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Facial nerve pain & tingling
Does anybody else have severe constant facial nerve pain & tingling, or anything similar? Besides my vision problems, that is my dominant problem, which started when I was a little girl.
I get this pain that goes from my neck to my face into my eyeball on the right side. Then I get this tingling in my cheek area and that is about it as far as the tingling goes.
Before I was first diagnosed with my Chiari, I was seeing my neurologist for a stabbing pain that felt like I needed a root canal or something on the Left side of my face...They did an MRI to investigate and lo and behold...found that I had an 11 mm Chiari. Now, one year post surgery, I have the same kind of stabbing pain on the RIGHT side of my face..Dentists, endodontists say it is not tooth related...actually it seems to start in an area of my gum where there are NO teeth...I have a bridge there...I feel like it's related to the Chiari!!!
COMMUNITY LEADER
http://www.medhelp.org/health_pages/Neurological%20Disorders/What-is-Chiari-Malformation/show/125?cid=186
this is a link to a Health Page that explains chiari...in short, there is a malformation of the skull which makes it smaller than most, and not enuff room for the cerebellum, and the cerebellum tonsils r forced onto the brainstem causing many neuro issues like numbness, vision issues, headaches, balance problems, drop attacks,cognitive issues, but the most important one to watch is the breathing....see if the brain stem and nerves in the spinal canal r compromised then we do not have control of our functions...I need my heart to beat, and lungs to work.....so is it serious, yes indeed it can be very serious....most need brain surgery to slow the progression,m there is no cure.
this is a link to a Health Page that explains chiari...in short, there is a malformation of the skull which makes it smaller than most, and not enuff room for the cerebellum, and the cerebellum tonsils r forced onto the brainstem causing many neuro issues like numbness, vision issues, headaches, balance problems, drop attacks,cognitive issues, but the most important one to watch is the breathing....see if the brain stem and nerves in the spinal canal r compromised then we do not have control of our functions...I need my heart to beat, and lungs to work.....so is it serious, yes indeed it can be very serious....most need brain surgery to slow the progression,m there is no cure.
That's what I worry about all the time too - that someday the nerve damage going on unchecked will eventually cause my face to look slightly disfigured. For it to hurt like that, I know that something has to be pressing on those nerves in the wrong way somewhere. Still waiting for more test results to come back, to gather them and find a NS. The last one I went to, just wasn't interested in looking through my MRI or trying to figure out, so I'm not wasting time there, and will be moving on.
I get this too... though the times when it's the facial pain (nose, eyes, ears, jaw, teeth (yes teeth), roof of mouth) I typically have a HA that's a 6-7. I also get the neck "spasm" if I turn my head a certain way, like towards my shoulder and down.
What I have most frequently (daily) is twitching and (this is the only way I really know how to describe this) like someone has put their fingers on something really cold and is very lightly touching my face... in random areas. It may be on my mouth, my cheeks, my forehead, my nose, my chin.
With either of these two different things, I always have a sensation of "pulling" and a couple of times, my face has slightly drooped, though it hasn't remained that way for more than maybe half an hour max. I'm always worried that one day it will stay.
I talked to my mom about it, and she told me that when she was younger, she had Bell's Palsy. That lasted for quite some time for her, like a couple months. I don't know what causes that, or what causes this, but would assume they both have to do with the nerves in our face.
Again, this has been another thing that the docs haven't taken seriously... at least not seriously enough. Last night I had the facial/neck pain with a HA that started at 6-7 and slowly built through the day to a 10. I just wanted to have someone take my head off! (Yesterday was hot and humid too, so that didn't help.)
Blessings!
What I have most frequently (daily) is twitching and (this is the only way I really know how to describe this) like someone has put their fingers on something really cold and is very lightly touching my face... in random areas. It may be on my mouth, my cheeks, my forehead, my nose, my chin.
