Cerebellar Prolapse

[mommymuffin2]

I sent my MRI to Dr Heffez. He came back saying cellebellar prolapse just wondering if anyone has any experience with any Toronto Canada drs? I had surgery june 2008. symptoms are worse now. Can any help with information?

[jessbee82]

I am in Canada - London, Ontario, you can contact me

[selmaS]

No worries..will do : )

[mommymuffin2]

Thanks so much for your input. Can you direct Carolyn to me when she gets back? I will work on the MRI.

[selmaS]

Well when Carolyn gets back from holiday....it may be beneficial  to speak to another person that had surgery in Canada....she may be able to help direct u better than I as I am  not familiar with the ins and outs up there.If u can  get a MRI that would be helpful.....and I know it may take time to get that done.....

Thanks...I am sure Molly is doing better each day....

"selma"

[mommymuffin2]

I had my first surgery in Canada. I don't have insurance to go to him. not sure what a surgery would cost with him. I was really trying to stay in Canada if possible. The nurse said no paper work unless you are a patient so I can't go back on him for anything. I did ask if he knew of anyone up here that I should look at so I'm waiting for a phone call back.

I was thinking I should ask my dr for a more up to date MRI. Last one was dec.2009. It is a bit of a wait for one.

I hope Molly makes out ok. Send her best wishes for a speedy recovery. Do you think I should ask for anything else?

[selmaS]

Well she just had a third surgery as she had a leak from the fix of the prolapse.....I think she is still in the hospital.....Dr Heffez fixed Molly's slump, and now the leak......she was not his orig patient either.....

May I ask where did u go originally?.....somewhere in Canada? it may be more the fact u r from out of the country than nething else.....I would ask him how u get to be a patient and get the paperwork done if that is where u want to go.

"selma"

[mommymuffin2]

I never had anything other than a really bad headache b4 the surgery. You are right this is worse. When did Molly have her surgery and if possible can you get her to talk to me? Now I need to prove this to my internal medicine dr as I don't want to go back to the same NS. I got the feeling from him that he didn't know a great deal about this.
I'm thinking a MRI is needed again. No after care has been done. Dr Heffez won't give me any paper work saying this because I'm not a patient of his. I got all this information in a phone call.

Please help me figure the next step......

[selmaS]

Sometimes the pain from a brain slump or prolapse can be as bad if not worse than u had b4 surgery....which is not what u want.....am I right?

I know from Molly she was doing worse after surgery...she was having more pain and it seemed to increase.....

"selma"

[mommymuffin2]

Ok thanks what do you mean as bad or worse?

[selmaS]

Hi.....we do have a list with some drs on it in Canada..http://www.medhelp.org/posts/Chiari-Malformation/CHIARI-DRS-LIST-CANADA/show/1270605

.....I know Carolyn when she is back from her Holiday will share info on drs  up there...and we do have several other members up there as well.

I am so  sorry u r having this issue...it can be as bad or worse than b4 the org surgery.

Keep us posted on how u make out with drs
"selma"