Do I have chiari malformations?

[courtneybreaud24]

I have been diagnose with a connective tissue disorder and I been having chiari symptoms for awhile now,
Severe Headache and Neck Pain
Dizziness
Vertigo
Ringing in the ears
Difficulty swallowing
Palpitations
Muscle weakness
Impaired fine motor skills
Tinnitus
Chronic fatigue
Painful tingling of the hands and feet
Scoliosis
and tachycardia to name a few, I been to numerous doctors cardiologists, rheumatologist, geneticist, and an orthrepedic surgeon. I been wanting to get the mri, but no doctor has ordered one, I am running out of options the only one that seems to listen is the genecticist and I never heard back from him in a month, oh I do have other diagnosis fibromyalgia, osteoarthritus and vitamin d deficient, being tested for marfans and dysautomia. Any advice would sure help!!!!!!!!!

[courtneybreaud24]

well I read that having a connective tissue disorder, chiari is a possibility because of the faulty collagen. I read a lot of people have both, another one is dysautonomia and I am being tested for that as well.

[linnielou232]

I can't tell you if you have Chari or not, but want to let you know I can relate to the feeling of your flustrations of not getting the answers that you what.  I acturally told the PCP that I wanted my MRI because everytime I went to a different Dr. they would find something wrong, but never was dx'd with Chari for another 2 yrs.  I pray that you don't have to go through all this flustration.  I suggest you call and see your PCP and go talk to them and get the Mri and then find out if you have Chari.  I am hoping the best for you and for answers.  This is the hardest part is finding the right Dr. and answers.  
Linda :)

[courtneybreaud24]

I have way more symtoms:
cold hands and feet
Visual disturbances / loss of vision / spots in vision / double vision / seeing spots or "halos" / nystagmus
Intolerance to bright light / difficulty adjusting to light change
Difficulty negotiating steps
Swaying
Intolerance to loud / confusing sounds
Drooling
Sinus / mucous problems
sensitive skin and easy bruising