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Avatar universal

Just diagnosed

I was recently diagnosed from a MRI done that i'm 8.5mm and i now have an appointment for a neurologist. I'm symptomatic and i wanna know hows the process? Whats next? Should i be alarmed?
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620923 tn?1452915648
COMMUNITY LEADER

  So a syrinx was ruled out for ur cervical, thoracic and lumbar spine?

U were also tested for ICP, POTS, sleep apnea, ehlers-danlos, ur thyroid is ok, and ur vitamin levels are all ok?
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Avatar universal
I have to disk about 2mm out of place
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620923 tn?1452915648
COMMUNITY LEADER

  I use to get awful headaches when I laughed....at times I still get one but nothing like b4 surgery.....

Do u know if u have ne of the related conditions I mentioned?


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Avatar universal
When I laugh,cough,sneeze its a total disaster I either get real dizzy and my head fills up with a lot of pressure. I put my head back because of the pain and after 3-4 min I'm ok again. There's days where I'm feeling nausea all day but this month I had about 4 light headaches where I have to hold on to something. I'm actually glad I now know that when people laugh thy don't get a huge headache afterwards.  If I run or jog etc I continue with this pressure in my head where I see all dark even though my eyes are open.
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620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

First, do not panic, and educate urself on ALL aspects of Chiari and related conditions,.....

U will want to research Drs to find a true Chiari specialist...one that will look for a CSF obstruction, a syrinx in all areas of ur spine, tethered cord, disk issues, ICP, POTS, Ehlers-Danlos Syndrome...vitamin issues....

May I ask what symptoms u r experiencing?
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620923 tn?1452915648
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