cm and seizures?

[emza1910]

anyone else suffers from cm and seizures??!

emz x

[emza1910]

i think its tryin to tell me.. especially recently.. :-(

x

[ChiariWolf]

Annoying! Now that is perhaps one of the best discriptions of CM I've heard yet.

Yeap, understand with the kids. My wife is here to help but still I worry about the times when I'm not feeling well and making certian to keep my tounge in check. Pray every day to have the fruitage of the spirit in my personality so as to treat them right.

But then again, you know you best. When it's time there won't be a choice to make you body will let you know.

CW

[emza1910]

sorry havent been online.. been tryin to get me head round alot of things although i havent!

yeah it is good news i guess and yeah i had that feelin of 'aah finally an answer' then after i got the teariness with the ''oh no, now wat'' my NS has offered me surgery although he said he wanted to have a flow study scan done first which has been done. now i go back to see me ns on the 22 august - to one: get me results.. and two: talk more indepth about surgery..

i dont know if i want it as ive gotta think about my two young kids and how ive got to look after them, thats my main worry!! im scared if im honest... its strange i can handle me fits although id be happier if i didnt but its my head that i cant handle as its constant!! and annoyin..

wow ... thats great to hear ya doin better .. remember though small steps are always best!!

emz x

[ChiariWolf]

Well now, that's what I call 'Good -Bad news'! It's great to get a dx and kind of feel like "ok, now I know for sure why my body feels like this." and at the same time "like wait a min here where is my cure". Tis good though, I'm happy you have made some progress on that front. A good hobby that you enjoy can help pass the time as yes Drs don't seem to have the time to see us all in a timely manner. :-\

Me, well I'm liking the song lyric "I'm just fine for the shape I'm in". Fits real well. Honestly I'm finding the hardest post op battle is reminding myself that this really is much better than I a couple years ago. Just a bit impatient wanting to heal faster. Overall I really think things are good though considering. I'm up and about 3-4 days most weeks. Not running any marathons but overall coping pretty well.

I do hope all goes well, surgery or no... Wow, it just hit me,  isn't it sadistic hoping someone can get surgery?

Keep that smile my friend!

CW

[emza1910]

hey hey Mr Wolf!! :-)

it certainly has been some time hasnt it.. well i finally got my diagnoses but only few months back, my NS wanted a mri flow studies done before he talks more indepth of surgery in his letter he does say though that surgery will be offered and that he thinks my 'eposides' as he called them are apart of my CM.

jus another long awaitin game. god i hate waitin.. i was told 2/3 wks for results, then me gp said 3/4 wks now they sayin 6/8 wks.. gggrrrr.. cant do anythin more til get these results then its another waitin game for the follow up appointment me dr flint.

how are you doin?! x

[ChiariWolf]

Actually yes. Not visable. It seems to happen only in certian flouresent lights and with noise stimulation. PCP is at a loss he doesn't have a name for what's going on but said it's similar to a myclonic. But he also claims it's not cm related not that he would know but that's what he said.

Been a long time, how are things accross the ocean?

CW