Shane99 condensed our list of drs. (Thanks Shane!)
This list is not a complete list of possible Specialists - Please continue to add.
This is not any kind of "Official" list of Chiari Specialists! These are simply NeuroSurgeons that we patients have listed as liking. No background checks have been made about them. If you wish to follow up, please research on your own. If you are comfortable with your current doctor and he/she is actually qualified to perform Chiari Decompression Surgery, then don't let us tell you any differently. This list is just to help people connect with NeuroSurgeons. It is not intended as a referral, please research all Drs.
Dr. Jerry Oakes Pediatric Neurosurgeon UAB in Birmingham, Al.
Dr. Marc Ercius Mesa, Arizona (480) 833-5209
Dr. Timothy Bursen Little Rock, Arkansas
Dr. Anthony Capocelli Fort Smith, Arkansas
Dr. Jorge Lazareff, MD Specialty: Neurological Surgery; Director Pediatric Neurosurgery Ronald Reagan UCLA Medical Center 200 Medical Plaza, Suites 140 Peter Morton Medical Building Los Angeles, CA 90095
Phone: (310) 794-7700 Patient Appointments
Contact (310) 206-6677 Fax Number (310) 794-2147
Paul S. Jackson, M.D. , Ph.D. Palo Alto Center 795 El Camino Real Level 3, Lee Building Palo Alto, California 94301 (650) 853-2919 Deputy Chief of Neurosurgery -- Stanford University School of Medicine Assistant Professor-- Stanford University School of Medicine
Dr. John Oro, Chiari Care Center Aurora, Colorado (303)-481-0035
Dr. Judith Gorelick Connecticut Neorosurgery PC 330 Orchard St, #316, New Haven, CT (203) 781-3400
Dr. Jeffrey W. Campbell, Dr. Benjamin Warf, DuPont Children’s Hospital Wilmington, Delaware
Dr. Balis Dr. Lewis 3000 Fletcher Ave Tampa, FL 813-977-3776
Dr. Vidyadhar Chitale Marietta
Dr. Todd Alexander Ste 210 1235 North Mulford Road, Rockford, IL 61107-3879 (815) 397-0077
Dr. Frim Chicago, IL
Dr. Merle Diamond, Diamond Headache Clinic Chicago, Illinois
Dr Gail Rosseau Chicago Institute of Neurosurgery and Research (CINN) 4501 N Winchester Ave Chicago, Il
Dr Arnold Menzes 200 Hawkins Drive Iowa City, IA 52242
Scott W. Soleau, M.D. Neurosurgery The NeuroMedical Center Clinic 10101 Park Rowe Avenue 3rd Floor Baton Rouge, Louisiana 70810 Phone: (225) 768-2050
Dr Marcella Madera
Primary Location: The Johns Hopkins Hospital 600 N. Wolfe Street Baltimore, MD 21287
Dr. Fraser Henderson - Neurosurgeon (chiari and spine specialist) Spine Team Maryland 8116 Good Luck Road, Suite 205 Lanham, MD 20706 (also has an office in Bethesda, MD)
Dr. William Butler Mass General Hospital Boston, Mass
Dr. Carl Heilman NS Tufts Medical Center, Boston, MA
Jean-Valery Coumans, MD Mass General Hospital 15 Parkman St. Boston, MA 02114 Tel: 1-617-726-3511 Fax: 1-617-643-4115
Dr. Lynn Hedeman Great Lakes Neurosurgical Associates 414 Plymouth NE Grand Rapids, MI 49505 (616) 454-3465
Dr. Karin Muraszko @ C.S. Motts Childrens Hospital Ann Arbor at the University of Michigan
DR Richard Veyna Head and Spine Institue of MI West Bloomfield, MI
Dr. Mahmoud Nagib Neurosurgical Associates Minneapolis 913 East 26th Street 305 Piper Building Minneapolis, Minnesota 55407 Phone 612-871-7278 Fax 612-863-8531
Dr. Timothy Wiebe Hattiesburg, Mississippi
Chiari Institute Great Neck, New York (516) 570-4400 (516) 394-8350 Dr. Thomas Milhorat · Dr. Paolo Bolgnese · Dr. Rohit Verma · Dr. Misao Nishikawa · Dr. Roger Kula · Dr. Sol Mora · Dr. Amit Shelat · Dr. L. Thierry Remy
Dr Chanland Roonprapunt (Formerly of The Chiari Institute) Spine Institute of New York Ph: 212-523-6720 Title: NS
Dr.Michael Seiff, Las Vegas NV.
