I just found out I have chiari now what ?

[Katems0521]

Hello I am 24 years old and recently found out I had chiari type 1 I had a seizure first ever when they gave me an MRI and discovered chiari 11 mm. I've always suffered from pressure headaches that worsen with coughing or sneezing, nausea more recently my ears have been popping and wet trouble swolling lumps on my neck almost like a small rock under the skin on my hip are all these apart of chiari please help and guide me to where I need to go to treat my condition

[selmaS]

   We do  have a  list  for  Canada....it may  not cover your  area...so be  advised,you may  have to  travel like  so  many  of us  do, and keep in mind  that  the list is not a  referral nor an endorsement  for those on the list....it is meant  to  be  used   as a tool to  research  Drs.....

http://www.medhelp.org/posts/Chiari-Malformation/CHIARI-DRS-LIST-CANADA/show/1270605

[Katems0521]

Thank for your reply I am in Ontario do you have any information in this area

[selmaS]

  Hi and welcome  to  the  Chiari  forum.

First...get  a copy of  your  MRI  and  the  report  if  you  don't already  have  one... Next...educate  your self  on Chiari  and ALL  related  conditions, and then   research  Drs.....

Not  knowing where  you  are  from,  I  am  not sure  which  list is for  you.....we have one for  the  States,UK,Australia.....As Elisa mentioned  the  list  is not a referral nor  an endorsement  for those  listed on  it....it  is  here  for  you  to  use  to kick  start  your  research......here  is the Health  Page list with  links to all the  Drs threads...http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

  And  as Elisa said....you may  find you  may  need  to  travel  to  get  to  a true  Chiari  specialist...many of us do...and it  is well worth  doing......

Ask   questions...and we will try to help  as best  as we  can.....knowing  there  are  others that understand how you  feel  will help with  this process....so do  keep us  posted on  how  you  are  doing  <3

[Elisaandbucky]

Hi Kate,

Welcome to a safe place to get support, encouragement, and information about Chiari Malformation. I remember when I first learned about my diagnosis - fear, uncertainty, anxiety all wrapped up together. The first thing to do is to locate a surgeon who specializes in Chiari surgeries. Other doctors and surgeons often know very little about Chiari and will not be the best informed about current research and treatment options. Our forum leader, Selma, will guide you to a list of specialists who have treated other members of the forum. The list is not a recommendation, bit it simply lists names, email addresses, and phone numbers. Depending on where you live, traveling may be a factor to get the best care. Post back with any specific questions you think of. And, more importantly, know that you are not alone in this.