Has anyone here experienced lightheadedness to the extent of where it’s was almost constant? I’m also noticing my swallowing getting worse to the point of almost choking on liquids.. What worries me is my symptoms have gotten so bad in just a couple of months it makes me scared that it is serious...
Hi...in this heat , weather can be playing a part in how you feel, Are you well hydrated?
Do you have a syrinx?(sorry I can't remember)
Well I may be back to square one again.. I went to a different er awhile ago and they did a ct scan and the the doctor told the radiologist to look for chiari and it was normal. So idk what do now :(
I see my PCP tomorrow and theirs so much I wanna mention to him but I don't wanna overwhelm him. Like the er seeing the chiari on a ct scan and everything. Should I tell him I need mri's of my head and full spine? I see a neurologist next week but I just wish my PCP could get these tests out of the way.
So I went to the doctor today and he pretty much said he’s gonna let the neurologist do everything like he doesn’t want any part in it.. I’m so short of breath today and it’s just getting worse every single day :(. So this is either a syrinix or brain stem compression causing the shortness of breath don’t you think?
I’m at the hospital again I’m having heart palpitations elevated heart rate and shortness of breath I’m so worried... I’ve been working in the heat all day today and maybe that’s a contributing factor.. All day today every time I bend over I feel faint and short of breath :(.
Just left the hospital a bit ago they did an ekg and blood work and sent me on my way my heart still hasn’t come below the 100 mark...
Hi, i'm 21 and I got decompression surgey 13 months ago and still experience shortness of breath, dizziness, and feeling disassociated all the time. i totally understand how unnerving it is but it's comforting to hear other people feel this as well. i don't have another MRI or appointment scheduled until october, so please let me know if you find out any more info on this from your doctor. good luck, praying for all of you.
Well I saw the neuro yesterday and I believe I’m getting a CINE mri because she said she needed to speak with a radiologist about what type of mri I need and I just expect that to be it. Honestly from looking at my last mri it doesn’t appear to be any obstruction with my tonsils blocking spinal fluid I think most of my symptoms are from brain stem compression abs the fact it’s kinked.
For the past few days I’ve noticed a burning sensation acros my whole back it feels like it’s on fire or something. Is this a chiari thing or could that be a syrinix?
Ok today I’m really concerned I’m feeling real out of it and confused it’s hard to describe but I find it really difficult to think clearly. The past couple of days I’ve been feeling off like something different is up idk. Could I have hydrochepalus causing these symptoms? Or could this just be chiari causing the confusion and stuff?
I’m going on a family vacation to Florida and I’m so terrified everything will get really bad because I’ll be in the heat.
Just a little update, I saw the neuro in October about the results of the mri. She pretty much told me she didn't think it was bad enough for surgery, but she said she didn't know much about chiari. She said she was giving my scan and everything to a neurosurgeon and he would review it and decide if I need surgery.
Last I heard I someone one from neurosurgery would call after he read everything. I still have yet to get a call and my symptoms are getting worse fast...
The head pressure in the back of my head is almost constant now and feels like my head is in a vice and I can hear spinal fluid popping in the back of my head. I'm so scared that's it serious or something now.. I called the neurologist about the worsening symptoms and they scheduled me an appointment February 7th. I went to the ER last week because of the worsening head pressure and everything. They did a ct scan which was normal. Should I go back to the er since things are getting worse or is that pointless??
Does anyone visit this board anymore? I really need advice..
Another thing that really worries me is that the headaches just started to get really bad everyday just a few weeks ago. Could it be something else causing the headaches like Intracranial hypertension? Or is it more than likely just the chiari?
Ok Selma i needs some of your great advice. This is gonna be kinda blunt but here it goes. Last week i noticed during sex right as i was ejaculating I got a severe pounding headache in the back of my head that I've never had before. Now every time I attempt to even have sex the pounding headache starts. I went to the er thinking maybe it was a aneurysm or something related. They did a ct scan which was normal. Can this be chiari related or probably something unrelated? Now i can even cough and i will get the pounding headache and its got me real concerned. Also yesterday I broke out into a sweat for no reason at all..
A little update. I saw my neurogist yesterday about the resumts of the mris of the full spine all normal besides some degenerative changes in my cervical spine. No syrinixs or anything like that so thats good news. I am finally seeing the neurosurgeon feb 26 i hope to get some answers. My lightheadedness has been so bad this past week but my neurologist said chiari doeamt cause lightheadedness is that true?
Just a little update I saw the neurosurgeon back in march. He reviewed my scans with me and showed my my chiari saying it was roughly 7mm. He said at this time he does not recommend surgery... He said if I were one of his family members he would tell them the same that its better to wait... I guess I was hoping he would say that I needed the surgery and I could end this suffering.. The past two days have been really bad ive been having horrible pressure in the back of my head. I'm worried its hydrocephalus or something similar. Does the severe pressure warrant a trip to the er??
No idea, it could just be the Chiari.....have you had a CINE MRI? Chiari headaches can cycle...meaning they can get worse or better...all depends on you OR the weather....the weather is a hugr factor in how we feel....if you are having bad weather now or in the next few days your head can act like a barometer.....so do not stress over what it might be and try to find a Dr that is a true Chiari specialist and will test you for ALL related conditions and will look to see if you have a CSF obstruction.
Try to relax.....lay in a darkened room with your favorite music playing...or take a warm soak in the tub....I hope your feeling better soon.
Thanks Selma I’ll check it out. Does this sound like increased cranial pressure?
Also do all neurosurgeons require a referral for consult?
Also I’m hearing a lot of of popping like fluid in my head with the pressure could that be from increased pressure?