Wow, good for you! (I haven't even done a 5k drive yet).
Yes, you should post the info.
I'm doing a 5k walk for Chiari on September 22nd in Southern California.
I have created a team: Pink Ladies
If anyone wants to donate or would like to join the team, we would be glad to have u...let me know I can post my site...
I was looking into the walk, then came across this study at several places, studying the elasticity of the spinal cord (which might explain why some are asymptomatic and/or why symptoms occur in mid-life, IMO).
They're following patients pre & post op.
http://www.chiariassociation.org/newsroom/articles/following-patient-through-chiari-study-part-1-ongoing-series