Aa
Aa
A
A
A
Close
4324711 tn?1464043774

Do I have chiari malformations?

I have been diagnose with a connective tissue disorder and I been having chiari symptoms for awhile now,
Severe Headache and Neck Pain
Dizziness
Vertigo
Ringing in the ears
Difficulty swallowing
Palpitations
Muscle weakness
Impaired fine motor skills
Tinnitus
Chronic fatigue
Painful tingling of the hands and feet
Scoliosis
and tachycardia to name a few, I been to numerous doctors cardiologists, rheumatologist, geneticist, and an orthrepedic surgeon. I been wanting to get the mri, but no doctor has ordered one, I am running out of options the only one that seems to listen is the genecticist and I never heard back from him in a month, oh I do have other diagnosis fibromyalgia, osteoarthritus and vitamin d deficient, being tested for marfans and dysautomia. Any advice would sure help!!!!!!!!!
27 Responses
Sort by: Helpful Oldest Newest
620923 tn?1452915648
COMMUNITY LEADER

   Glad u got answers, sorry it is yet another issue u will have to deal with, I know this was considered for me at one point....can I ask how they came to the DX?
Helpful - 0
4324711 tn?1464043774
So I got my results from my nuersosurgeon its not chiar, thats the good news the bad is I do have a rare brain disorder called Dany Walker Syndrome!!
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi...first this is a blurry pic....so it is hard to really say, plus we r not Drs just going by how the Drs explained ours to us....do u have a copy of the MRI on Disk? IF so upload a few pics...u may want to remove some of ur personal info as this is a public forum...ne one that googles ur name will find ur MRI.....

Sorry I wish I could tell u more.
Helpful - 0
4324711 tn?1464043774
Does my MRI say anything?
Helpful - 0
4324711 tn?1464043774
My MRI is today, so today we find out if I have chiari or not.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  I am glad u got ur mom to agree, and I hope u have a NS that can give u a dx and get u to feeling better soon.

  Have a Merry Christmas <3
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease