Knowing just what to say

[jessica537]

I had a really great day yesterday.  I felt the best I have felt in like a week.  I am still waiting for my MRI to confirm 100% that I have CM, but I am sure my CT didn't lie.  The not knowing exactly what is going on in there is killing me, and making decisions hard, my husband at first was refusing to read up on CM, stating that my CT just suggested it, but when I showed him the CT results and some information on CM, he was much more understanding as to what I have been going thru, and why this has been so emotional for me.  The fear of the unknown, will I get worse, when will I get worse, etc.  I am sure most of you can relate to this, and may have seen some of my posts, struggling with the decision on another baby.  My husband has been so good to me, and yesterday he summed it all up.  He said if another baby is something we want, then we should go for it.  What if you dont ever get worse, what if you dont get worse until your much older, you dont want to not do something for fear of the unknown.  You dont want to be in your 50's looking back saying wish I had that last baby.  That is like a healthy person staying inside all the time for fear they might get hit by a bus, they are missing out on life.  We will take the good days with the bad.  But lets live.  I LOVE that man so much.  Yes I could get worse, it could be tomorrow, it could be next month, next year, 10 years, or never.  He is so right, and knows just what to say, and when I need to hear it.  Just thought I would share that, incase any of you are in the same boat as me.  Yes we have CM, but lets not let it take over our lives.  Find your limits, and keep them in mind, dont over due it, but make sure you live, love and laugh........

[linnielou232]

I agree with all of the above.  Go for it and have your children when you can, and yes being a Grandma is the best thing in the world.  I have a grandson who is 11 and grandaughter who is 7.  There is no word's to explain being a grandparent.  I used to be very active in my niece's and nephew's life's.  Bringing them out on outing and camping in the back yard, but due to the Chairi issue I haven't been able to do these thing's with my grand kid's.  So do what you can now to enjoy your family.  I wish you the best of luck on the wonderful journey.

[selmaS]

  Thank u Jessica it means more than u know...I would have loved to have as many as the good Lord would let me have and I guess that is what I have, bcuz she is wonderful. I did a lot of tutoring at my DD's school so I was around kids as much as possible...I do love kids.

And hopefully my DD will bless me with grandkids when I can still enjoy them....lol...she is married 1 yr this Oct 1st....and she is a teacher so I still get to see her students which helps me get my quota...

  Thanks again : )

[jessica537]

I know it prob. doesn't mean much now, but I am really sorry to hear about all that.  I love kids, sounds like you do too.  Im sorry you were not able to have more.  Hopefully you will get lots of grandkids one day......   Im looking forward to that, and my kids aren't even grown up yet.  But it will be nice to play and spoil them, and then send them home.  hee hee.....

[selmaS]

  At the time I had no idea, but since have found I have a tilted pelvis, and hashimoto's thyroiditis...so I had a lot going on and my Drs were not checking me for what was going on and left it go...then they told me I was in pre ovarian failure....which was not the case it was the thyroid issues not being addressed at the time and they were chiari related however we did not know about it at the time.

It took over 5 yrs to get pregnant with  my DD...so other issues at play, but our hormones get all out of wack too.

   "selma"

[jessica537]

I will make sure my OBGYN knows, and my other 3 were c-sections, thank goodness, so this last one will have to be the same.  I have some symptoms, and I will pray that they do not get worse, but what have I got to loose right?  

If you dont mind me asking, why were you not able to have anymore?  Was it due to your chiari?

[selmaS]

  I agree with u and ur DH...u can not hide away...and some of us did not get a chance to have more children and would have love it...so go for it if u can.

BUT, make sure ur OBGYN knows about ur chiari and knows that u should have a C-section to help avoid an onset of symptoms.
That way u r up to taking care of all ur little ones.

  Good luck and God bless

    "selma"

[cash242]

My symptoms started when I became pregnant with my daughter but everyday I am thankful for her and wouldnt change it for the world.  I am afraid that she may have it which scares me but I also have a husband that holds me up physically and emotionally everyday and that is the best gift of all!!  My kids have also embraces my dx and help educate everyone they know about it.  I wish you all the luck!!

[jessica537]

Thank you for your response.  I have to say I struggle like daily with the decision and what I want to do.  My youngest just turned 2 yesterday.  I didn't start having symptoms until about 2 months ago.  So I know it wasn't because of her.  I know that no matter what I decide to do, it will be the right one, and if I get worse after another baby, or while I am carrying it, I will still make it through you know?  I might not enjoy it as much as I would without pain, but I will pull thru, I will survive, I will enjoy them.  I looked at this possible diagnosis and feared it.  But I need to start looking on the bright side, I know what it is, I know what to I need to look for, but I need to look at the brighter side, This is something I was born with, I need to accept it and move on.  I could have gotten a diagnosis that was much worse.  So i am thankful that this is not something that is going to kill me.  Sure it may make my way of life different, but I will still be here.  Im trying to stay positive.  It helps that my husband is so understanding, and he is so awesome when I am having a bad night, and just jumps in and takes over with our kids.  

[cash242]

I know that pregnancy is scary with CM but wanted to share one story with you..my dentist's wife has chiari and he said she was miserable after their first child and then all of her symptoms became much better after the second one.  I have no idea why but true story just make sure that your dr knows and that you know what to expect.  I agree I have had the dx for 1 year and really am done with what I can't do and celebrate what I can!!!