With either of these two different things, I always have a sensation of "pulling" and a couple of times, my face has slightly drooped, though it hasn't remained that way for more than maybe half an hour max. I'm always worried that one day it will stay.
I talked to my mom about it, and she told me that when she was younger, she had Bell's Palsy. That lasted for quite some time for her, like a couple months. I don't know what causes that, or what causes this, but would assume they both have to do with the nerves in our face.
Again, this has been another thing that the docs haven't taken seriously... at least not seriously enough. Last night I had the facial/neck pain with a HA that started at 6-7 and slowly built through the day to a 10. I just wanted to have someone take my head off! (Yesterday was hot and humid too, so that didn't help.)
Blessings!
I think trigeminal neuralgia is shocking pain every once in a while brought on by stimuli, and that's it's a symptom of different things, and can cause different causes. Mine is in both sides of my face, and it's an all-over burning & electric pain that are always there. When I consult with a NS, I'll just have to make sure to specifically ask about that to make sure they don't miss anything else.
COMMUNITY LEADER
H II get the twitching, tingles and pain...in fact I woke up today with it....I was overstressed yesterday....to much going on I was at a family picnic and I am used to solitary confinement...LOL....it was just way too many stimuli for me to process and I felt it as I was at the picnic...I knew I was on overload and would have liked to have left early in the day....that didn't happen...well I also got into bed right when I got home and laid there until at least 330 AM....so I look as bad as I feel.
That is my opinion of it not saying it is the only issue, but stress and stimuli add to this for us chiarians for those that do not have it like Haych22 I wouldn't know where to begin...unless they have never had a MRI and have the HA's as well then mayb they have chiari too????
just my thoughts : )
"selma"
That is my opinion of it not saying it is the only issue, but stress and stimuli add to this for us chiarians for those that do not have it like Haych22 I wouldn't know where to begin...unless they have never had a MRI and have the HA's as well then mayb they have chiari too????
just my thoughts : )
"selma"
Have you looked into trigeminal neuralgia before? What you describe sound like it could be that. Again, it is all caused by nerve damage...
I do get something like electric shocks in my face from time to time...they are very painful when it happens but are definitely not a constant for me. To have that constantly....that is awful..I'm so sorry.
Carolyn
I do get something like electric shocks in my face from time to time...they are very painful when it happens but are definitely not a constant for me. To have that constantly....that is awful..I'm so sorry.
Carolyn
That sounds like an annoying problem too, in itself. My problem might be different from that. Mine is electric, burning nerve pain that doesn't go away in between any periods.
Yes, I have it and I have to say that it is a horrible symptom. I find mine always gets worse when I get a headache and it becomes almost unbearable. I find the most pain at my temples, around my eyes, areas on both sides of my nose and at the TMJ. I don't even know if I can place when it started...a few years ago my DH mentioned that I was rubbing my face a lot and I realized I was doing that b/c it hurt! Over the years, as the Chiari symptoms got worse, so did the facial pain. My theory is that it is caused by the cranial nerve damage that is common caused by Chiari...especially since I have no gag reflex. This is another symptom that is still lingering since surgery...
Only thing I have found to help it is to try and prevent strain or headaches that trigger it (hard to do as we know!), sometimes massaging the areas...but like Amethyst said...really nothing helps but to tough it out. I just said this on another thread but this was another symptom I was hoping the Gabapentin would help, I may try Lyrica next which I have heard is effective for this issue.
Carolyn
Only thing I have found to help it is to try and prevent strain or headaches that trigger it (hard to do as we know!), sometimes massaging the areas...but like Amethyst said...really nothing helps but to tough it out. I just said this on another thread but this was another symptom I was hoping the Gabapentin would help, I may try Lyrica next which I have heard is effective for this issue.
Carolyn
Haych22 - No, there is nothing that helps this. Sorry. I've had it for about 22 years now.
I dont have facial pain but do get cramping in my neck along with tingling at the right side of my neck below the ears. I find heat helps. hot bath/shower.
Ray
Ray
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