:-) headaches almost gone

[irislita]

Hi my dear chiari family, I think since yesterday...I approach to be really better one day. I was so fed up of my ha and I took the mouthpiece they gave me for TMJ...well since yesterday no ha, no facial pain.Results I have indeed a trigeminus neuralgia, but not from chiari...from TMJ!!!!! I didnt have to take a single pill since yesterday.I was so happy I threw a mojito party.I woke up dancing today...so happy. well seems my main problem is my tensed muscles.I think all this long fight is a sign for me to change habits and I decided to learn meditation soon to autocontrol my tensions and stress in life. I hope u all have a great day.I just adore my mouth piece!!!!

[irislita]

Thanks for all ur comments!!!!1
Mary...U need a good nl or ns to get this diagnose...the problem is that pain from neck can also radiate into the face and trigeminus nerve and occipital nerve can have same symptoms...and it also can be a simple ´serious neck contraction. they need to find what triggers ur symptoms,good luck

[Marybz]

How did they diagnose the trigeminal neuralgia.  I have facial numbness and pressure behind my upper teeth.  Is there someway to test what is causing it.  I am post decompression 4 months.  I didn't have the facial number prior to surgery.  I currently am on Neurontin.

[Rahe28]

So glad to hear that you are feeling better without the help of meds. ... and it is always nice when we don;t have to blame chiari again.

[linnielou232]

So happy for you and your relief.  :)
Linda

[cash242]

That is so great!! Words cant say how happy I am for you, I truly can't imagine a day like that enjoy and may your relief continue.

[Mazie1209]

So happy you are out of pain!! Mmmnn Mojitos! ;o)
Mazie

[selmaS]

My NS's office had a NL there that did it, but u should be able to research rheumatoid Drs that specialize in this area ....I am sure u will find someone. A NL can do a primary check, but then u need the rheumatiod Dr and then a geneticist.....

[Viva001]

Ive been trying "cognitive restructuring" over the years.  What else can you do with so many symptoms including pain.  I've gone through biofeedback training, but seem to be a failure with meditation--my mind is still a wild monkey, lol.

A friend is much improved of her multiple chemical sensitivities from meditation.

[irislita]

Thank u both...when we do our ladies barcelona chiari reunion i will prepare mojitos for all ;-))
Thanks selma for the hint...where do i have to go to get checked for eds?

[selmaS]

  Iris....I am soooo glad u finally have some relief and it was not in the form of meds....
not sure u r aware but TMJD is a EDS symptom and indicator, that does not mean all that have the dysfunction of this joint have EDS< but is should be ruled out.

[Viva001]

Yay!!
I wish I was there!