My daughter and grandaughter have Chiari 1.Dr.David Jimenez in San Antonio is Awesome he is a chiari specialist .We live 10 hours away from him but he is the only one we will trust.He is great my daughter will have surgery soon and my grandaughter is just seeing him in Feb to see if she needs it right now.So sorry for everyone i see how awful chiari can be.Prayers for you all.Dr.Jimenez is highly recommened for those of you who need a great chiari Doc .Thank you
You may be able to appeal to your INS to cover it regardless since you need a specialist and do not have any in Network.....give it a try....when I went TCI NS;s didn't work with INS at all now they do...
I've had a Dr. tell me that I should not be experiencing this kind of pain at my age....this pain that I'm having is a post-op Chiari decompression surgery complication. I did see this Dr. one more time & I did tell him that Chiari does not care about age...(I'm 41, and not dies a post/op complication. I don't understand the she thing-seems I'm hearing a lot of it these days.
Indeed, I can say 100% that severe pain CAN certainly cause heavy fatigue(though I find many sleepless nights!)
I'm glad that you're being so proactive for your Daughter! I can speak, as a daughter, of just how much a child needs their mother ....at ANY age as well!
I wish I could be more helpful regarding Chiari Specialists for you...
Please keep us updated on your daughters (and your) journey through this....it's definitely like treading rough waters. So, we're here for you!
:)
Sorry no, I did go down there, but was a waste of time and money...I went to NY to TCI and was well pleased.
Hi...sorry I am not personally familiar and I agree with you pain regardless of age will cause severe fatigue.
Looking at specialties a Dr is involved with I would expect to see the current name of the condition (Arnold Chiari being an older term and now used only for Type II malformations.
And I would expect to see related conditions like Syringomyelia and tethered cord.....if not...maybe he is not a Chiari specialist and just a surgeon that has done a few of them.
For me a specialist is one that has a focus on Chiari and ALL related conditions and does research on all of them.JMHO