back in the hospital for 1 1/2 weeks during halloween 2001 with a spinal fluid leak, and so i went to loyola university in chicago to have my 2nd surgery and that surgeon did an amazing job i was in hospital for 1 week and never had any problems after that..... however now 9 years and a child later im having alot of problems... i am getn blurred vision again, my legs are weak and give out on me more often again, Im getn migraine again in the back of my neck that makes me not able to lay on my back.... the migraines make me nautious, and miserable again and i havent been able to turn my head to the left without pain and stiffness for the last 3 months. i am Trying to get in to see a neurologist but its hard finding a doctor around here that accept my insurence and even harder finding a doctor that is familiar with ARNOLD CHIARI.
P.S is it normal for the back of your head to be numb and tingly after an arnold chiari surgery???? cuz the back of my head is super numb and tingly... sumtimes it feels like a bug crawld across the back of my head it feels really creepy

So my question is CAN ARNOLD CHIARI come back?
plz if nebody knows and has advise plz reply....

[leahkrank]

I was checked for all of the other related conditions before my surgery such as syrinx and others. It is the same NS that did my surgery, so we will see how that goes. What would some of the underlying causes be? I just want to be ready for anything he might throw at me.

[selmaS]

  Hi and welcome to the Chiari forum.

I hate to say yes, but it is possible to need more surgery....but not bcuz bone grows back, but bcuz of certain underlying and or related conditions may be affecting u....

Is this the same NS that did ur surgery u r going to see?...I had my post op MRI at 1 yr post op...all the Drs tend to do these at diff times and for each patient may differ too.

Were u checked for ALL the related conditions b4 ur surgery?

[leahkrank]

I am 16 years old and I had my chiari surgery about a year ago. All of my symptoms have come back and I am just really nervous. My head is beginning to not only hurt in the bottom back of my head (like before) but it is also hurting around the scar. I'm scheduled to go to the NS a week from today. I just don't know what I need to be prepared for. I really am extremely nervous. I have grown over an inch this year in height. Does that mean my bone could have grown back too? I had a post op MRI a few months after my surgery and I got the all clear. Haven't had one in a while. What does all this mean? Is it possible I might need the Surgery again?

Symptoms: Headaches, numbness and tingling/weakness in arms and legs, blurred vision, abnormal breathing.

[selmaS]

  Hi and welcome to the Chiari forum.

There r related conditions that could be causing this...have u had a post op MRI?

Did they rule out tethered cord, ehlers-danlos and syrinx's b4 u had surgery?

[ann_marie75]

I have or had acm I had my surgery jan 202004 although I still have suffered withe headaches it has got much worse along with other symptoms I am really worried about it.

[selmaS]

  Hi and welcome to the Chiari forum.

To get better replies u may want to start a new thread as this is older and not too many look at the older threads.

Once u start a new thread u can continue to ask questions on that same thread so all the info u supply is in one place making it easier for us to answer u.

Surgery may temporarily stop the tinnitus, but it can come back as nething we take from NSAIDS to pain meds can also be a cause of it...I know it is not a nice symptom to have as I also have it and I had surgery...and it did seem to go away, but I have related issues I am on meds for and I still have it...most symptoms r not as bad as they were pre op...so surgery can help minimize the effects....

I saw ur Drs said ur Chiari was mild....that term out rages  me as they use the length of ur herniation to determine the name...not how it is affecting u or ur health...ugh...Did they rule out related conditions and see if u have a CSF obstruction? That determines mild, etc....not the length.

Know u r not alone and came to a great place for support : )