Dr. Michael J. Rosner Fletcher, North Carolina
Gerald A. Grant, MD Pediatric Neurosurgeon Duke University Durham, North Carolina Appointment Telephone 919-684-5013
Office Telephone 919-684-5013
Fax Telephone 919-684-8274
Dr. Daniel Prevedello, recently moved from Pittsburgh, PA to Columbus, OH. Ohio State University
Dr. John M. Tew, Jr. Mayfield Clinic University Medical Arts Bldg. 222 Piedmont Ave., Suite 3100 Cincinnati, OH 45219
(513) 221-1100 800-325-7787
OREGON Dr. David Adler Emanuel and Providence. Columbia Neurosurgical Associates 1040 Northwest 22nd Avenue, Portland, OR (503) 796-2743
Dr Bejani Pittsburgh, PA
Dr Gardner UPMC Presbyterian Hospital Pittsburgh Pa
Dr. Ralph Reeder Sioux City, South Dakota
Dr. Carl Hampf, Baptist Hospital Nashville, Tennessee 800-668-9410 (615) 327-9543
Dr Reid Thompson, Dr. Cheng, Vanderbilt Hospital Nashville, Tennessee
Dr. Samuel Hunter Nashville, Tennessee
Dr. Stephanie Einhaus Semmes Murphy clinic Memphis TN,
Dr.Victor Kareh, MD Neurosurgery, Spine Surgery 21216 Northwest Freeway Suite 230 Cypress, TX 77429 281-640-2121
Dr. Jeremy Denning Dr. Richard Jackson Dallas Neurosurgical and Spine Associates Presbyterian Hospital of Dallas, Professional Building III, Suite 220, 8230 Walnut Hill Lane, Dallas, Texas 75231 Phone: 214-750-3646
Gulf Coast Brain & Spine Institue Dr. Peter J. Yeh, MD, FACS Board Certified Neurological Surgeon 6565 West Loop South, Ste. 450 Houston, TX 77401 713.661.8900 713.661.5535 fax
Dr. Buchwald, Dr. Maravilla Dr. Ellenbogen Ninth & Jefferson Building 908 Jefferson St., Fifth Floor Seattle, WA 98104 206-744-9300
Dr. Gregory Foltz Swedish Hospital Seattle, WA 206-320-2800
Dr. Rammy Gold Parkersburg, West Virginia
Dr. Dan Heffez Milwaukee, Wisconsin
Bermans J Iskandar,MD 600 Highland Avenue Madison, WI 53792-0001 (608) 263-6420 UW Madison
Dr. Judith Gorelick in Connecticut is not a chiari specialist as it says on the list of specialists. She did my surgery and I spent the next year deteriorating. When she couldn't help me she told me it was in my head and told me I had anxiety. I got to the point that I was bedridden and could not to anything for myself. I finally got diagnosed with EDS by a specialist and had severe instability in my neck. Also my cerebellum was literally coming out of my skull. There was nothing protecting my brain. I also had tethered cord which she did not find. Do not go to her. Finally after a year of suffering and losing everything I got two more surgeries to correct the damage that she did to my neck (it was broken by this point). I am finally recovering after surgery with Dr. Fraser Henderson in Maryland. He saved my life and is a true chiari specialist. He is very knowledgeable about chiari and its related conditions. Traveling is worth it when it comes to chiari.
Thank u for sharing ur experience, and I am sorry u had to go thru that. AT the heading of our list, it does say this list is not a list of specialists,rather it is a list of NS's that have treated the members here for chiari and the member if they liked their dr add them to the list.
There r many lists on line....and we do not copy them as u can not go by them and we encourage all members to research all drs to find the right dr for them.
I am so sorry u had that experience with that dr, and will take ur info under advisement.
I am glad u found Dr Henderson, he is a new up and coming go to Dr for Chiari.......
getting a dx of EDS b4 surgery can benefit all chiarians and save them much in the way of set backs with recovery.
I fought to have my husband seen by Dr. Green. But, because I don't take no for answer, he will be seeing Dr. Green. I believe with CM and SM, we all must really be proactive. I have only known about SM for 1 year. The lack of education within the medical community juat plain and simply makes me sick!! I will always advocate as much as I possibly can to have more attention paid to CM and SM.
Thanks for adding Dr. Green, he is awesome. I am having surgery with him on June 16th.
Good luck to you and your husband! Be prepared to wait a while to see him. My first visit I waited 3-4 hours before he saw me. I was so upset and about to leave until he came in. He is so kind and spent close to 2 hours with my husband and I. He is worth the wait!
The superintendent of our school district's wife died during chiari surgery this past November. Dr. Tew from Cincinnati was doing the surgery, I know there is an investigation into what happened because she was a strong 40 yr old woman. I don't know any of the details, so I try not to judge, but it was def enough for me to go else where.
Hello I am a new CM1 patient and would like to add my doc. Thanks to the initial poster for giving us new patients a start in searching NS all over. It is nice knowing I am not the only one! And yes is a CHIARI Specialist:
Dr. Danial Barrow
Although I am in the new process of finding out what is going on.. I first seen him in 2004, and he suggested that is was unclear of my condition but wanted to wait until my symptoms became worse before he suggested surgery. (At the time I was not having the serve headaches and other issues as now).. so I am back with him so determine my CM1.
Also is anyone having issues with their eyes being slightly crossed? I read that since the area in which the decompression is at, it is near the optical nerve which causes the blurriness but need to know about the crossing?
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